Posted in Autism, Down syndrome

Christmas Break

OLYMPUS DIGITAL CAMERA

Thank you for reading and sharing Nick’s world this year.  Have a Merry Christmas and we wish you a Happy New Year!   Enjoy your holiday with  family and friends. 

I am taking a two week break from the blog, but there’s plenty of good stuff in the archives to dig thru and enjoy in the meantime.  You can also check out the Facebook page for more photos, links and video clips of big guy. We look forward to sharing more fire alarm updates, stories, and information about Nick, Down syndrome and autism. 

Cheers,

~Teresa

Posted in Uncategorized

Re-Blog~ #78 Christmas Past

Christmas tree 14

Re-Blog~ #78 Christmas Past

With the busy holiday season upon us, I opted to re-blog “Christmas Past”.  Here is a little photo album of Christmas past with my boys @https://nickspecialneeds.wordpress.com/2013/12/16/blog-78christmas-cheer/

Wishing you all the best and take time to make memories with your family. They do grow up fast.  That’s what is in my noggin this week.

~Teresa

 

Posted in Autism, Down syndrome

Blog #111~ Constant Child

 

Blog #111~ Constant Child

Last Saturday morning, Nick watched the same DVD over and over.  It was a continuous loop of Thomas the Tank Engine’s, “A Big Day for Thomas”.

Thomas the Train

Twenty years later I didn’t see myself listening to the dialog, and able to recite every line.  At this rate there will be no break between Nick watching Thomas and my grandchildren following suit.  I can see it now, Hank Jr. saying, Hey Uncle Nick want to watch Thomas the Tank Engine with me?”  I also didn’t imagine stumbling over plush toys that my son dropped from the second floor.

IMG_3879

I didn’t picture myself scrubbing red marker stains off his clothes at age twenty.

Note to school staff:  Markers + Nick = Skin and Clothes…….

IMG_3881

This got me thinking, having Nick is like caring for a constant child.  Nick is twenty years old and he has Down syndrome and autism.  He can’t stay at home by himself, and requires continuous supervision.  Don’t get me wrong, he has made strides doing much more independently (like unloading the dishwasher, putting away groceries, recycling, vacuuming, etc.).  And he does watch age appropriate movies and listens to grown up music on his iPod.

Nick tabor hills

But at the end of the day, I’m still wiping snot off the flat screen TV and microwave.  Out in public, he can never be more than arm’s length for fear he may take off running, or to pull a fire alarm.

30 Fire Alarm pulls since 3rd grade. Is there a bumper sticker for that?

firelite-pull-station

I’m not writing this to get sympathy.  I’m simply putting a lens on what the world looks like having a young adult with Down syndrome and autism.  It’s not the end of the world.  But it is a very different world, then I expected.  The stimming, banging, tapping, yelling, dumping, phone intercom and microwave button pushing is constant and mind numbing at times.  And you never know what he’s going to drop off the top of the stair case.  All I can do is continue working with him to foster independence.  I’ll keep redirecting his inappropriate attention seeking behaviors and have him clean up his messes.

I’ll take Stuart Little and Dora the Explorer over shaving cream any day……

photo (20)

I will remind myself that the laughter, silliness, sweet kisses and unconditional love of this constant child helps to offset the rest.

0805092203

That’s what is in my noggin this week.  Now back to operation red marker removal. 🙂

~Teresa

 

Posted in Autism, Down syndrome

Blog #110~Autism Holiday Survival Tips

Blog #110~Autism Holiday Survival Tips

The Christmas holidays can be a land mine for individuals who have autism.  The changes in schedules, crowds, noises and the lights can result in way too much external stimuli to process. My son, Nick is 20 years old and has Down syndrome and autism.  As I flip the calendar to December, I can feel my anxiety level begin to arise. We all handle holiday stress in different ways. The movie, Christmas Vacation conveys this so well.

“I don’t know what to say.  It’s Christmas and we’re all in misery”

Christmas vacation cig pic

Here are 10 tips for surviving the holidays with your child who has autism:

  1. Start early, get as much done ahead of time with holiday preparations.
  2. Don’t rush, allow enough time to get from point A to point B. Give more notice when it is time to transition. This will help to avoid meltdowns.
  3. Be flexible and relax your expectations over the holidays.
  4. Pare down where you can, whether it’s decorations, presents, or parties. It’s okay to say no or bow out early.
  5. When possible try to stick to routines. Sometimes it’s easier to hire a babysitter or respite worker to stay at home with your child while you go to holiday parties.
  6. Make social stories using visuals or written words (depending on your child’s level of comprehension). This will act as a script for your child to follow.  If they can see what’s expected, they will understand the plan and won’t be as anxious.

Task strip for a trip to the mall…..

IMG_3865

Task strip for airline travel……

IMG_3866

7. Provide pictures of family members and friends that you don’t see that often prior to visiting them. If your child doesn’t like to hug then try a special handshake, high five or Nick’s favorite….

Elbow Bump 🙂

elbows

8. Give your child opportunities to help out. Allow them to make choices between two things. This gives them more control during the holidays, (when we all feel a bit out of control at times).

Nick helps out with the luggage, which gives him heavy sensory work….

photo (108)

9. Find a quiet place for your child to unwind. Most of us know how to do this on our own (bubble bath, crack open a bottle of wine, exercise, etc.). But a child with autism can get overstimulated and not know how to decompress. They may need you to help them to settle down and relax.

10. Get rest when you can and take time to pause and reflect on the blessings of the season.

Christmas vacation reflection

I hope these survival tips will help your family and child with autism.  As you flip over the calendar to December today, take a deep breath.  Your child will be feeding off your cues, so……

Keep Calm Christmas

That’s what is in my noggin this week.

~Teresa 🙂

Christmas 2

Nick and his brother Hank in 1999