Posted in Fun Side of Nick

Blog #42~Love, Nick Style

Blog #42~ Love, Nick Style

Last week over Valentine’s Day I got to thinking about the ways in which Nick shows love, affection and compassion.  How can a person having both Down syndrome and autism do so without being able to use many words?  I threw the question out there to those who are closest to him.  I found some interesting responses along with a few similar, underlying themes about love, Nick style.

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What a great show bordering on naughty for the 1970’s.  Anybody remember it? It was must see TV! 🙂

What is love?  According to Wikipedia, Love is an emotion of a strong affection and personal attachment.[1] Love is also said to be a virtue representing all of human kindness, compassion, and affection —”the unselfish loyal and benevolent concern for the good of another”.[2] Love may describe compassionate and affectionate actions towards other humans, one’s self or animals.[3]

The famous balcony scene from Romeo and Juliet. 1884 painting by Frank Bernard Dicksee. Courtesy of Wikipedia.….

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As Nick’s mom, I feel his love freely with the kisses he gives me.  They are cute little pecks on my cheek or sometimes on my shoulder.  He gives those to his Dad and brother and even the cat sometimes. I see it in his eyes that gleam when he is happy.  I sense it when he offers up his neck for me to blow him some raspberries.  I know it when I come home from a long evening out and the icon strip has my picture on it. I see this time again with the picture icons.  He will hand me one with his Dad, grandparents, aunts, uncles, brother, teachers and former respite workers like Jess and Mr. T.  I know he misses them and wants to see them.  The day after my father passed away, he handed me the picture of my Dad on a gloomy, snowy morning in October.  I held it and gave him a hug.  As I looked out the window fighting back tears the sun’s rays began to peek out behind the clouds.

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Al’s parents noticed this too.  Here is what Jim and Theresa U. had to say about how Nick shows love. One thing comes to mind that, I think, is pretty specific.  I think when he puts his “icon” on your shoulder or lap, or wherever, it shows that he has trust that you will listen to his request for whatever the icon shows.  I also think that the fact he even picks us out in a crowd indicates that he likes us and knows that we like him too and are willing to honor his request.  It is a way of getting our attention and showing affection. I think “high-fives” and hugs are a definite sign of affection.  Also, he loves to be “kissed” on the side of his neck, too!  It’s really not a kiss that he wants but he does come to you for some affection…..in his own way.”

Nick with Gma Theresa…..

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Nick’s teacher, Daina Hunt had some interesting insights from the school setting…

“I think Nick has many ways in which he shows his feelings of love, affection, and compassion.  Physically, he does a great job by sharing elbows, rubbing noses, high fives, etc. I think that Nick is very affectionate with adults with whom he has built strong relationships. I also feel like Nick’s sense of humor is something that he shares with those he is close to.   

I’ve also seen Nick have a “crush” on another student this year.  He often picks her when he has to take turns and often watches to see what is going on with her when we are in the classroom.  When she becomes upset, Nick will quickly look to her and raise his voice in protest too.  Now, I understand that Nick is not a fan of noise made by others, but his reaction to this student is unique.   

I’ve seen Nick’s compassion extend even farther to others.  He is good at mimicking others emotions, and pointing out emotions (think about the sad egg t-shirt). He also has a genuine side of compassion.  I have had staff tell me that Nick has cried after watching others cry. 

From my own personal experience, I can say nothing is better than when Nick asks for a raspberry, nose, or elbow.  The raspberries and noses may not be totally age appropriate, but it rocks to know he cares enough to share one with me.” 🙂 

The infamous “egg shirt”…….poor egg is so sad… 😦

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Yes, Nick does like to bond with those he loves by offering his neck up to get some raspberries.  Aunt Ali had this to say, “We know how Nick and I bond with our hellos full of raspberries!!!  He enjoys receiving as many as I can give!  His tender hand touch is always there to say “hi” when we are together and hanging out.”   My friend KB agrees,I just wanted to lip blow in his neck.  It makes me laugh as much as he laughs. He loves that kind of affectionate connection! I can say his love is also expressed when saw Sadie or the cats.. Even when you brought him to Petsmart adoption center!”

His aide and respite worker Lara have a special bond,Nick will sometimes lay his head on my shoulder and then look up at me with a smile and a twinkle in his eyes.” 

Sometimes it’s a touch on the cheek like with Grandma Babs, or rubbing elbows or noses.  My brother and his daughter Courtney think the *Eskimo kisses are awesome!

 Nick with his cousin Courtney…….A new take on kissing cousins 🙂

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Here with his Dad as he says, “nose!”

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My sister, Aunt Laura has a unique bond that neither time or distance separates.  “Nick gives me special things like the “eyes” or Nick might decide that he wants to touch my nose or he will touch elbows with me then if he is in a really loving mood he will give me a very special belly flash.”

Oh yes, the belly flashes.  I don’t even know how that started but it did years ago when he was around 3 or 4 years old. There are only a select few that are in what we called “The Belly Flash Club.”  My friend Sally is an elite member and recalls it as a sure sign of approval and affection.  While cute then, we eventually had to try and wean him off that practice so he wouldn’t come off as a pervert.   Well, that was until recently. Here is what Brian his speech therapist had to say, I’m not sure if you were going to include in your blog Nick’s affinity for flashing his abs as a show of affection. Of course I don’t belong to this exclusive club, but the only two female grad students he has ever worked with are!” 

Let me add that these two grad students are young and very attractive. 🙂

So, that is love, Nick style.  Hope you enjoyed the unique perspectives.  For more about Nick and his special relationships check out Blog #6~ The Nick Connection which is located in the May archives.  That’s what is in my noggin this week.  Until next Monday, peace, love and belly flashes!

~Teresa

*Eskimo Kiss- According to Wikipedia…..

“In modern Western culture, an eskimo kiss is the act of pressing the tip of one’s nose against another’s. It is loosely based on a traditional Inuit greeting called a kunik.[1]

A kunik is a form of expressing affection, usually between family members and loved ones, that involves pressing the nose and upper lip against the skin (commonly the cheeks or forehead) and breathing in, causing the loved one’s skin or hair to be suctioned against the nose and upper lip.[2] A common misconception is that the practice arose so that Inuit could kiss without their mouths freezing together. In fact, it is a non-erotic form of greeting that serves as an intimate way of greeting one another for people who, when they meet, often have little except their nose and eyes exposed.”

Posted in Fun Side of Nick

Blog #40~Say It’s Your Birthday

Blog#40~Say it’s your birthday…

“You say it’s your birthday
It’s my birthday too–yeah
They say it’s your birthday
We’re gonna have a good time
I’m glad it’s your birthday
Happy birthday to you.”

Beatles birthday

It’s a silly thing we do…… singing this Beatles tune when calling certain people on their birthdays.  Speaking of which, this week two of the Unnerstall men have theirs.  Al is hitting the big one on Wednesday.  That’s right the big 5-0. 🙂  On the exact day that you turn 50, the AARP card application magically shows up in the mailbox. I proceeded to tear it up and to this day still toss them in the trash. But Al plans to embrace it fully to the extent that will make them go bankrupt.  On the evening of Feburary 6, 1994 I went into labor a week earlier than my due date.  I honestly thought I might have the baby on Al’s birthday.  But like his brother, Nick took his time and so he was born the following day. He was 6 pounds, 14 oz. and was 19 inches long. I gained exactly 19 pounds with this pregnancy.  Nick will be 19 years old on Thursday. 🙂

Here is a look at some of Nick’s birthday celebrations.  What a journey it has been.  Nick’s first birthday was celebrated with my side of the family and with my friend, Sally’s family.  Nick has very low muscle tone and you can see that my mom had to hold him with support over the cake as he blew out the candles.  At this point he was sitting up but far from being able to crawl very far much less pull up to stand.

A single candle on the homemade chocolate cake.  Hank is close by on the right.  Oh, my bangs are hideous…

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It wasn’t until Nick was 3 ½ until he was able to walk on his own. Here he is at the Arbor School in Houston celebrating his fourth birthday.

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We relocated to the East Bay area outside of San Francisco. Many of the celebrations were simple. This is a sad little cake. It’s pathetic as Hank would say. I am ashamed I made that.

Hank holding his brother’s hands so he won’t flap them by his ears…..

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So much for that 🙂

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He is sooooooooo excited! He is going to town stimming those hands by his ears. Looking back I see it; a trait of autism.

This is more like it. A homemade yellow cake with chocolate frosting that Hank and I made.  In case you were wondering I don’t have any formal cake decorating training, shocker right 🙂

Nick turns 6!

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Here’s Al at age 6, sporting a short cut like Nick…..all together, aahhhh he’s so cute…..

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We moved to the Midwest and Nick celebrated his 7th birthday in style with a legit cake and the party theme was Thomas the Tank Engine.

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At school for his 8th birthday, Nick got a special lunch with a Happy Meal. Looks like it is working….what a happy guy!

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The following year the birthday boys celebrated together with Al’s folks Jim and Theresa on Super Bowl Sunday. Best part of the day was the opening kickoff that Devin Hester ran back for a touchdown.
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Unfortunately, Da Bears came up short. But it looks like the birthday boys got some nice presents.  Nick is really growing and rocking that Brian Urlacher jersey!

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Nick’s got to get more lung power for his 17th, whew…..

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Big breath now you have 18 candles to blow out..Big guy’s got this!

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I hope you enjoyed this little taste of the boy’s birthday celebrations.  Common theme seems to be chocolate cake in all shapes and sizes. What a contrast from the low tone baby 19 years ago to present day.  My good friend April G. always says, “Funny thing if you feed and give them drink, they will grow.” Nick has done that in his own way and pace.  Not always in the time frame I had invisioned for him. But he did, and I couldn’t be more proud. That’s what is in my noggin this week.  Happy birthday boys and cheers to many more.🙂  Have a great week everyone and may your cake be full of candles this year and for many more to come!

~Teresa

Posted in Autism, Down syndrome, Fun Side of Nick

Blog #39~Hardy har har Nick

Blog # 39~Hardy har har Nick

I spent a lot of time just observing Nick this weekend. The frigid temperatures begged us to stay hunkered down at home layered up in sweats and bulky sweaters. I thought a lot about what I have already written since I started the blog last March. One thing about Nick that stands out is that he is a funny guy (even when he is being a pain in the butt.) As soon as I sat down to the computer, he came over and carefully balanced this on my thigh. Then he ran away laughing. 🙂

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Harold the Helicopter is using my thigh as a landing strip.

He loves playing jokes on us. There is a signature sound he makes, it’s a stimmy sound like his is saying “geeeeeehhh,” while he flaps his hands by his ears. I stop, look and listen to see what he has been up to. Oh hardy har har, he turned on the faucets in the bathroom full blast and ran out quickly. Sometimes while showering, he will turn the lights off on you too. Now that’s funny stuff. 🙂 After his shower last night, I saw him out of the corner of my eye putting something underneath the covers on my side of the bed. He pulled the covers up quickly and took off all excited. Underneath here is what I found.

Sneaking Mr. Platypus under the comforter……….

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Then a little while later…….. He’s on a roll….

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He also likes to mess with our cat. I am not so sure that Miss Mellie appreciates the *propinquity of Nick’s stuffed animals on top of her…….

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Poor kitty, I don’t think she wants to be a velcro icon strip.

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There are a lot more pictures in Blog#33~Stuff on my Cat located in the December archives!
I admire his cheerful spirit. He wakes up each morning with a big smile and first thing he does is let out a big fart while gleaming proudly might I add. What a great wakeup call. 🙂 In the same sophomoric vein, that boy can rip out the loudest and longest burps all from just a mini eight once can of Sprite. If you want to get a better sense of Nick’s funny side you’ve got to read Blog #6~The Nick Connection (in the May archives) and Blog #14~PB Unnerstall (June archives.)
Yesterday morning I watched him cheerily dancing side to side with his headphones on. He was in the zone. As a mother there is nothing better than seeing your child happy and hearing them laugh. Well wait a minute…. maybe when they sleeping like angels. Now that supersedes everything else. 🙂

Oh yes the sound of silence, zzzzzzzzzzzzzzzzzzzzzzz…..

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Looks like the cat isn’t holding any grudges.

Here are a few other examples of his sense of humor. He thinks it’s funny when he bangs or bonks himself accidentally. Anytime he drops something or someone else does he busts out laughing. He enjoys watching You Tube videos of funny cats, epic fails like the ones you see on the show America’s Funniest Videos, and people sneezing. Many of his favorite movies are comedies. Eddie Murphy is his favorite (Dr. Doolittle series, Norbit, The Nutty Professor) along with Mrs. Doubtfire and Little Man.

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My funny guy, that’s what is in my noggin this week.

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I think humor is what has kept us afloat all these years.

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Have a great week, and keep that sense of humor with you!
~Teresa

*According to Ask.com, the word propinquity means a close kinship or similarity. It can also mean being close to someone or something, either physically or similar in nature.

Posted in Autism, Down syndrome, Fun Side of Nick

Blog #33~ Stuff on my Cat

Blog #33~ Stuff on my Cat

December is such a crazy, busy month so I am going to keep the posts light and quick.  I have yet to talk about one important member of the family.  That is Miss Mellie, our 16 year grey tabby.  She has a rough life following the sun coming into the house and basking in the glow……

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When she’s not soaking up the rays she is usually on somebody’s lap.  Here she is not quite a year old with Hank, age 4……

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When the boys were toddlers I had an orange tabby named Woody who lived to the ripe old age of 17.  Woody didn’t have much to do with the boys. Note Nick again leaning on his brother.  You can see his low muscle tone which is a characteristic of Down syndrome…

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My sister, Laura pointed out a great website called “Stuff on my Cat” a few years back.  This site is a hoot, check it out at www.stuffonmycat.com.

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For as long as I can remember we have been putting random things on our cats.  By the way cat lovers, they also have a book and calendar too. We’ve had a lot of fun with this.  So have Hank and Nick!

Hank put a toy cowboy hat on top of Miss Mellie. Howdy partner…… 🙂

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Then he put a Superman cape on my sister’s cat, Paco……It’s a bird, it’s a plane, no its Super Cat!

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Nick has followed suit with putting stuff on our cat… not always to Miss Mellie’s liking.  He likes to give her love pats and he thinks it’s hilarious to sneeze on her too.  Nick has Down syndrome and autism.

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Poor Mellie has fallen victim to some of Nick’s dumping (Blog #3 Getting your Goat has the complete list of dumps!)  Let’s see…. baby powder, fajita seasoning, PEC icons, then splat…. Head and Shoulders shampoo….

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Nick thought that was so cool he gave himself a couple of dollops…… 🙂

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Here kitty, hope you enjoy one of my stim toys…..

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Who needs a Velcro strip, Nick just uses the cat…..

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If there are no other laps available she will get desperate and settle for Nick.

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Mellie is pretty lazy but there are two things she will jump up for.  The sound of the can opener sends her sprinting to the kitchen.  “Oh yes it must be tuna!”

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The other is the dryer door closing.  That means warm laundry and maybe a dryer sheet on her head………

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Meow to the Easter Kitty…..

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Mellie stoned on Christmas cat nip…..

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She seems to be doing well despite the stuff we put on her.  That’s what is in my noggin this week.  Until next Monday may you take time during the holiday hustle and bustle to enjoy what makes you happy like a good cozy lap!

~Teresa

Meow….. 🙂

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Posted in Fun Side of Nick

Blog #31~ Then and Now

Blog #31~ Then and Now

I am not sure how this blog is going to come off this week. I am surrounded by loud banging while the workers are replacing the siding on our house. Unlike Saturday when it felt like they were going to come straight through the roof this is more like a piercing in the walls coming at me from all three sides.  Add the sound of scraping metal like finger nails on a chalkboard….You get the picture now, right? It’s like Nick stimming and banging times a trillion.  I should take an Advil now before the pounding goes to my head.  So here we go……..

It was during Thanksgiving week in 2001 when we made our way across the country on our move from the San Francisco Bay area to Chicago.  I am a native Texas gal.  Right from the *get-go I noticed a few different things and that there would be a learning curve to living in the Midwest.  Before I roll up my sleeves on this piece I think I will retreat to the basement, which bring me to my first observation.  There are no basements where I grew up in Texas. It’s nice to have the extra space for the kids to stretch out and play when the weather gets too cold outside. Speaking of cold, the first day I went out to get groceries it must have been 45 or 50 degrees.  In route to Meijer, I was shocked to see the mail carrier wearing shorts.  Once I got to the store I bought a pair of gloves and put them on right away. A few weeks later, we were at the mall.  I remember asking my Mother in law, Theresa why there were red stakes on top of the fire hydrants.  She explained that is so the firefighters could locate the hydrants when the snow gets high.  After I picked up my jaw off the floor I had to wrap myself around the fact that I was going to have to learn to drive in the snow.  It was not going to be easy as I had a Ford Explorer with rear wheel drive (I bought the car in Texas, no front or four wheel drive required.)  The trick is to pull out slowly and let the wheels grip otherwise the wheels just keep spinning around.

It was like driving Fred Flintstone style…….

Here’s another tidbit, I learned…. If you squirt the windshield wipers under 20 degrees without the proper fluid with de-icer your windshield immediately becomes an ice rink and you will have to stick your head out the side window to see where you are going.   In addition, you don’t want to leave liquids open in your car otherwise the insides of the windows will be covered with ice condensation. Out in the community I noticed little things like how all the restaurants have coat hooks by each booth. My favorite is when you leave the grocery store a strong blast of warm air shoots from the vents just before you are thrust out into the cold.  Around the neighborhood some things I noted where that many of the houses aren’t fenced in and the backyards just blend from one to the other.  A large majority of the driveways are black asphalt rather than cement.

Nearly every mailbox has a wood house build around it like this….. Except ours 🙂  Do the mailboxes really need their own little house?

Around four thirty p.m. when the skies darken you will hear the sound of the geese flying overhead.  Sometimes a random family of Mallard ducks will come through the yard and there are always lots of bunny rabbits.  The rabbits were cute until they began to eat my new flowers I planted in the spring. Those are my observations since moving to the Midwest.  Well, I have yet to bring in Nick in the picture…..So let’s get to it……… 🙂

Many things have changed during our time here.  Now, I have a car with 4 wheel drive and heated seats….. toasty and a worthwhile investment! 🙂 The kitchen has undergone a remodel and the boys have gotten much bigger.

Nick then…..At age 8, with blue bottle in hand……..(See Blog #3 “Happiness Is” for more about that.)

Nick now, age 18……

Hank then, age 10…..Oh and Miss Mellie age 7……

Hank now, age 20 and Mellie, age 17…..

Nick has always loved music, here he is then….. Yes that’s a Walkman….. 🙂

And now….My how technology has changed over 10 years….

His taste in music and movies has evolved; well I guess you could say it has. At least it  progressed out of Barney and Thomas the Tank Engine songs and movies to The Nutty Professor and Mrs. Doubtfire. His ipod playlist is legit now thanks to his brother, Hank.

One more of Nick then………

And now…..Nick grew along with the trees and shrubs……

It has been a great 10+ years seeing the boys grow up in the Midwest. 45-50 degrees seems mild to me now. I can now drive decently through the snow and we added a third car. Don’t worry it’s not for Nick 🙂

That’s what is in my noggin this week. Until next Monday remember that time has a way of flying by.  Be sure and enjoy the ride!

~Teresa

*In terms of its origin, the phrase “from the get-go” relates to similar uses of these words in other phrases like “get going.”

Posted in Autism, Down syndrome, Fun Side of Nick

Blog #28~ Halloween Costumes and a Special Needs Child

Blog #28~ Halloween Costumes and a Special Needs Child

I wanted to lighten things up this week and show some of the fun Halloween costumes the boys have worn over the years.  I love dressing up for Halloween. You can show your alter ego and reinvent yourself.   It has been a blast creating looks and finding unique costumes for the boys.  Having a child with special needs which include sensory issues can make it challenging.  My son, Nick has Down syndrome and autism. He doesn’t tolerate masks, barely wears hats and gloves much less the extra accessories.  Needless to say, he has never dressed up as a pirate.  Here’s a look at some of the Halloween costumes the boys have worn.

1994~ Nick’s first Halloween.  He’s 8 months old. Grandma Theresa had these made for the boys.  Look at my cute lil pumpkins…… 🙂

The following year we went with the cowboy theme.  Hank and Nick like me, are native Texans.  Yee ha boys…….

I am not the only one who likes to dress up.  So does my brother Tom, who decided to go as a baby in the picture below.  I am pretty sure that’s not milk in his bottle. They took the wagon for  Nick (who wasn’t walking yet) and most likely for that cooler by my brother’s feet.  Also in the picture is Hank went as a pirate…Arrrrrrrrrrrrrrr.  The little dinosaur is my nephew, Austin.  🙂

 

The next few years we lived in Livermore, California. Hank looks menacing while Nick made a sweet, little M&M.   Wonder how long those gloves stayed on Nick?  Answer:  Long enough for me to take the picture!

Nick got such a kick out of his brother’s mask.  Hank was in the scary costume period like most boys go thru.  Al is sporting his old Mardi Gras wig….

Here’s a close up of Nick.  “I’ve cast a spell on you!”

Halloween 2000 in Livermore, Hank with his Dad…….

And Nick made an awfully cute Sponge Bob (minus the gloves)

Halloween 2001, we had moved to Chicago where you have to bundle up for Halloween.  Hank was so excited to be the creepy clown and scare his friend next door. Does anyone else have a creepy clown phobia?  What I found for Nick with having Down syndrome and autism was the necessity to keep the costumes simple.  There are many costumes that just slip over his head in one piece and without covering the face. These seemed to work the best for him.

Pizza anyone?

I had many neighbors tell me that they looked forward to seeing what the boys were going to be for Halloween.  Hank in particular allowed me to get more creative during his early teen years.

Hippy Hank looking groovy with his friend Bobby…..

Nick was a referee.  Guess how long the hat stayed on?  Answer: Long enough to take the picture 🙂

This could be one of my favorites, nerdy Hank.  We had a lot of fun putting this look together.  By the way those glasses were his Dad’s (the Clark Griswold look from the late 80’s) I’ve always saved all kinds of things like this  over the years to enhance Halloween costumes.  By Hank’s side is Seargent Nick ready to report to duty…..

Hank went a totally different direction the following year…………..

This costume seemed to suit Nick who loves the farting humor, 2009……

Halloween 2010, It’s Super Nick!

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Nick is pumped up for Halloween this year….. 

Guess how long the dew rag stayed on his head?  Answer:  Do you even have to ask? 🙂

It’s been fun pulling out the photo albums and taking a trip down memory lane.  The boys are all grown, but they both still dress up for dances and parties at school.  You can get pretty creative finding costumes for a child who has special needs and sensory issues.   That’s what is in my noggin this week. Until next Monday, enjoy your Halloween under the full moon and watch out for those creepy clowns!

~Teresa

Posted in Behavior/ ABA, Fun Side of Nick

Blog #25~ About those 25 fire alarm pulls….

Blog #25~ About those 25 fire alarm pulls……

It seemed fitting for Blog #25 that I expand on the 25 fire alarm pulls that Nick has craftily gotten a hold of since third grade.  I touched upon this a bit in Blog #10~Nano second which chronicled a week of Nick’s charades of wreaking havoc.  Most of the pulls have occurred in the school setting.  While it clearly states in his IEP to both cover and carefully monitor Nick around all fire alarms this still hasn’t stopped him. By the way, just because an alarm is covered doesn’t mean he won’t try and lift it up.  But at least the cover will buy you a few extra seconds. Most of the questions I get have been these…. Why is he so drawn to them?  How can he be so fast? And finally…How does the fire department and staff react once he pulls one?

If you have read any of my other posts it is clear that Nick likes to grab you attention by doing all kinds of things like pushing buttons, dumping out all sorts of things, burping, farting you name it he does it.  The Holy Grail is always going to be the fire alarm.  I mean think about it.  That is a big payoff.  There is a scurry of people exiting the building and the fire trucks come with lights flashing and sirens blaring.  How cool is that? 🙂

The last alarm he pulled was exactly a year ago.  Interesting how he can smell fresh blood and that is when he makes his attack.  Anyone new just starting to work with him will most likely go down.  I spoke to the new school aid that had fallen victim to #25 when I dropped Nick off at the Halloween dance last year. He was still beating himself up felt mortified…….Poor guy.

One of my friends sent this message after the Nano Second blog post #10.Having been the victim of Nick’s nanosecond skills, I can offer one morsel. He achieves his speed by help of his poker face while plotting (don’t often think of Nick’ mind racing but I believe it does) and sometimes in steps. I saw him try to 2-step me with your hat. First a small move inching the hat 2 feet closer to him on the table, with those innocent eyes.  Then he swooped in ready for the 25 footer Frisbee toss.”

He is fast!  The last time he got me was three years ago at Dominick’s.  (Just so you know he has only got me twice. Al has yet to get caught but he was almost burned by Nick in a very packed Houston-IAH Airport the day after Christmas. The alarms are painted silver, whut?  Nick grazed it but his Dad was able to swipe his hand away.)  So, back to Dominick’s…..

In my defense it wasn’t the usual one I shopped at plus I was wearing one of those bulky  therapy boots on my right foot which had suffered a plantar fasciitis tear.  Minutes before this happened Nick was carefully taking the items out of the grocery cart and placing them on the conveyer belt.  The cashier smiled and gave a compliment on what a good helper he was.  I always have Nick push the cart so he is occupied while in the store.  That’s when it happened.  Suddenly, he stopped, released his hands and made a beeline to one.  I hobbled behind him and made a last ditch leap stretching my arm like a defensive back trying to block a touchdown pass.   “Nooooo Nick!”  But it was too late.  His fingers clutched the switch just as my hand touched his wrist.  What followed were flashes of lights and an earsplitting sound that could break glass.  All of the patrons stopped and cover their ears.  I glanced over at the courtesy booth and saw the store manager throw his hands in the air and shake his head.   All I could do was shrug my shoulders and mouth one word “sorry” as I pointed down at the offender.  Nick was frozen in a trance like state; his eyes as big as saucers.  While he stood motionless; his whole body was trembling.

I knew I had to get him out of there fast as the excitement was fueling him like a crack head junkie.  The rain was falling on that cool autumn afternoon as we made our way to the car.  I got him belted in, put the grocery bags in the back and waited for the fire truck.  You see, even if it is a false alarm the firemen still have to come and investigate.  As Aurora’s finest came blazing in, I limped across the parking lot, drenched from the rain to make my apologies.  I saw two firefighters entered the store no doubt to deal with the scene.  Sheepishly I spoke to the other two who waited in the truck. I explained that Nick had Down syndrome and autism and a passion for pulling alarms. They didn’t say a whole lot but seemed to understand.

Over the years I have asked various fire fighters about someone like Nick who gets a charge out of pulling alarms.  Most of them hardly blink an eye. Last weekend while Nick was helping with a fundraiser for the Peer Buddies program a few of Aurora’s Fire Fighters stopped to give a donation.

As they put money in the tin can I commented, “Hey Nick really likes your fire truck he has been eyeing it since we got here. Oh and he really likes fire alarms too, all 25 of them that he has pulled since third grade.”  One of the guys busted out in laughter and gave Nick a high five!  A few minutes later, they drove their truck right by us with sounding the horn, sirens and lights.  Nick was in heaven! 🙂

I have to give a shout out to these guys and share a few pictures 🙂

Nick helping out with the siren testing at the Duck, NC Fire Department…….

“Wow this is awesome”

Nick collection of tee shirts…..

Thanks to my friend Veleen for sending Nick this one…..

So, here’s to the brave and kind *fire fighters! That’s what is in my noggin this week. Until next Monday why don’t you take a look around at all the alarms in the community?  I bet you’ll see how accessible they are and think….Gosh Nick could get that easily…..and smile. 

~Teresa

* “If Prometheus was worthy of the wrath of heaven for kindling the first fire upon earth, how ought all the gods to honor the men who make it their professional business to put it out?”   ~ John Godfrey Saxe

 

Posted in Autism, Fun Side of Nick

Blog #16~ Up, Up and Away!

Blog #16~ Up, Up and Away!

A question I often get is, “How does Nick do traveling and on airplanes?” I mean he has Down syndrome and autism, really can you do that?  Short answer, he does really well.  But that has been crafted over many years.

It wasn’t always so easy.  An overseas flight from San Francisco to London with Nick (then a five year old) and not yet toilet trained was daunting.  Prep for such an endeavor started with a bland diet twenty-four hours before take-off.  Follow that up with a dose of Imodium AD to act as a cork, much like the bears that go into hibernation with their butt plugs in place.  While this takes care of #2’s, the issue of #1 had to be addressed.  We padded Nick down with 5 pairs of Pull-ups and as the flight progressed, I would take him to the bathroom and like an onion skin, peel the soaked ones off him.  Naturally the backpack contained dry pants just in case, tricky but it can be done.  It also helped that we flew Virgin Airlines. Richard Branson does know how to fly his customers in style.  Cheers to the free cocktails, and private movie screens at every passenger’s seat!

 We give a thumbs up to Richard Branson….

The iconic Tower Bridge in London……..

Last weekend, we took off for the Overbey Family Reunion held in Oregon. Here is a glimpse of an experience traveling with Nick. I love all the great people watching, don’t you?   Yes we make fun of people and give them nicknames.  First stop through security where the perfect gag me, VIP” family cuts to the front of the line with their noses up in the air. (Insert my eye roll, gag me, whatever here “Oh you are first class and we are steerage.”) My older son rattles out, “I’m pretty sure their shit doesn’t stink.” No kidding Hank.

Nick compliantly takes his shoes off and sets them in the plastic bin. We sandwich him between myself and Hank who acts as catcher after his bro walks through the metal detector (yes, we play the special needs card so we can bypass the body scanner.)  On the other end while putting on our shoes Al points out a man sitting next to us in a green golf shirt who has a dollop of white shaving cream on his ear about the size of a dime.  I try to keep a straight face but it’s hard when I glance at Hank who has raises that smile of his trying his best to suppress a laugh.

Now the counting begins.  It’s 6:30 a.m. so the tally is sluggish.  There are usually two looks we get when people take notice of Nick.  We have named them “Curious Stares” and “Sympathetic Smiles.”  By the time we get ready to board the count is:

 Curious Stares=5

 Sympathetic Smiles=7

We proceed down the jet way scanning for any red buttons that Nick might lunge across us to push.  Speaking of buttons, there is one final count we keep is “Call Button” pushes.  Nick takes the window seat and I am next to them and there will be none on my watch.  The flight is packed to the gills.  I look over at Hank and point out a dude that looks just like Rob Zombie.  I look at him and say, “Two Lane Blacktop” (a Rob Zombie song) and he gives me the head nod.

Besides giving nicknames, we also have “code words” for the people we observe.  I’m not sure I should divulge these but I will offer up a few.  The first one is “TTH” which means “Trying Too Hard.”  You know those people dress over the top or way too young for their age. They scream look at me for attention.

Then there is “HM” which stands for “High Maintenance.”  Sure enough as the flight attendants are reminding everyone that it is a full flight and only put larger pieces in the overhead bins I look up at an young Asian lady who is cramming a tiny draw string “Cats” mini backpack along with another satchel and yet a third; Chicago’s infamous Garretts Popcorn.  She is completely oblivious to the passengers who need to get around her to take their seats. Total HM!

Nick loves the part when we take off.  He gets jazzed up in his seat as his arms open airplane style swaying his body back and forth with a big smile. By the way call button pushes=0.  (Last year while sitting next to Al, who kept dozing off he hit it 5 times and had the cabin crew and people around us laughing.) Besides a handful of guttural burps, wiping a booger on my shirt and incessantly uncrossing my arms that I wanted to fold across my body, he did great.  He was much quieter than “HM” who just had to retrieve her Garrett’s Popcorn out of the overhead bin and eat it loudly opening the brown paper bag and folding it back up over and over again.

Wheels down, Portland, Oregon= Columbia wear…. Snapshot in the airport:  Hippie and granola looking peeps wearing straw hats, hiking boots and brown socks with guitars and pup tents strapped to their back like sherpa’s. It is a broad brush of odd balls who were walking around aimlessly and headed out west to the end point where the rocks meet the Pacific Ocean. Just like the Lewis and Clark’s expedition which ended at Seaside they settled here, a final destination. I found this area and the people fascinating.

View off Highway 101….

Famous landmark, Haystack Rock with Hank….

By the way, for those of you keeping score at home, the final tally upon retrieving luggage and making our way to rental car area:

Curious Stares= 15

Sympathetic Smiles=17

Nick helping with luggage at baggage claim….

These looks barely faze me.  Eighteen years have hardened my shell. People will stare and act accordingly.  Bottom line, I feel solid in the fact that we have always included Nick in our travels here and abroad. It is not easy but it can be done. We made it thru another crazy mix of curious stares, sympathetic smiles and had a great experience with Nick hanging in there. 🙂

That is what’s in my noggin, sometimes the journey over can be one of the most memorable parts of a vacation. Robert Louis Stevenson said it best, “For my part, I travel not to go anywhere, but to go. I travel for travel’s sake. The great affair is to move.” Until next week remember there is great beauty out in the world, get out and explore.

~Teresa

Lewis and Clark…….

Posted in Autism, Down syndrome, Fun Side of Nick

Blog #15~ Super Nick!

Blog #15~ Super Nick

“Eeeww” he says as he points down to the bathtub.

I scan the tub surface wondering what Nick is trying to communicate.  Then I see a tiny bug writhing around.  Where these bugs come from I don’t know, (maybe from inside the pipes?) I only see the creepy critters in the tub. What’s with that?  Of course I couldn’t resist turning on the faucet and torturing the defenseless thing watching it fight the swift current that led to the drain.

A few months ago I was shoring up the kitchen and again, Nick pointed at the wall next to the sliding glass window and saying “Eeeww!” There was a trail of tiny ants marching down the side of the crown molding barely seen.   I find it interesting how Nick notices everything, especially the smallest of details.  It’s near x-ray vision like Superman. 

He can scan a room and see something out of place then fix it. The last time the cleaning people came through, the kitchen table was turned at a rakish angle. (Is it just me or does anyone else have a cleaning crew that takes creative license? They are always changing the configuration of furniture or picture frames and knick knacks?) Sure enough as soon as he walked in the door Nick dropped his backpack and pushed it back to its rightful place. Just today, a birthday card fell over and he put it back up.

Later, he pointed up to the ceiling in the kitchen saying “Uh-oh!”  I look around to figure out what he is talking about and *lo and behold, one of the light bulbs burned out. Later, he saw a La Croix can in the kitchen garbage and he retrieved it and placed it in the recycle bin.   Silly things I know, but I appreciate his attention to detail.

A few weeks ago in Blog # 5 Ready, Set, Action, I mentioned how well he has been doing with unloading the dishwasher.  He knows exactly what every cabinet holds down to the last cup, bowl, plate, pan and knife and fork.  I wonder if he has been sitting at the kitchen island taking mental notes all these years while Hank was doing the unload.  The same thing goes happens with the groceries.  He loves to help put everything away and with precision might I add.

Now I wouldn’t say he is a savant by any means. He doesn’t know every single movie that won an Oscar nor what year it was or who had the starring role (like one of Hank’s high school acquaintances that has autism.) He never did obsess with lining up objects in a row.  He just seems to have a keen eye that rather fascinates me.

For as long as I can remember, object permanence has been one of Nick’s strengths.  “Object permanence is a developmental milestone that a child reaches when he or she realizes that the object exists even when it can’t be seen. The term was coined by child development expert and psychologist Jean Piaget. He studied the concept of object permanence by conducting relatively simple tests on infants. He would show an infant or young baby a toy and then cover it with a blanket. A child who had a clear concept of object permanence might reach for the toy or try to grab the blanket off the toy. A child who had not yet developed object permanence might appear distressed that the toy had disappeared.”

Let me give you an example.  When Nick was around age three we would go down to my parent’s house to visit.  Every single time, Nick made a beeline to the front bedroom, opened the toy box and pulled out his favorite, the duck musical toy.   He did the same thing at my in-laws house heading straight to the bedroom that has the stash of videos and TV/VCR and his musical toys.

When friends come over, it’s always fun to see how long it will Nick to try and grab their car keys.  You can see his watchful eye taking note of where they set them down or where a purse is put. He waits and then strikes, scooping them up as he runs to the front door pointing them at their car and pushing the red panic button.  That is actually where all this started and preceded to the bigger bang…….fire alarms!  Al and I have to hide our keys up high on the top of a kitchen cabinet. In Nick’s mind those red buttons=noise and chaos.

Interesting how the same guy that likes things in their proper place also enjoys creating mayhem. (For more mayhem check out Blog # 3~ Getting Your Goat.) His eagle eye vision can lock down on a fire alarm fast.  He looks for the opening too. That moment that you might be distracted fumbling for your sunglasses and keys is when he will make the stealthy move.  I can tell you where every single alarm is located in every restaurant and store we frequent around Aurora and Naperville. (By the way the Taco Bell on 75th Street and Rickert is fire alarm free.) The key is to do the quick scan and find them first then sure you position yourself between it and Nick. In addition, it is essential that you are no more than arm’s length from him because he is faster than a speeding bullet!  I can always expect a call during summer school about a fire alarm pull.  The site is not his regular high school but each year he remembers that there is one alarm sandwiched in between two wall mats that is uncovered. I know he has yanked that particular alarm at least three of the twenty five alarm pulls. Yes, we are holding the tally at twenty five but that won’t last.  It’s just a matter of time before he gets one (preferably not with me!)

Who me?  But  I look so innocent……

So that is what is in my noggin this week, my guy with x-ray vision and faster than a speeding bullet. Hope you enjoyed a slice of Nick’s world, the rest of us are just trying to keep up.  Until next week stay cool and thanks for reading my rants, musings and information that hopefully offers some insight about raising a child with special needs.  I enjoy your comments…. Keep ‘em coming!

~Teresa

* “Lo and behold” according to The Phrase Finder, is an exclamation, on drawing others attention to something.  It is used especially to announce things that are considered startling or important.  The phrase is often written with an exclamation mark.  Its origin comes from the word “lo” as used in this phrase is a shortening of “look.”  So, lo and behold! Has the meaning of look!-behold! It has been used since the first Millennium and appears in the epic poem Beowulf.

Posted in Autism, Fun Side of Nick

Blog #14~ “P.B.” Unnerstall

Blog #14~ “P.B.” Unnerstall

Yes, that’s right we call him “P.B.” on occasion.  In fact we have a lot of nicknames for Nick depending on what he is up to. As his brother Hank mentioned in Blog #9 when he is having a raging meltdown he referred to as “M.B.” which is code for Monkey Boy.  My Brother Tom always called him “Bics” which stands for “Bull in a China Shop.”  Nick’s Dad refers to him as “Floct,” where he came up with that I have no idea.  Al is always making up random, goofy names for family members.  For instance our niece Courtney is “Courtal Minortal” her brother, Austin is called “Stinny or “The Stinnalator.” On the other side of the family he calls our niece Anna, “Anna Bo-bana” and her brother Sam is “Sam-u-Wela” or “Welatron.” My sister Laura’s kids are Jake aka named “Jakey Wakey” and Jenna also known as “Wenna”   Now that I am writing all these silly nicknames I am starting to wonder about the man.

So back to “P.B.” His formal name is Nicklas James Unnerstall.  Having such a last name we decided on short, strong names for the boys. My thought was  if we went really long on the names they might run out of spots while bubbling in their name on the SAT test. (Well, guess we don’t have to worry about that with Nick after all.)  So we chose the name, Nick.

It goes back to the movie called “A Sure Thing.”  The two main characters (college students) are hitchhiking across country and no one will stop and pick them up.  So, the female character played by Daphne Zuniga (formally of Melrose Place) stuffs a sweater under her shirt to make it look like she is pregnant.  An elder lady taking pity and stops to pick them up and asks what they plan to name the baby.  She gives a name like Ethan or something (I can’t remember exactly.)  John Cusack’s character pipes up and says….”No, we can’t name him that.  It sounds like a kid that eats paste.  We have to give him a strong name like Nick.  Nick’s your buddy, he’s your pal.  You can throw up in his car.” By the way it is a great movie!

Now we get a lot of questions about the spelling, Nicklas.  Yes it is a real way to spell it, at least in Sweden it is.  After he was born, Al gave the attending nurse that spelling on the birth record.  He actually thought that was how Jack Nicholas spelled his name.  I didn’t really pay attention at the time as I was feeling the after effects of giving birth.  FYI, his middle name, James was taken from his grandpa Jim.

I still haven’t answered the burning question of the name “P.B.” Well this stands for “Pasta Boy.”  For as long as I can remember, the boy can eat his weight in pasta.

Nick and Gma … the early days…..

I don’t think I have ever seen such delight as when Nick is presented with a large bowl of pasta. Around the age of seven we upgraded to the adult portions as the child’s plates just weren’t cutting it. The servers always look at him with skepticism as they put the heaving bowl of spaghetti with marinara sauce in front of Nick.  But we knew would polish it off.

Going….

Going………………..Gone!

Here he is after a full day of rides at Disneyland…. and a full bowl of pasta….stick a fork in him.. done!

To this day he still jams it out…. and delights in every moment…..Before….

and after…..

While Nick has an extra chromosome in the 21st pair (Down syndrome called Trisomy 21) that has given him many physical attributes that make him look different he has a lot of the same genetic characteristics that make him more like us than different.  He is a string bean and his build is very much like mine.  Speaking of nicknames, mine was “Twiggy” a famous model from the 1960’s.

I was a dinky little kid….

Nothing but arms and legs…with my sis, Laura isn’t she cute. And hey how about those matching Easter dresses crafted by my Mom the expert semstress! (That’s Bo our Border Collie in the background.)

Back then much like Nick does, I could eat whatever I wanted and not gain an ounce.  My personal best was when I was ten years old at Poncho’s Mexican Restaurant located in the heart of beautiful Pasadena, Texas (you know…. where the award winning movie Urban Cowboy was based.)

I was trying my best to keep up with my brother.  Poncho’s offered a family friendly and affordable all you can eat buffet.  You go through the line for the first course feasting hungry eyes as you chose from the vast  steamy trays of spicy entrees. Once you have finished with round one you simply raise the miniature, plastic Mexican flag at the center of the table and the server will take your next order.

 So drum roll please, my personal best was….. tada… thank you….

10 enchiladas

8 Tacos

2 helpings of rice and beans

2 sopapillas (Sopapilla=fried dough that you load up with honey and bite down and it is a gooey, warm and delicious mess!

Driving home from Poncho’s was never a treat with my brother in the car. The three of us would be jammed with our stuffed selves in the backseat of the blue Chevy-Nova station wagon with no AC and in a matter of minutes Tom could summon his colon to rip out the worst farts ever. I could never pump the window handle fast enough to get the stinch out.  I would look over at Tom who would be busting out laughing and rather proud of himself.  Oh, and he would keep a death grip on his window handle tight so the window stayed up.  By the end of the ride back to La Porte it was like that scene out of the movie “Blazing Saddles.” (I hope my friend, Ristow is reading this. He loves the potty humor.)

And so it appears that I have seriously taken the word digress to a whole new level this week.  It would be remiss of me not to mention how much joy Nick gets out of letting a few rip each day (and yes he loves Mexican food nearly as much as pasta.) He totally knows he is funny and will look right at you with that dastardly laugh and vein popping out of his forehead. In fact each morning I am warmly greeted by Nick who comes into the bedroom and lets one go and says “farver” with a laugh.  Oh what a delightful wake up call. I love Nick’s sense of humor, unspoken but sometimes no words are needed.  He also delights in his burps too.  As soon as he takes the first few sips of Sprite at a restaurant he begins the litany of burps sounding like a frog in heat.  I often want to ask “Could you seat us in the burping section.”

“OMG, I just let go of the best burp ever!”

Please forgive my “*Sophomoric humor” clearly I have gone off the rails.  Living with a bunch of boys will do that to you. That is what is in my noggin this week, just a pile of protoplasm. I will blame it on getting a year older. Hey, it’s my birthday today.  I am raising the red, white and green flag for a second helping. Load me up and light a match!

Cheers to celebrating another birthday as well to our country on Wednesday, raising the red, white and blue!

Until next Monday may the sound of fireworks rip and roar in your life and excite you as much as a giant bowl of pasta or refried pinto beans hee hee….!

~Teresa

*Sophomoric humor refers to juvenile, puerile, and base comedy that would normally be expected from an adolescent. It is used to refer to a type of comedy that often includes bathroom humor and gags that are based on and appeal to a silly sense of immaturity.