Posted in Autism, Autism Safety and Wandering, Down syndrome, Down Syndrome Awareness, Dual Diagnosis Down syndrome and autism, Resources for Special Needs

Blog #168~ New Disability Identification Card

Blog #168~ New Disability Identification Card

This morning, I attended an event presented by Illinois State Representative, Stephanie Kifowit at the Aurora Police Department.   Last year, she sponsored legislation to create a disability awareness card.  Many individuals in our community live with special needs.  Often, their conditions can sometimes make it difficult to communicate in stressful situations.  This new disability wallet card was unveiled to foster better communication for individuals who struggle during these times.

State Representative Stephanie Kifowit….

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This initiative was the idea of School Board President Lori Price, who is a parent of a child with Autism Spectrum Disorder. Persons with autism spectrum disorder and other disabilities may shut down, get nervous, panic or display inappropriate behaviors during high stress situations.  The disability awareness card is a tool, to help individuals quickly identify themselves to first responders and other public figures.   An individual can quickly show this wallet card, which will help to prevent a situation from escalating.

Face it, we all get nervous when being pulled over by a police officer.  Imagine what it must feel like for a person medically diagnosed with an intellectual, developmental or mental disability. This wallet card is different from the state ID card, as it contains the following…..

On this card, these conditions may present a person who:

*Appears deaf or unable to understand

*Has difficulty speaking or communicating

*Engages in repetitive or self-stimulating behaviors such as rocking or hand flapping.  

*Becomes agitated due to physical contact or stressful situations

*Acts indifferent or unresponsive

These conditions are stated on the card along with this statement:

“Please do not interpret my behavior as refusal to cooperate.  To better communicate with me, it can be helpful to speak slowly and clearly, repeat questions and allow time for responses.”

“If those techniques are unsuccessful, I request that you contact the person noted below on my behalf as he/she will confirm my diagnosis and provide information you may need about my identity or condition.”

These cards are free to individuals who have been approved by the Secretary of State’s office for an Illinois Person with a Disability ID card.  

For an application click here @https://www.cyberdriveillinois.com

I applaud State Representative Stephanie Kifowit for taking Lori Price’s idea for this simple card, that will improve communication and help de-escalate high stress situations.  This will assist law enforcement and first responders in keeping our loved ones safe.  Readers , please let me know if an identification card like this has been implemented, where you live.  If not, perhaps it’s time to champion this effort!

That’s what is in my noggin this week. 🙂

~Teresa

Who’s getting funky on World Down Syndrome Day, 3/21?

Deadline for ordering your funky socks for World Down Syndrome Day is this Thursday.  Support our campaign to help The National Association for Down Syndrome and our local homeless shelter by ordering and rocking your socks on, 3/21!  Click here to order: https://my.wehelptwo.com/campaign?reset=1&id=373

Follow Nick:

Down Syndrome With A Slice of Autism on Facebook and Pinterest

#dsautism on Instagram

@tjunnerstall on Twitter

 

 

Author:

Teresa is the Author of "A New Course: A Mother's Journey Navigating Down Syndrome and Autism" and the mother of two boys. Her youngest son, Nick is 29 years old and has a dual diagnosis of Down syndrome and autism (DS-ASD). Teresa's passion is helping others understand and navigate co-occurring Down syndrome and autism. She is a DS-ASD consultant, advocate, speaker, and author. Follow Nick's world on Facebook, Instagram & Pinterest @Down Syndrome With A Slice of Autism and on Twitter @tjunnerstall. For more information and media links, visit https://www.teresaunnerstall.com

3 thoughts on “Blog #168~ New Disability Identification Card

  1. I have a 7 yr old Down’s syndrome. I live in Ohio. He needs an identification card or necklace. He can’t communicate. He left his classroom unnoticed for minutes. I am afraid if he ever got out of the school no one could find us. Where do I start? Thank you.

    1. I would start with getting a Medic Alert ID bracelet. Nick’s says Down Syndrome, autism and non-verbal. In addition, get something in writing in the IEP to insure his safety since there was an elopement incident. Also, check with your local police department to see if they have a data base for person’s with special needs. Here in IL, we have the Illinois Premise Alert Act that addresses this. You can get a State ID, when your child gets older (in lieu of a drivers license). I have written two blogs that you can access in the archives for more suggestions. Just type in Wandering and Autism and they should pop up. Let me know if I can be of any more help with this, Renee.

    2. Medic alert bracelet is where I would start. You might also check in with your local police department to put it in the system about your child. Here in IL, we have a premise alert which you can enter that way along with the state ID card. Check the archives in my blog I wrote a few titled Wandering and Autism. Good luck and keep me posted. 🙂

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