Winter 2017 Update
I hesitate to call this a “winter” update, as we’ve been enjoying a string of mild, 65 degree days here in the Chicago area.
Hot tub in February, no jacket required…..
My son Nick, just celebrated his 23rd birthday a few weeks ago. He has Down syndrome and autism. He has been going to an adult day program, for the past year. The program offers a variety of enriching activities, which he completely enjoys. In addition, Nick does many community outings with his awesome respite caregivers, Jodi and Lara. They go out to eat at a variety of restaurants, to the movies, library, and parks. Nick loves being out and about, in the community.
We have been very active in our local Down syndrome support group, The National Association for Down Syndrome (NADS). Even before we relocated to the Chicago area, NADS was instrumental in providing information and support for us. They have been a vital resource for our family, and many others in the Chicagoland area. To find our more information about The National Association for Down Syndrome (NADS), click here: http://www.nads.org.
The NADS Bowl-A-Thon event, is coming up on March 5th. This event, is the single largest fundraiser for NADS. This year, Nick has a fundraising page for his bowling team. You can click on the link to support Nick’s Elbow Bumpers Team and NADS:
Big Guy’s signature elbow bump with his brother, Hank…..
One more update, I want to briefly mention is coming up on March 21st, which is World Down Syndrome Day.
“World Down Syndrome Day is observed on March 21. On this day, people with Down syndrome and those who live and work with them throughout the world organize and participate in activities and events to raise public awareness and create a single global voice for advocating for the rights, inclusion and well-being of people with Down syndrome.”
One of the trademarks of World Down Syndrome Day, is rocking your socks! This year I am working on partnership to raise money and awareness for Down syndrome, where you can purchase some funky socks. I’ll be posting more information about this next week, on this site and the social media sites listed below. Stay tuned……
The Down syndrome community has supported Nick and our family, so much over the past 23 years. These fundraising efforts are the least that we can do to give back, and help other families going down the same path. Having a community of support has helped us to navigate Nick’s world. Now at age 23, Nick is a very happy, young man who enjoys life. That certainly brings a smile to my face. 🙂
That’s what is in my noggin this week! 🙂
Down Syndrome With A Slice Of Autism on Facebook and Pinterest
#nickdsautism on Instagram
@tjunnerstall on Twitter
2 thoughts on “Winter 2017 Update”
Very loving blog. Are you aware of the great work of VOR? Please check them out at http://www.VOR,net. I don’t understand why I haven’t heard them mentioned on any of the blogs of/for individuals with intellectual and developmental disabilities. Maybe I’m nt not connected. If you know of any please let me know, In my town (Athens, Ohio) they are closing the sheltered workshop for sham reasons. One of my pages is on Downs and my daugher Mandy.
Thank you Nan, I will check it out. 🙂