Resources: Books, Websites and Podcast Links

Books:

A New Course: A Mother’s Journey Navigating Down Syndrome and Autism, by Teresa Unnerstall Order a copy here: https://amzn.to/2W3Un6X

   

When Down Syndrome and Autism Intersect-A Guide to DS-ASD for Parents and Professionals, 2nd Edition by Margaret Froehlke R.N. and Robin Zaborek available on Amazon

When Down Syndrome and Autism Intersect-A Guide to DS-ASD for Parents and Professionals, by Margaret Froehlke R.N. and Robin Zaborek

A Parent’s Guide to Down Syndrome, Advice, Information and Support to Raising Your Child from Diagnosis to Adulthood by Jen Jacob and Marda Sikora. Order here: https://a.co/d/5CRwU6R

Special Education Savvy: A Mom’s Guide to Mindset and Effective Advocacy Throughout the IEP Journey, by Mary Beth Gilliland, M ED

Everything No One Tells You About Parenting a Disable Child: Your Guide to the Essential Systems, Services and Supports by Kelley Coleman available on Amazon

Supporting Positive Behavior in Children and Teens with Down Syndrome, Revised Edition, The Respond, Don’t React Method by Dr. David Stein, Psy.D. Order here: https://a.co/d/8rlEeJG

The Essential Guide for Families with Down Syndrome: Plan and Actions for Independence at Every Stage of Life by Steve Friedman order here: https://a.co/d/gMxuiU3

Down Syndrome Parenting 101: Must Have Advice for Making Your Life Easier by Natalie Hale order here: https://a.co/d/7LebF7H

Babies with Down Syndrome: A New Parent’s Guide, Edited by Susan J. Skallerup order here: https://a.co/d/bU6CyTv

Scoot Over and Make Some Room: Creating a Space Where Everyone Belongs by Heather Avis order here: https://a.co/d/3QMtl0w

Teaching Children with Down Syndrome about Their Bodies, Boundaries and Sexuality by Terri Couwenhoven, M.S. order here: https://a.co/d/gARb2kE

Fine Motor Skills for Children with Down Syndrome, A Guide for Parents and Professionals (third edition) by Maryanne Bruni, BScOT (Reg) order here: https://a.co/d/8au2far

Gross Motor Skills in Children with Down Syndrome: A Guide for Parents and Professionals by Patricia C. Winders, P.T. order here: https://a.co/d/9F4DUV4

Gifts: Mother’s Reflect on How Children with Down Syndrome Enriched Their Lives, Edited by Kathryn Lynard, order here: https://a.co/d/fJ4ZgAj

Gifts 2: How People with Down Syndrome Enrich the World, Edited by Kathryn Lynard Soper, order here: https://a.co/d/5ltSrSH

Mental Wellness in Adults with Down Syndrome: A Guide to Emotional and Behavioral Strengths and Challenges by Dennis McGuire, Ph.D. and Brian Chicoine, M.D. order here: https://a.co/d/cbOhBLC

Inclusion in Action: Practical Strategies to Modify Your Curriculum, by Nicole Eredics

Who’s The Slow Learner? A Chronicle of Inclusion and Exclusion by Sandra Assimotos McElwee

Speaking of Apraxia: A Parent’s Guide to Childhood Apraxia of Speech (Second Addition) by Leslie A. Lindsay, R.N., B.S.N

Different is a Great Thing to Be, by Heather Avis and Sarah Mensinga order: https://a.co/d/8YqDAUG

You Are Enough: A Book About Inclusion by Margaret O’Hair and inspired by Sophia Sanchez order: https://a.co/d/hRsKJAu

My Friend Has Down Syndrome by Jennifer Moore-Mallinos, order here: https://a.co/d/aSRCijS

Count Us In..Growing Up With Down Syndrome, by Jason Kingsley and Mitchell Levitz

Road Map to Holland… How I Found My Way Through My Son’s First Two Years With Down Syndrome by Jennifer Graf Groneberg.

A Parents Guide to Down syndrome…Towards a Brighter Future, by Siegfried M. Pueschel.

Better IEP’s by Barb Bateman

How Well Does Your IEP Measure Up by Diane Twachtman-Cullen and Jennifer Twachtman-Reilly.

Taking Care of Myself by Mary Wrobel

Social Rules for Kids..The Top 100 Social Rules Kids Need to Know to Succeed by Sue Diamond

The Sibling Slam Book-Edited by Don Meyer available through Woodbine House.

Special Education Laws by Wright and Wright

Speaking of Apraxia…A Parents’ Guide to Childhood Apraxia of Speech, by Leslie A. Lindsay (First Addition)

How To Be A Para Pro by Diane Twachtman-Cullen

1000 Great Ideas for Teaching and Raising Kids With An Autism Spectrum Disorder by Ellen Notbohm and Veronica Zysk

The Out of Sync Child Has Fun…Activities for Kids with Sensory Processing Disorder by Carol Kranowitz

101 Games and Activities for Children with Autism, Asperger’s and Sensory Processing Disorder by Tara Delaney

Starting Sensory Integration Therapy by Bonnie Arnwine

Red-Yellow-Green Framework for Respectful Discipline by Ada Alden

Firestarters How Innovators, Instigators, And Initiators Can Inspire You To Ignite Your Own Life by Rauol Davis Jr., Kathy Palokoff and Paul Eder

Websites and Links:

https://ds-asd-connection.org/who-we-are/ The Down Syndrome-Autism Connection provides support, training and information about co-occurring Down syndrome and autism (DS-ASD)

https://www.autismspeaks.org/down-syndrome-and-autism-spectrum-disorder-ds-asd Autism Speaks DS-ASD landing page with information on a dual diagnosis.

https://sites.google.com/view/charlies-clinic/development/autism Information and links about DS-ASD.

http://www.brittanysbasketsofhope Brittany’s Baskets of Hope is a non-profit organization that provides welcome baskets free of charge with resources and baby clothing/items to families with a new baby born with Down syndrome. Click on their website to request a basket or make a donation.

lfca@lilfriends.com Little Friends Center for Autism located in Naperville, IL. I can’t say enough about Little Friends they are rock stars. Comprehensive programs, trainings, support, and social groups.

http://www.catherine@catherinewhitcher.com Special needs advocacy, coaching via phone, text and email.

http://www.nads.org NADS is the National Association for Down Syndrome and a wonderful support group in the Chicago area.

http://www.upsfordowns.org Down Syndrome support group in Schaumburg, IL for families and children and adults with Down syndrome.

http://www.gigisplayhouse.org Down syndrome Awareness Centers all across the U.S. Provides play groups, fitness programs, signing and reading classes, workshops, parent support.

https://www.ndss.org National Down Syndrome Society.

 http://www.ndsccenter.org National Down Syndrome Congress

http://www.noahsdad.com This site is invaluable for parents who have a baby or child with Down syndrome. There is some great information and useful tips and links and it is very positively focused. https://hopestory.org Hope Story exists to give support, encouragement and hope to parents whose child have received a Down syndrome diagnosis; to provide free resources to the medical community to help them deliver a Down syndrome diagnosis, and to find ways for parents of children born with Down syndrome to use their unique story to bring hope to others.

http://www.specialsparkle.com A jewelry company that has some beautiful hand made jewelry pieces by Kelly Neville is a young lady who has Down syndrome and Nick’s former classmate.

http://www.downsdesigns.com Stylish clothing line designed to fit the unique body types for persons having Down syndrome. Easy to get on and off too.

http://www.autism-society.org

https://www.cprcertified.com/a-medical-guide-to-autism “A Medical Guide to Autism”

http://www.bridges4kids.org resources for special needs families. One of my favorite sites!
http://www.myautismteam.com Great site for parents to share daily trials, triumphs, questions and recommendations.

http://www.pottytrainingsolutions.com

http://www.handsonaswegrow.com Hands on activities (crafts, fine motor, etc..)

http://www.diveheart.org Offers scuba diving training for persons with disabilities.

http://www.HammerTravel.org Provides customized travel experiences for individuals with disabilities.

http://www.chicagoparent.com/resources Chicago Parent Magazine

http://www.colleran.com/caregivers-corner Resources for caregivers of special needs families, with a very comprehensive list of help for a variety of needs and disabilities.

http://www.easterseals.com Easter Seals offers programs, training and equipment for families

https://www.tuck.com/autism-spectrum-disorder-and-sleep/ Autism (ASD) and Sleep

https://www.verywellhealth.com/how-to-calm-a-child-with-autism-4177696 How to Calm a Child with Autism

https://www.wikilawn.com/blog/landscaping/create-safe-sensory-friendly-backyard-landscape-special-needs-child/Create a Sensory Safe Yard for Children with Special Needs

https://childmind.org/article/treating-sensory-processing-issues/Sensory Processing Treatments

https://www.justgreatlawyers.com/estate-planning-for-parents-of-children-with-autism Estate Planning for Parents of Kids with Autism

https://www.sensorysmarts.com/working_with_schools.htmlClassroom Classroom Accommodations for Kids with Sensory Issues

https://www.yourstoragefinder.com/moving-with-special-needs-kids Moving with Special Needs Kids Moving with Special Needs Kids

Podcasts:

https://www.theluckyfewpodcast.com

https://t21mom.com/category/podcast/

Podcast