Posted in Adult Day Programs for Special Needs, Autism, Down syndrome, Dual Diagnosis Down syndrome and autism, Recreation/Leisure and Special Needs

DS-ASD~Fall Update 2019

DS-ASD~Fall Update 2019

Happy first day of fall ūüôā! Here is an update on my son, Nick who is 25 years old and has a dual diagnosis of Down syndrome and autism (DS-ASD). My son attends an adult developmental training day program which he enjoys very much. The program has a nice variety of learning and enrichment activities incorporated throughout the day. Outside this program, Nick enjoys spending time with his personal support respite workers in the community going out to eat, movies, parks and other activities.

Some of the highlights of Nick’s day program are community trips, including shopping, visits to parks and local amusements along with going out to eat. In house, the curriculum includes learning centers, communication, functional living skills, recreation, music, movies, gardening, crafts, cooking, Friday fun days and other themes round out this program each week.

Here are a few pictures of Nick at his adult developmental training program:

nick sweeping keeler      Nick nature walk keeler     Nick visor keeler      Nick learning centers keeler

nick connect game

On 9/11 the clients at his program made thank you cards for local first responders. Here’s Nick giving cards to a police officer:

Nick and APD

Nick’s verbal skills are limited, due to having the additional diagnosis of autism and verbal apraxia of speech along with Down syndrome. He uses an Augmentative and Alternative (AAC) device and picture exchange system (PECS) to communicate his needs. There are two ways that I know that he likes going to his day program. Over the weekend, he packed his lunch and put it in his backpack, which he set by the front door. He also took the school icon out of his PECS book and puts it on a Velcro task strip and handed it to me. It’s nice to see how much he wants to go to this program. The routine and structure helps individuals with Down syndrome, autism and other intellectual and developmental disabilities navigate their days successfully.

That’s what is in my noggin this week.

~Teresa ūüôā

Follow Nick and see more pictures of him in action, along with other stories:

Facebook and Pinterest @Down Syndrome With A Slice Of Autism

Instagram @nickdsautism

Twitter @tjunnerstall

 

 

 

Posted in Autism, Autism Safety and Wandering, Down syndrome, Down Syndrome Awareness, Dual Diagnosis Down syndrome and autism, Resources for Special Needs

Blog #168~ New Disability Identification Card

Blog #168~ New Disability Identification Card

This morning, I attended an event presented by Illinois State Representative, Stephanie Kifowit at the Aurora Police Department.   Last year, she sponsored legislation to create a disability awareness card.  Many individuals in our community live with special needs.  Often, their conditions can sometimes make it difficult to communicate in stressful situations.  This new disability wallet card was unveiled to foster better communication for individuals who struggle during these times.

State Representative Stephanie Kifowit….

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This initiative was the idea of School Board President Lori Price, who is a parent of a child with Autism Spectrum Disorder. Persons with autism spectrum disorder and other disabilities may shut down, get nervous, panic or display inappropriate behaviors during high stress situations.  The disability awareness card is a tool, to help individuals quickly identify themselves to first responders and other public figures.   An individual can quickly show this wallet card, which will help to prevent a situation from escalating.

Face it, we all get nervous when being pulled over by a police officer. ¬†Imagine what it must feel like for a person medically diagnosed with an intellectual, developmental or mental disability. This wallet card is different from the state ID card, as it contains the following…..

On this card, these conditions may present a person who:

*Appears deaf or unable to understand

*Has difficulty speaking or communicating

*Engages in repetitive or self-stimulating behaviors such as rocking or hand flapping.  

*Becomes agitated due to physical contact or stressful situations

*Acts indifferent or unresponsive

These conditions are stated on the card along with this statement:

“Please do not interpret my behavior as refusal to cooperate. ¬†To better communicate with me, it can be helpful to speak slowly and clearly, repeat questions and allow time for responses.”

“If those techniques are unsuccessful, I request that you contact the person noted below on my behalf as he/she will confirm my diagnosis and provide information you may need about my identity or condition.”

These cards are free to individuals who have been approved by the Secretary of State’s office for an Illinois Person with a Disability ID card. ¬†

For an application click here @https://www.cyberdriveillinois.com

I applaud State Representative Stephanie Kifowit for taking Lori Price’s idea for this simple card, that will improve communication and help¬†de-escalate high stress situations. ¬†This will assist law enforcement and first responders in keeping our loved ones safe. ¬†Readers , please let me know if an identification card like this has been implemented, where you live. ¬†If not, perhaps it’s time to champion this effort!

That’s what is in my noggin this week. ūüôā

~Teresa

Who’s getting funky on World Down Syndrome Day, 3/21?

Deadline for ordering your funky socks for World Down Syndrome Day is this Thursday.  Support our campaign to help The National Association for Down Syndrome and our local homeless shelter by ordering and rocking your socks on, 3/21!  Click here to order: https://my.wehelptwo.com/campaign?reset=1&id=373

Follow Nick:

Down Syndrome With A Slice of Autism on Facebook and Pinterest

#dsautism on Instagram

@tjunnerstall on Twitter