Posted in Autism, Down syndrome, Dual Diagnosis Down syndrome and autism, Recreation/Leisure and Special Needs

Blog #211~50 Years of Special Olympics

Blog #211~50 Years of Special Olympics

Special Olympics 50 years

“Let me win, but if I cannot win, let me be brave in the attempt.” 

This is the motto of the Special Olympics, encouraging athletes to find the courage to give it all you got.

“The torch was first lit on July 2, 1968 when Eunice Kennedy Shriver ushered in a new era for people with intellectual disabilities, when — with 1,000 athletes from three countries — she opened the very first Special Olympics International Games at Soldier Field in Chicago.”

Two weeks ago, the torch returned here to Soldier Field here in Chicago, where it all started.  Fifty years later, the games have become a global movement reaching more than 5 million athletes.  Sport events include track and field, basketball, bocce, cycling, figure skating, soccer, power lifting, gymnastics, judo, tennis, swimming, skiing and bowling to name a few.

“Special Olympics is an international organization dedicated to empowering individuals with intellectual disabilities to become physically fit, productive and respected members of society through sports training and competition.”

My son Nick has a dual diagnosis of Down syndrome and autism.  Over the years, he has participated in Special Olympics competing in track and field, bocce and bowling.  The spirit, camaraderie and dedication of volunteers made the experience very rewarding for Nick and our family.  Watching the determined athletes is awe-inspiring.

Nick competing in the 50 yard dash at North Central College….. 

Nick backside special olympics

Nick special olympics podium

Nick showing off his gold medal earned at bowling…..

Nick special olympics bowling

Nick taking a bow at the top of the podium as they played the olympic theme song.  He won the State Special Olympics gold medal for the softball throw competing in down state Illinois…..

Nick Special Olympics

Nick competing in Bocce with his volunteer peer partner, Bobby.  Incidentally, Bobby (who is Nick’s brother’s best friend), has since gone on to become a Special Education Teacher in the north suburbs of Chicago…..

Nick special olympics bocce     nick special olympics bocce two

As my son entered high school, we had to put Special Olympics on the shelf.  Having a dual diagnosis of Down syndrome and autism made it difficult for Nick to participate without having a 1:1 aide at all times. This just wasn’t feasible.  As a parent, you can only do so much for your child.  I made the decision to put speech and occupational therapy first, rather than Special Olympics practice events, after school.  However, there were other inclusion opportunities for him in high school, which included Peer Partners and community trips with his respite workers.  Nick also participated in a wide range of P.E. programs with peer volunteers to assist and encourage him in high school.

Special Olympics has impacted the lives of athletes and volunteers for 5 decades.  Eunice Kennedy Shriver’s vision has grown from a flicker of the first torch flame, to an international movement.  “Special Olympics is dedicated to use the power and joy of sports to impact inclusion and respect – one athlete, one volunteer, one doctor, one teacher at a time.”  Congratulations to Special Olympics for 50 years of making a difference in the lives of individuals with intellectual and developmental disabilities!

eunice_dennedy

That’s what is in my noggin this week.

~Teresa 🙂

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Posted in Autism, Down syndrome, Resources for Special Needs

Blog #209~The Big 5-0 Fire Alarm Pull

Blog #209~The Big 5-0 Fire Alarm Pull

Well this happened over the weekend in St. Louis, Nick pulled his 50th fire alarm at a wedding reception.  The Unnerstall’s are a big family and like to celebrate in a grand way.  The venue was the Chase Park Plaza Hotel in St. Louis.  The cocktail hour was just wrapping up, as the procession began to move into the dining area, that’s when it happened.

firelite-pull-station

The fire alarm was tucked behind a curtain and only partially exposed.  That’s all it takes for Nick.  My eyes momentarily diverted to the photo booth area, just to the right of the curtain.  That’s when Nick made a run for it.  I dashed over in my 3 inch high heels, and grabbed his hand just as it grazed the alarm.  He got me, after an 8 year run with a clean record.  As his middle school teacher Jess told me once, “He’s cheetah fast!”

cheetah

Two young men in their twenties busted out laughing, one saying, “Man, I always wanted to do that.”  In the moment, I was not laughing.  But admittedly, it’s hard not to chuckle at the absurd number of pulls Nick has done since third grade.  We got someone to alert the hotel desk, that it was a false alarm.  Fortunately, they didn’t evacuate the building during that stormy evening.  We walked into the dining area as the lights flashed and the sirens blared loud for well over 5 minutes before they shut off.

I should add here that in Nick’s behavior plan, it calls to remove him from the building giving no reinforcement or reacting to his actions.  This reduces him from getting the rush he seeks from the loud sirens and lights flashing.  However, the venue was in the middle of downtown St. Louis with busy streets, being on the upper floor of the hotel, and stormy weather didn’t make it feasible to do so.  Visuals are used as well, these support a person who has autism.  He also has a social story that we review, however that seems to be ineffective.  Compliance commands are another tool we utilize.  If a directive has too many words, it may be too complicated for an individual with autism.  Thus, the individual may not be able to process the information.  Using compliance commands with fewer and concise directives help them to stay on task.  In the case of walking down a corridor, we use these two directives, “Big guys keep on walking” and “Hands to self, Nick”.  These compliance commands do help Nick to stay focused and remain on task.  Nick is then given praise and positive reinforcement for making good choices.

Nick is quite pleased at himself for adding to the wedding reception festivities, me not so much 😮 

Nick at Kurt Wedding

So how did this all begin?  Some individuals with autism are sensitive to over stimulation from a sensory standpoint.  Nick tends to actively seek out more sensory stimulation on a daily basis.  It all started innocently with car remotes keys.  Nick realized at an early age that if you push the red panic button, it sets off the car alarm and the headlights will flash.  He once took the key remote out of a babysitter’s purse, and proceeded to walk up to the front door, point it at her car and set off the alarm.  By third grade, he discovered fire alarms at his elementary school.  In a matter of 2 days he set the alarm off 3 times.  We’ve noticed a pattern over the years, that the alarm pulls tend to come in three’s.  Just last week, he set off an alarm at his day program when a staff member was tending to another client.  She thought Nick would remain on the swing in the gym.  But that’s when Nick strikes, just when you divert your attention, even for a second.

The first time Nick got me was leaving the doctor’s office, as I fumbled in my purse to get the car keys.  Another time, while I was wearing a clunky therapy boot, he let go of the grocery cart and darted to one at Dominicks 8 years ago.  His Dad “technically” has a clean record.  However, Nick nearly got one on Al, at Houston’s Bush International Airport where the alarms are painted silver.  Just recently, we attended Nick’s cousin’s graduation ceremony from Bowling Green State University.  Al took Nick to the restroom he came close.  Nick pulled up a cover which sets off a very loud mini alarm alert.

There’s been some good replies on social media, that have eased the sting of being the big 5-0, one being this, “I’m sorry but I just have to laugh.  I know that you probably don’t laugh when he does this, but the sign does say pull down.  So what else is he supposed to do?”  Another reply on Facebook, “Ever vigilant Nick!  He wanted to add to the excitement.”

Well, excitement is right, Nick sure did light up the wedding reception.  I guess if he’s going to pull #50 it should be in a big, fancy venue, surrounded by family.  Go big or go home, Nick!  This weekend is one for the memory book, and Nick gave the newly wedded couple a night they won’t forget.  As his tagline says, It’s Nick’s world, the rest of us are just trying to keep up.

That’s what is in my noggin this week.

~Teresa 🙂

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Posted in Autism, Down syndrome, Dual Diagnosis Down syndrome and autism, Fun Side of Nick, Recreation/Leisure and Special Needs

DS-ASD Nick’s Summer Update 2018

DS-ASD Nick’s Summer Update 2018

We have a lot to share after a three-week blog break.  Nick’ been flying the friendly skies and having a blast on vacation!  My son Nick is 24 years old and has a dual diagnosis of Down syndrome and autism.  This week, find out what Nick’s been up to this summer.

Vacation started with a family reunion in Branson Missouri.  I haven’t flown solo with Nick in quite a few years, so I was feeling a little anxious.  I checked the flight status on my phone, while in the taxi heading to the airport. My jaw dropped, our flight got canceled due to aircraft maintenance.  This was the last thing I needed.  We were directed to United Airlines Additional Services line.  The gentlemen in front of me, smiled at me and Nick, saying “This is the line you don’t want to be in.”  I was nervous and saying prayers as we waited for nearly 30 minutes…….

Nick airport additional services

Fortunately, we got re-booked on another flight that was leaving at the same time.  Nick and I navigated the corridors  of O’Hare as we have done multitudes of times as a family.  We made it to the gate with 10 minutes to spare.  There was no time for a quick bite to eat, as I had alloted in my timetable.  So, I had to buy the most expensive bag of Cheez-Its to make do.

Airport Cheez-Its= Cha-ching $5.00  I should have taken my own advice from Blog #208~ https://nickspecialneeds.com/2018/06/11/blog-208vacation-tips-for-parents-of-a-child-with-special-needs/and packed some snacks.

cheezits

The family reunion was a great time and opportunity to catch up with everyone.  My mom’s side of the family has a reunion every two years.  This year was hosted by Uncle Jackie and Aunt Karen with over 100 members attending.  The resort and accommodations were wonderful.  Best of all the Overbey family give the warmest hugs.  Nick had a great time and got a couple of special gifts from his aunt and uncle.

Autism awareness bear from Aunt Mary…

NIck Autism Bear

Fire alarms from Uncle Robert…

Nick fire alarm at branson

A few weeks later, we made our annual trip to Virginia and the Outer Banks in North Carolina.  Nick’s uncle and aunt have property in both places.  Here are the highlights from VA and OBX….

Vacation in VA started out in Nick’s happy place….

nick pizza in va

The views in Virginia are breathtaking.  This property sits overlooking the James River. Uncle Ron was a gracious host on our visit here.  Time spent here is about unplugging, relaxing and enjoying the peaceful atmosphere…

VA view

Nick swing VA 2018

We did a few tours while in Virginia.  One was Blenheim Vineyards, established in 2000 by owner, singer and artist Dave Matthews.  The venue is laid back, with a deck overlooking the vineyards with a nice wine tasting offered.  On another day, we toured the Virginia Distillery.

VA whiskey

Uncle Ron and Nick’s Dad, Al sampling whiskey….

whiskey al and ron

Nick is not so much of a fan 🙂

Nick whiskey

Our second part of the trip was in the Outer Banks in North Carolina, also known as OBX.  Here are some of the highlights:

When you see this sign, it’s time to exhale, let go of all your worries and chill….

OBX signs 2018

Currituck Lighthouse…..

Curriteck Lighthouse

Floating on the lazy river pool…

Nick lazy river in obx

Nick standing guard at the crow’s nest…..

Nick ruling crows nest

Nick always manages to find the vacuum at Uncle Ron and Aunt Ali’s beach house.  He’s practicing his independent living and job skills……

 

For the first time in many years of coming to OBX, Nick wanted to spend a lot more time on the beach.  He’s never been a fan of the sand, however this year he put on his socks and shoes and came out almost everyday.  Wearing tennis shoes and socks, along with sitting in the higher beach chair, helped him cope better with the sensory issues associated with sand!

View of Duck, OBX beach…..

obx view 2018

Nick’s Dad and Brother……

Al and Hank obx 2018

Nick and his brother Hank, taking in the sunset at OBX….

Hank obx 2018    nick and hank obx 2018

Nick flirting with his brother’s girlfriend, Kristin on the crow’s nest 🙂

Nick and Kristin OBX

Cheers from me and Kristin, beach hair, don’t care….

k and me obx

The vibe in the Outer Banks is calm, family oriented and chill on the beach.  You take in the ocean breeze and the sound of the waves hitting the sandy shores and feel the tension melt from your body.  Turn the knob to Bob, FM 93.7 radio and sip on a cool beverage, leaving your worries behind.  Nick feels very comfortable here.  We are extremely grateful for the opportunity to vacation here each year, at Ron and Ali’s beach home.  This year was not the same, without Ron, Ali, Sam and Anna.  We send our love and best wishes to the family and wish Ali a speedy recovery.  Cheers to making more memories with EVERYONE together, sharing laughs and lives at VA and OBX, next summer.

Beach Fixes Everything

It’s been a great summer for Nick and our family, along with extended family.  Vacations are great to unplug, relax and restore the body and soul.  We hope that you get a chance to enjoy a nice vacation.  What’s everyone doing this summer?

That’s what is in my noggin this week. 🙂 

~Teresa

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