Update This Week
Nick had a checkup this morning. He cooperated for the most part. Although he wasn’t to thrilled about getting the TB test. This is in preparation for his transition to the adult day program that I have been writing about the past two weeks. My son Nick has Down syndrome and autism, and will be turning 22 very soon. As I sat there with him, I thought back on all the times we have been to the doctor. I am grateful that he has been in good health. It is truly a blessing.
That’s what is in my noggin this week 🙂
The face of unsure expectations…..
@Down Syndrome With A Slice Of Autism
Blog #133~Transition to Adult Day Program
As I mentioned last week, the countdown is on to the end of school for my son. Nick is 21 years old and has Down syndrome and autism. In just a few weeks he will celebrate his 22nd birthday and will age out of the school system. So what will Nick do when the little yellow bus stops coming to pick him up? Here’s a peek into his transition to the adult day program which started last week.
Nick is attending half days twice a week. Each morning starts in the gym. Here are some of the activities he will be doing:
Nick picked out an animal book for one of his choice activities….
Nick stole his teacher’s chair when she got up. Looks like he’s making himself at home. Now all he needs is a crown. 🙂
Here’s Nick’s reaction when his job coach asked if he liked his new school. A fist pump with a big yay! 🙂
Week one of the transition to the adult day program was a success. A special thank you to Jodi, his job coach for providing the pictures above! I’m so pleased that he is happy there and the activities keep him busy, productive and most of all, happy 🙂 There are a few more wrinkles to iron out, but progress is being made for this to be a success for Nick. That’s what is in my noggin this week.
@Down Syndrome With A Slice of Autism
#132~Countdown to the End of School
The clock is ticking, and rapidly might I add. Coming off the holidays, I’ve hit the ground running. You see in less than a month my son, Nick will be aging out of the school system. He is 21 years old and has Down syndrome and autism. The day before his 22nd birthday will be the final day that the little yellow bus stops coming to the door.
We’ve been preparing for this day for months. The post-secondary transition program he is attending (STEPS) has done an excellent job to map out a plan for this to be a seamless transition. Last Friday, Nick visited the new facility (an adult day program). His speech therapists took pictures and made a social story for Nick. A person with autism benefits from having a visual schedule. If they can see it, they can understand it. This helps with reducing anxiety levels. Here are a few of pictures from the social story:
Adult Day program site……
Nick in the gym….
Nick will have a recycling job, elbows to that!
Starting this week, Nick will be going to the new facility for half the day on Tuesday and Thursday. The next couple of weeks he will expand his time there.
The other piece of the puzzle is transportation. We have to insure that Nick can utilize the Ride DuPage successfully on his own. He will be doing some practice runs with his job coach. Then, if all goes well on his own with someone to meet him at curbside. We have requested a car to pick up rather than a bus. This is the piece of the puzzle that keeps me up at night. It’s uncharted territory that is giving me anxiety. Nick actually does well in the car as he likes to be on the go. Just make sure the window and door locks are set, he has some tappers to stim on and nothing to throw at the driver. I should pick up some Windex wipes so he can wipe the snot rockets off the window as well. 🙂
As the clock is ticking, I’m busy getting him to doctor and dentist appointments, arranging for a new talker device and case (his current AAC device has to be given back to STEPS) and working with insurance to hopefully get speech and occupational therapy set up in his new program. In addition, the waiver to which Nick receives funding thru the state will need to be switched from the child to the adult waiver (which will increase his funds to support the day program). The pressure is on, this needs to work, it has to work. Nick needs to be in a structured program. And this is an excellent one with a caring and qualified staff. And I need to keep teaching my fitness classes and have my own life (and sanity). Wish us luck, that’s what is in my “nervous” noggin this week.
@Down Syndrome With A Slice of Autism