Blog #84~ Resource Links Related to Down syndrome and Autism
Today is President’s Day, so there is no school. My ability to focus and write is hindered by interruptions from Nick who is making loud mooing noises, pushing the fan button on the microwave, dropping things behind the TV and watching “The Other Guys” while tapping a can of tennis balls against his mouth. Yes, that’s a slice of Down syndrome and autism here this morning………
So this week I’ve included my favorite resource links related to Down syndrome and autism:
Down syndrome links:
www.ndss.org The National Down Syndrome Society is the national advocate for the value, acceptance and inclusion of people with Down syndrome.
www.ndsccenter.org The country’s oldest national organization for people with Down syndrome, their families and the professionals who work with them.
www.nads.org NADS is the National Association for Down syndrome and a solid support group in the Chicago area. There is also more links for dual diagnosis of Down syndrome and autism here (including a complete list with signs and symptoms for parents wondering if their child has more than just Down syndrome).
www.gigiplayhouse.org Down syndrome Awareness Centers all over the Midwest and expanding to New York, NY and Mexico. These centers provide play, fitness and social groups.
www.noahsdad.com This site is invaluable for parents who have a baby or child with Down syndrome. There is some great information and useful tips and links and positively focused. It is one of my favorite websites.
www.futureofdowns.com Run by parents of children with Down’s syndrome. Covers a wide range of topics regarding babies and children with Down’s syndrome, pregnant and in need of advice on screening and tests or have just received a positive diagnosis following an amnio or CVS.
Autism Links:
www.facebook.com/autismdiscussionpage This page was developed by Bill Nason, MS, LLP to discuss tools that help children on the spectrum. This is one of my favorite links related to autism.
www.autismspeaks.org Autism Speaks provides information and advocacy and good general information and links.
www.autism-society.org The Autism Society improves the lives of all affected by autism through education, advocacy, services, research and support.
www.tacanow.org Talk About Curing Autism and has a ton of links and articles along with coffee groups.
www.brianraymondking.com Brian King teaches his proven methods to individuals and their parents across the country in a private one-on-one format using the latest technology. He writes a variety of articles, is an author, speaker and trainer for schools, parents and support groups.
www.bridges4kids.org Great resources for special needs families. One of my favorite go to sites.
www.myautismteam.com Parents share daily trials, triumphs, questions and recommendations
www.mayer-johnson.com Boardmaker software for assistive technology/AAC devices
www.teeach.com Information on TEEACH materials
www.pottytrainingsolutions.com Gathers the most common problems and their solutions to help take the stress out of this major milestone.
www.easterseals.com Easter Seals offers programs, training and equipment for families.
www.specialedadvocacy.org Advocacy site for parents and teachers
Down syndrome and autism links:
www.nickspecialneeds.com My site which provides information on topics specific to a dual diagnosis of Down syndrome and autism including supports, communication and speech/feeding issues, occupational therapy, behavior/ ABA and much more.
www.ds-asd-connection.org Offers good information related to a dual diagnosis of Down syndrome and autism.
www.theupsideofdowns.org Provides support, advocacy and information specific to Down syndrome and autism.
In addition, let me add that there are several Facebook groups directly related to Down syndrome and autism. These groups are a safe place to share information, ask questions, and share the crazy things that our kids with a dual diagnosis do. No one in these FB groups would bat an eye if you posted a picture like this……… (In fact they would hit the like button and add in their own pictures in)…….
There is help out there right at your finger tips. Let me know if you have any more to add in. Thank you for reading and sharing my blog. Now, it’s time to gather up the contents of my purse that Nick decided to dump all over the living room floor. That’s what is in my noggin this week! 🙂
~Teresa
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Down Syndrome with a Slice of Autism 