DS-ASD, Nick’s Spring Update
The trees and flowers are budding and blooming here in the Chicago area. A long overdue, and highly anticipated spring has finally arrived. Here is what my son, Nick has been up to this spring. Nick is 24 years old and has a dual diagnosis of Down syndrome and autism.
Nick attends an adult day program which provides enrichment activities both in-house and out in the community. The structured curriculum and schedule of this program serves Nick, and his fellow clients well. Community trips to local parks, restaurants, shopping for the weekly cooking segment are integrated throughout the week. They have also been doing gardening and working on craft projects that will be sold next week, at the Garden and Craft Sale. Nick enjoys going to this program, and looks forward to going to it daily.
Outside of his adult day program, Nick likes to go to the movies, parks, library and out to eat with his personal support/respite caregivers.
It’s the middle of April and a jacket is still required……
Oh happy day 🙂
For the past couple of years, Nick and his respite caregiver Jodi, have joined up with Christopher and his caregiver for date night, each Thursday. These two guys have a lot of laughs together at the library, and going out to eat afterwards. His buddy is moving out-of-state, so it was a bittersweet final date night for the two of them…….
Nick and Christopher saying goodbye, it’s the end of an era…..
March is Down Syndrome Awareness Month, and 3/21 also being World Down Syndrome Day. Nick and I spent this month doing advocacy and awareness about Down syndrome. One campaign we were a part of was with Noah’s Dad, #provethemwrong which highlights the many awesome things that people with Down syndrome are doing in the world. To follow Noah’s Dad and #provethemwrong click here for more information: http://noahsdad.com/prove-them-wrong-tee-shirt/
Our family also supports The National Association for Down Syndrome (NADS) which is based in Chicago. We are sponsors for the annual NADS Bowl-a-thon fundraiser. Nick had a blast at the event :)……
Over the past weekend, we made a trip to Ohio to celebrate Nick’s cousin’s graduation from Bowling Green State University. Nick is highly social, and loves spending time with his cousins, aunt, uncle, and grandparents. Before the early 9am graduation ceremony began, in the crowded Stroh Center, Nick did his part to test a fire alarm cover. The loud buzzer blared for a few seconds, before his Dad could close it back down. It was a close call, but at least he didn’t pull the actual fire alarm. He’s cheetah fast, and as I’ve said before, it’s Nick’s world, the rest of us are just trying to keep up.
Congratulations and elbow bumps to Nick’s cousin, Sam, well done!…….
Relaxing on the deck and enjoying a warm, spring day with his cousin, Anna….
Spring is a time of renewal, and taking in the beauty of nature coming back to life after a cold, harsh winter. It feels so good to get outside and power walk again. These walks are a time for me, to reflect on life’s blessings. I feel very fortunate that my son is healthy, happy and enjoys his life as a young adult having Down syndrome and autism. Yes, there are many challenges, and he certainly keeps us all on our toes. But the joy and humor that Nick exudes, far outweighs the behavior challenges we incur daily.
It’s almost Mother’s Day, which is the official “green light” to plant flowers and vegetables here in the Chicago area. I’m ready to fill up the clay pots with some color, on the empty pallet of the deck. I can’t wait to put the tomato plants into the soil. Gardening is my way of relaxing, and shaking off daily stress. It’s so important to carve out time for yourself, and restore what can sometimes be taken away, by the demands of parenting a child with special needs. Wishing all the moms on the front lines, a very Happy Mother’s Day. My hope is that you make time to enjoy something on your own, that is fulfilling and relaxing each day. That’s what is in my noggin this week.
Happy Spring everyone 🙂
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