Posted in Down syndrome, Down Syndrome Awareness, Recreation/Leisure and Special Needs

Blog #234~ Chris Nikic YOU are an Ironman!

Blog #234~Chris Nikic, YOU are an Ironman!

Chris Nikic, a 21-year-old triathlete from Florida, has become the first person with Down syndrome to cross the finish line at an Ironman event. The Ironman is widely considered to be one of the most difficult single day sporting events in the world. It is a daunting race which includes swimming 2.4 miles, cycling 112 miles and running a 26.2-mile marathon. The 140.6 mile race must be completed in 17 hours. But Chris Nikic made all the time cutoffs, with time to spare–completing his competition in 16:46:09.

Chris Nikic YOU are an Ironman!

ABC News Feature: https://www.abcactionnews.com/news/region-pinellas/floridas-chris-nikic-becomes-first-ironman-with-down-syndrome

More media stories: https://chrisnikic.com/

So, how did Chris Nikic achieve such an amazing feat? Nikic has been training and competing in triathlons since he was 16 years old as well as the Special Olympics. It is all about hard work, dreaming big, setting goals and crushing them. His training sessions were around 6 hours daily. I am a 37 year fitness professional. I have worked with cyclists, marathon runners, triathletes, Ironman finishers and the 12 time Guinness world record holder for the plank and spinning (George Hood). Each of these athletes are disciplined and passionate. But there is something more–and that is the spirit that comes from the heart. I saw this in Chris Nikic who has the true heart of an Ironman. He adopted a mantra that is very simple but effective: Give 1 % more each day”.

“If you start walking 100 steps and get 1% Better for 1 year, you will be walking 3,700 steps. If you start with 1,000 steps, in 1 year you will be walking a Marathon.” https://chrisnikic.com/

“I learned that I am willing to work hard and get one percent better every day, then ‘Anything is Possible,’” he replied when asked what it means to him to attempt an Ironman. “But I also learned that I can get my dream.” -Chris Nikic

History was made at this Ironman event. Barriers have been broken, making room for athletes with Down syndrome and other intellectual and developmental disabilities to set goals, dream big and be included. Nikic is a trailblazer, and with each transition from swim, bike to run he brought tears of joy to my eyes and thousands around the world. This all came from a boy, who like my son Nick, didn’t walk until he was 4 or eat solid foods until he was 5. Chris also had heart surgery at five months old and later four major ear operations at age 17.

To Chris, this race was more than just a finish line and celebration of victory,” said his father. “Ironman has served as his platform to become one step closer to his goal of living a life of inclusion, normalcy, and leadership. It’s about being an example to other kids and families that face similar barriers, proving no dream or goal is too high. If Chris can do an Ironman, he can do anything.” -Nik Nikic

Congratulations to Chris Nikic, YOU are an Ironman! Your mantra of doing 1% better going for your dreams, and crushing the Ironman is truly inspirational. That’s what is in my noggin this week.

~Teresa 🙂

Teresa Unnerstall is the mother of Nick, who is 26 years old and has a dual diagnosis of Down syndrome and autism (DS-ASD). She is the author of A New Course: A Mother’s Journey Navigating Down Syndrome and Autism (https://amzn.to/2W3Un6X) Follow on social media (Facebook-Instagram @Down Syndrome With A Slice Of Autism, Twitter (@tjunnerstall).

Posted in Down syndrome, Down Syndrome Awareness, Dual Diagnosis Down syndrome and autism

Blog #233~Down Syndrome Awareness Month

October is Down Syndrome Awareness Month. My son, Nick is 26 years old and has a dual diagnosis of Down syndrome and autism (DS-ASD). As a parent, writer and advocate, I strive to educate others to better understand more about Down syndrome and autism. Down syndrome awareness is about promoting understanding, acceptance and inclusion of all individuals with Down syndrome.

FACTS about Down syndrome from National Down Syndrome Society (NDSS):

*Down syndrome occurs when an individual has a full or partial extra copy of chromosome 21. This additional genetic material alters the course of development and causes the characteristics associated with Down syndrome.

*There are three types of Down syndrome: trisomy 21 (nondisjunction) accounts for 95 percent of cases, translocation accounts for about 4 percent and mosaicism accounts for about 1 percent.

*Down syndrome is the most commonly occurring chromosomal condition. One in every 691 babies in the United States is born with Down syndrome.

*There are more than 400,000 people living with Down syndrome in the United States.

*Down syndrome occurs in people of all races and economic levels.

*The incidence of births of children with Down syndrome increases with the age of the mother. But due to higher fertility rates in younger women, 80 percent of children with Down syndrome are born to women younger than 35.

*People with Down syndrome have an increased risk for certain medical conditions such as congenital heart defects, respiratory and hearing problems, Alzheimer’s disease, childhood leukemia and thyroid conditions. Many of these conditions are now treatable, so most people with Down syndrome lead healthy lives.

*A few of the common physical traits of Down syndrome are low muscle tone, small stature, an upward slant to the eyes and a single deep crease across the center of the palm. Every person with Down syndrome is a unique individual and may possess these characteristics to different degrees or not at all.

*Life expectancy for people with Down syndrome has increased dramatically in recent decades — from 25 years old in 1983 to 60 years old today.

*People with Down syndrome attend school, work and participate in decisions that affect them, and contribute to society in many wonderful ways.

*All people with Down syndrome experience cognitive delays, but the effect is usually mild to moderate and is not indicative of the many strengths and talents that each individual possesses.

*Quality educational programs, a stimulating home environment, good health care and positive support from family, friends and the community enable people with Down syndrome to develop their full potential and lead fulfilling lives.

More information @ http://www.ndss.org/Down-Syndrome/What-Is-Down-Syndrome/

Here are a few simple ways to promote Down syndrome awareness:

*Post information and stories about individuals with Down syndrome on your social media platforms.

*If you are a parent of a child with Down syndrome, send updates, pictures and tell your story to your family doctor and OB/GYN. Consider becoming a Hope Advocate- where you will get a custom hope kit to distribute to your OB/GYN and family doctor. More information @ https://hopestory.org/sign-up/

*Many local Down syndrome support groups have promotional materials, like books and bookmarks that can be distributed at libraries and schools.

*Down syndrome support groups have public speakers available to talk with schools, businesses, community groups, hospitals, and other organizations.

*Support or volunteer for local fundraisers like the Buddy Walk in your community @ https://www.ndss.org/play/national-buddy-walk-program/ . This month The Down Syndrome-Autism Connection is doing a 3-2-1 Caring and Sharing fundraiser to directly help families navigating a dual diagnosis. I will be posting more about this on social media. Find out more about this awesome support group @ http://www.ds-asd-connection.org/

*Encourage your kids to volunteer for Special Olympics and Best Buddies programs through their school.

*Always use and promote “people first language” to respectively speak about a person with a disability. Individuals with Down syndrome should always be referred to as people first.  Instead of “a Down syndrome child,” it should be “a child with Down syndrome.” Also avoid “Down’s child” and describing the condition as “Down’s,” as in, “He has Down’s.”

down-syndrome-awareness-month

My book A New Course: A Mother’s Journey Navigating Down Syndrome and Autism is helping so many readers understand both Down syndrome and a co-occurring Down syndrome and autism (DS-ASD). It’s available on Amazon, plus there are share buttons you can utilize for social media to help spread awareness. Order and share @ https://amzn.to/2W3Un6X You can also order my book on other platforms and read chapter one for FREE @ http://www.teresaunnerstall.com. I appreciate the 70+ awesome five star Amazon reviews. Your support and sharing A New Course on your social media sites is spreading great awareness and understanding. I will be doing some more giveaways this month for everyone who shares my book on social media!

Thank you for supporting Down syndrome awareness this month! That’s what is in my noggin this week.

~Teresa 🙂

Follow us on Social Media:

Facebook and Pinterest @Down Syndrome With A Slice Of Autism

Instagram @nickdsautism

Twitter @tjunnerstall

Posted in Autism, Down syndrome, Dual Diagnosis Down syndrome and autism, Education and Special Needs, IEP (Indivdualized Education Plan), Parenting Special Needs

Blog #232~Special Needs Parent and Educator Help During Covid-19

Blog #232~Special Needs Parent and Educator Help During Covid-19

As a dual diagnosis DS-ASD writer and consultant, I’m scratching my head on how to help special needs families faced with the daunting task of implementing remote distance learning. This is an unprecedented time we are in facing with Covid-19. It’s like a continuous Ground Hog Day with no end in sight. My son Nick is 26 years old and has a dual diagnosis of Down syndrome and autism (DS-ASD). He normally attends an adult developmental training program. His program has been closed since March. The focus at home has been to work on independent living skills. So what advice can I offer? What would I do if my son was still in school?

My short answer is this………

As an IEP team you have to collaborate together and think outside the box on how to navigate distance learning. That means asking for support, visuals, making addendums to the IEP, finding outside resources and therapies. Always lead with the child’s interests and strengths when implementing lessons and goals both at school and home.”

I am going to stay in my lane and introduce you to one of the top experts in navigating IEP’s. Catherine Whitcher’s podcast is packed with great advice on how parents and educators can work together to make education successful during the Covid-19 crisis. You won’t be disappointed and you will learn ALOT!!! 🙂 Click here to listen:

https://www.catherinewhitcher.com/blog/podcastcriticaliepdecisions

In this podcast, Catherine Whitcher explains that you can’t do an IEP meant to be implemented at school in the home. Here are a few key bullet points of her podcast:

*Keep track of what is being tried, what is working and not working.

*Collaborate together to come up with solutions, make adjustments and addendums to the IEP.

*Redefine what is appropriate for this current situation, then come up with a new plan.

You can follow Catherine on Facebook and Instagram where you will learn so much as I have over the years at https://www.catherinewhitcher.com/ She offers up to date, practical information in her blogs, podcasts and live feeds on social media.

Don’t wait for your child to get back into school to make up for lost time. Take action now to make the best out of distance learning by thinking outside the box, collaborating with the IEP team and working with your child’s strengths and interests. That’s what is in my noggin this week.

~Teresa 🙂

Follow on Social Media:

Facebook and Instagram at Down Syndrome with a Slice of Autism

Twitter @tjunnerstall

Posted in Autism, Down syndrome, Dual Diagnosis Down syndrome and autism, Education and Special Needs, Resources for Special Needs

Blog #231~A Book Launch During Covid-19

Blog #231~A Book Launch During Covid-19

May 5, 2020 was going to be one of the most important days of my life. This was the date I planned to launch my book, A New Course: A Mother’s Journey Navigating Down Syndrome and Autism.

A New Course Book Cover multiple books

(Order your copy of A New Course) @ https://amzn.to/2W3Un6X 

Read chapter one of a New Course for FREE @ https://teresaunnerstall.com

May 5th was the perfect date, tying in Cinco de Mayo and Taco Tuesday to the launch party and book signing. I had a beautiful venue lined up complete with a taco bar and cocktails. I chose this date because it was just a week or so before Mother’s Day and at the height of  the IEP season. Two days later, we had plans to fly to Arizona where I would speak at the National Down Syndrome Society (NDSS) Adult Summit.

Then everything we planned came to a screeching halt……..

covid 19 pandemic

My son Nick is 26 years old and has a dual diagnosis of Down syndrome and autism (DS-ASD). His adult developmental day training program like all the schools, shut down in March. Across the country we all sheltered in place. There was no break–no respite care–no where to go and no way out. The lockdown was a moveable line that just kept pushing further with each passing month. Nick didn’t understand why he had to stay home, he became frustrated with the lack of structure and limitations. You can read about this experience with Nick and sheltering in place, by clicking below:

This is an article I wrote for The Mighty about this experience with my son, Nick: https://www.yahoo.com/lifestyle/navigating-covid-19-lockdown-son-173142879.html

So, I rolled up my sleeves and focused on marketing. A hybrid publisher does the bulk of the leg work, taking the pressure off the author and ensuring that the particulars are taken care of properly.

Here’s a breakdown of the book marketing plan:

*Identify key influencers and offer an advanced reader copy of the book in return for promoting and endorsing the book.

*Create and build followers on A New Course Book Launch Party group on Facebook.

*Do consistent posts on social media including Facebook, Instagram and Twitter (links listed below).

*Closely follow the marketing plan outlined by my publishing team using the Trello Board.

*Submit articles to magazines in related field and to Bublish.

*Find podcasts in the field that may be interested in DS-ASD and the book.

*Visit my author page at https://www.teresaunnerstall.com to view all the News/ Events including virtual events, promotions, podcasts and accolades.

As for the actual launch date on May 5th we had to go to plan B.  Here is what that looked like:

*Go live on Facebook three times doing author Q&A’s and reading chapter excerpts.

*Promotional giveaways of swag bags– prize drawings for friends who share & tag posts and pictures of themselves (or their pets) with my book.

*Small gathering of seven people outside, socially distant at 6 feet apart–with  a parade featuring the local fire department. (Nick has a thing for fire alarms–all 55 pulls since 3rd grade).

*Zoom Cinco de Mayo parties with margarita toasts.

Here are some pictures highlighting book launch day 🙂

As you can see, a book launch can be done even during a Covid-19 Pandemic lockdown. Like so many other major events in 2020 such as graduation ceremonies, proms, sporting events, birthdays and other special occasions–you find ways to make the best lemonade out of lemons–or margarita’s on Cinco de Mayo. 🙂

I would like to thank Alexa Bigwarfe and the publishing team at Kat Biggie Press, https://katbiggiepress.com for laying out an excellent blueprint on the Trello Board. This board carefully organized media materials, a marketing plan and submissions from the publishing team. My publisher also lent support with social media and guidance through all phases of publishing journey. One lesson I learned from Alexa Bigwarfe and my dear friend and best-selling author, Lisa McCubbin is this:

The marketing and outreach doesn’t stop after your book is published. Keep pushing to find new avenues to promote and market your book, because if you stop–your book sales will die. 

It’s been three months since my book came out and I am pleased to announce that A New Course has 56 Five Star Amazon reviews and it was a top non-fiction book on Library Bub in July. It is being well received by parents, extended family & friends, educators, therapists and physicians across the country and globe. Top leaders and authors in the field of Down syndrome and autism are endorsing A New Course! Best of all, my book is getting into the hands of readers and helping families understand how to navigate a dual diagnosis, validate their feelings, struggles and offering hope for the future with their child.

Finally, I want to thank my family, friends and launch team who supported me through this writing, blogging and publishing journey.  I appreciate the pep talks, shares, tags, pictures and book reviews submitted on Amazon and Goodreads. The BEST way to thank an author is to leave them a BOOK REVIEW on Amazon or Goodreads! The more reviews I get, the better chance my book can get into the hands of more readers–Please keep submitting your reviews, they are critical for book sales! You can still join in on the action, get the inside scoop, backstories and a chance to win reader appreciation prizes on our Facebook group: A New Course Insiders Book Club. 

So that’s how we managed to launch a book with success during the Covid-19 Pandemic and make the most out of an impossible situation here in 2020. That’s what is in my noggin this week. Be well and thank you for being a part of this journey with Nick and my book A New Course.

~Teresa 🙂

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Follow Nick:

Facebook: https://www.facebook.com/downsyndromewithasliceofautism/

Instagram: https://www.instagram.com/downsyndromewithasliceofautism/

Twitter: https://twitter.com/tjunnerstall

 

Posted in Autism, Down syndrome, Down Syndrome Awareness, Dual Diagnosis Down syndrome and autism, Education and Special Needs, Parenting Special Needs

Blog #230~Book Review: Scoot Over and Make Some Room

Blog #230~ Book Review: Scoot Over and Make Some Room 

My recent summer read– Scoot Over and Make Some Room: Creating a Space Where Everyone Belongs, by author and Instagram star, Heather Avis is a must read. She is the mother of 3 adopted children, two with Down’s syndrome and one of color.  Here is one review from her book that speaks volumes:

“In a world of divisions and margins, those who act, look, and grow a little differently are all too often shoved aside. Scoot Over and Make Some Room is part inspiring narrative and part encouraging challenge for us all to listen and learn from those we’re prone to ignore.”

Each chapter in the book Scoot Over and Make Some Room extends the challenge to make room for not only individuals with Down syndrome but way beyond to all individuals with different abilities, ethnicities, race, viewpoints and perspectives. Heather’s book is filled with humorous stories, challenges and lessons she has learned raising her 3 children, navigating IEP’s, inclusion and acceptance. But this book dives down much further, by challenging the reader to look into their own lives and broaden your understanding and compassion towards people who may be different from you.

My son Nick is 26 years old and has a dual diagnosis of Down syndrome and autism (DS-ASD). In my book A New Course: A Mother’s Journey Navigating Down Syndrome and Autism @ https://amzn.to/2W3Un6X  there are many stories about times where I would brace myself in public. Countless times I would apologize for my son’s seemingly inappropriate behavior, and yes like Heather have a moment where the pants have gone down, 🙂

Heather tells about the “pants down in the park” episode that was highly inappropriate (and a one-time occurrence) with her daughter Macyn. I can attest to the need to be on high alert and cringing at times. Macyn is a very spirited and outgoing girl who likes to engage with strangers by waving and sometimes asking “WHATCHA NAME?” This happened once at a hip LA restaurant. This raises a good question: Is this behavior inappropriate or just different than the social norm? Why are we so fearful to interact with individuals who have an intellectual or developmental disability? Often it is fear of the unknown and being uncomfortable around someone who may speak or act differently.

Heather writes this powerful message in her book:

“We fear the unknown. And unfortunately, until we create space for people with physical and intellectual disabilities to show up exactly as they are and give them permission to interrupt our social norms, they will continue to be unknown and we will continue to be fearful,”–Heather Avis

What a profound message this is to society and lesson about acceptance. Personally, I feel that the world could use more kind interactions like saying “hi” and “WHATCHA NAME.”  Obviously, we can all agree that “pants down in the park” is an inappropriate behavior. But as Heather writes in part:

“all of us have a responsibility to shift the way we react when faced with uncomfortable social situations. All of need to scoot over and make some room for people to respond in a way we’re not use to.”–Heather Avis

One of my favorite parts of this book is the chapter entitled “Make room for the Wildflowers.” Much of what we do in life is like a garden– planted in nice, neat rows. Take for instance inside school classrooms where the desks are all lined and in sync. Is there any space for the wildflowers to grow in these tidy rows? This metaphor opens up the dialog about inclusion and different abilities working alongside in the same classroom. Can we scoot over and make some room to let the wildflowers grow amongst the seamless rows and see the value of inclusion and all abilities?  I can speak from experience that my son, Nick brought great value and taught lessons of patience, compassion and unconditional love to his peers while in the inclusion classroom setting. He continues to do so as a young adult with his interactions out in the community and at his adult developmental day training program.

There is so much more to this book and you will have to read it to find out for yourself. Scoot Over and Make Some Room is a call to action to shout the worth of people who are left out and misunderstood. Every parent, extended family member, physician, educator, pastor and others will gain a deeper understanding of how to do a better job to adjust, sit and listen in order to learn how to find a way to make room for everyone to be valued, accepted and included in our society.

That’s what is in my noggin this week.

 ~Teresa 🙂

Follow Nick:

Facebook-Instagram-Pinterest @Down Syndrome with A Slice of Autism

Twitter @tjunnerstall

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Heather Avis writes from the heart about all the things she wishes the every day person knew about inclusion. This book applies to teachers, parents, siblings and simply everyone who wants to change the way we see inclusion in the world around us.

Posted in Autism, Down syndrome, Dual Diagnosis Down syndrome and autism, Parenting Special Needs

DS-ASD Summer Updates

DS-ASD Summer Updates

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It’s been awhile since my last post. It’s been difficult trying to concentrate and write. My son Nick is 26 years old and has a dual diagnosis of DS-ASD. The Covid-19 pandemic has been one of the most challenging times for us. In particular individuals like my son, fail to understand what is going on, why masks are needed and personally what happened to his adult day program? Nick needs structure and scheduled activities to stay regulated.  The earliest that his program might open up is September. I am not even sure he could go back and wear a mask, much less stay socially distant.  The line is moveable, and for all of us the uncertainty is mind-bending.

Regression of behaviors is real and scary right now. There are hints some of the experiences that occurred in the chapter titled “Waves of Fury” in my book A New Course: A Mother’s Journey Navigating Down Syndrome and Autism. Lack of understanding what is going on=frustration leading to more meltdowns since March. The only difference is that we know how to sense the buildup and cut things off at the pass or re-direct him before the behaviors escalate. I fear for both our family and others in the same boat who have a child with special needs and no school or day programs now or for the foreseeable future. So all I can do is take it day by day…. sometimes hour by hour… and breathe.

Here is a link to an article I wrote about this experience: 

@ https://themighty.com/2020/05/supporting-person-down-syndrome-autism-covid-19/? tm_source=engagement_bar&utm_medium=link&utm_campaign=story_page.engagement_bar/

Not everything is doom and gloom this summer. My book A New Course is being well received with 49 five star Amazon reviews, order a copy @ https://amzn.to/2W3Un6X My goal is 59+ to commemorate my upcoming birthday. Amazon and Goodreads reviews are critical to help move a book up in rankings and reach more readers. If you have read A New Course, the best gift you could give me for my 59th birthday is a review!

Here is a stellar testimonial I just received from the author of the gold standard book “When Down Syndrome and Autism Intersect:

“Teresa Unnerstall’s book, A New Course: A Mother’s Journey Navigating Down Syndrome and Autism, captured my heart as she relays her family’s journey which mirrored my own in so many ways. Teresa poignantly shares the challenges and joys that come with parenting a child with DS-ASD. Her book is a true treasure that offers hope, acceptance, and kinship to other like-families and to those who love, support and care for them”.

—Margaret M. Froehlke RN, BSN Author of When Down Syndrome and Autism Intersect, A Guide for Parents Guide for Parents and Professionals

A New Course Book Cover multiple books

Click here to order your copy of my book: @ https://amzn.to/2W3Un6X

We are on summer vacation break and today is my son Hank’s 28th birthday! You can keep up with Nick’s world and our birthday celebrations on social media! I am posting a bunch of fun pictures. Media sites are listed below with direct access and on my website @ https://teresaunnerstall.com/  Keep your eye open for some fun giveaways including copies of my book to celebrate my birthday. Thank you for following and supporting Nick’s world and my new book. Take care, be well find ways to enjoy your summer and the beauty in each day.

That’s what is in my noggin this week 🙂

~Teresa

Follow on Social Media:

Facebook-Instagram-Pinterest @Down Syndrome With A Slice of Autism

Facebook Book Group @A New Course Book Launch

Twitter @tjunnerstall

 

 

Posted in Autism, Down syndrome, Dual Diagnosis Down syndrome and autism, Parenting Special Needs

Blog #229~The Mighty Article: Navigating the Covid-19 Lockdown With My Son Who Has Down Syndrome and Autism

Blog #229~The Mighty Article: Navigating the Covid-19 Lockdown With My Son Who Has Down Syndrome and Autism

Here is an article that I wrote for The Mighty that was published last week about navigating the Covid-19 lockdown with my son Nick who is 26 years old and has a dual diagnosis of Down syndrome and autism (DS-ASD):

https://themighty.com/2020/05/supporting-person-down-syndrome-autism-covid-19/?utm_source=engagement_bar&utm_medium=link&utm_campaign=story_page.engagement_bar/

Nick and Al Walking Covid-19

A silver lining in the Covid-19 lockdown, Nick and his Dad are taking long walks together when the weather prevails. I think a lot of families are doing this, how about yours? 🙂

Last Tuesday, my book A New Course: A Mother’s Journey Navigating Down Syndrome and Autism launched and is available on Amazon https://amzn.to/2W3Un6X

A New Course Book Cover multiple books

It was a full day of virtual activities with some fun surprises. I will share more about the launch events on next week’s blog. A New Course is now ranked #25 in the ENTIRE Disability Parenting category and #2 in Hot New Releases in that category. 🙂  Let’s keep the momentum going. You can do so by leaving an Amazon review–That is the BEST way to help get this book out into the world.

Amazon Reviews

 

My mission is to help families, medical professionals, educators, DS support groups and every individual to truly understand this journey with my son– and to make things easier for everyone who is trying to help individuals navigate a dual diagnosis!

Thank you for all your support both in A New Course and this blog that has helped so many people learn more about DS-ASD.

That’s what is in my noggin this week!

~Teresa 🙂

Click on my website below for Social Media, book and blog information:

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Posted in Autism, Down syndrome, Dual Diagnosis Down syndrome and autism, Education and Special Needs, Parenting Special Needs

Blog #227~Daily living skills you can work on at home with your kids during the COVID-19 Crisis

Blog #227~Daily living skills you can work on at home with your kids during the COVID-19 Crisis

So, your stuck at home with your kids during this COVID-19 crisis, now what? This is actually the perfect time to work on daily living skills with your kids. Why are these skills important to know?

Let’s go back to the purpose of the Individual Education Plan (IEP):   To promote further education, employment and independent living skills.

Often, in our busy lives it’s easier to skip over teaching daily living skills on a consistent basis with our kids. So now that time has slowed down, why not take a few of these skills and hone in on them? Not only will this help your child become more independent, it will also promote confidence, family teamwork and as a bonus– many skills provide sensory input. My son Nick is 26 years old and has a dual diagnosis of Down syndrome and autism (DS-ASD). Over the years we have built in many daily living skills into his routine at home.

Here are a few of the jobs that Nick does around the house and how they provide sensory input:

*Recycling (replacement behavior for throwing)
*Can crushing (sensory and motor activity and replacement behavior for throwing)
*Carry laundry basket and load washing machine (heavy work/ organizing)
*Put away groceries (organizing activity)
*Empty Dishwasher (organizing and sensory activity)
*Cleaning/ wiping down countertops and windows (organizing activity)
*Vacuuming (heavy work which is calming)

 

The following link below is a full list of daily living skills in the areas of self-care, personal hygiene, kitchen skills, home management skills, to name a few. Focus on one or two skills at a time. You can access visuals and task strips off of Google Images and videos on YouTube:

https://learningforapurpose.com/2019/09/01/the-best-functional-life-skill-resources-for-individuals-with-autism

This is a time of uncertainty and anxiety levels are running high for all of us. First of all breathe, our kids take cues from how we are reacting during this crisis. Next, cabin fever is a real thing, so try to enjoy each other and find ways to work together at home. This will benefit the whole family. Give you kids a sense of purpose and foster new skills to bolster their confidence. This will help them grow to become more independent. Be well and don’t forget to keep those iPads charged 🙂

My book A New Course: A Mother’s Journey Navigating Down Syndrome and Autism is packed with more strategies and story about navigating a dual diagnosis of DS-ASD @https://amzn.to/2W3Un6X

TU_5-5x8-5_WPS_ebook

One last thing– World Down Syndrome Day is this Saturday 3/21– Here are 3 easy ways that you can help promote awareness, acceptance and inclusion: https://nickspecialneeds.com/2018/03/19/blog-200world-down-syndrome-day/

That’s what is in my noggin this week,

Teresa 🙂

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Follow Nick to see even more daily living skill activities and videos:

Facebook, Instagram and Pinterest @Down Syndrome with a Slice of Autism

Twitter @tjunnerstall

 

 

 

Posted in Autism, Down syndrome, Dual Diagnosis Down syndrome and autism, Fun Side of Nick, Recreation/Leisure and Special Needs

DS-ASD Winter Update

DS-ASD Winter Update

Vail view 2019

My son Nick is a young adult, who has a dual diagnosis of Down syndrome and autism (DS-ASD). He attends an adult developmental day training program which provides a variety of structured activities. This week, I want to catch everyone up on what Nick’s been doing this winter.

Nick’s day program includes learning and enrichment activities. Clients enjoy learning new skills, vocational jobs, exercise, crafts, shopping, cooking, theme days/parties and community outings. The structured program is a necessity for individuals like Nick who have a secondary diagnosis of autism. He looks forward to going to this program daily.

Nick at his adult developmental day training program:

Nick bowling fall 2019     nick connect game

There have been many celebrations and fun excursions this winter for Nick. Here are a few of the highlights:

Christmas in Chicago was unseasonably warm this year, no jacket or shoes required. 🙂

Nick Christmas presents 2019     Nick Christmas outside 2019

We recently enjoyed a nice vacation in Vail. Nick loved the dog sledding with Mountain Mushers. He got to ride with his guide and friend, Cameron for the third year in a row. This year Nick road up the gondola for the first time and we did snow tubing. It’s always nice to go into Vail village, and this year his respite worker joined us in the fun and helped support Nick for a few days of our trip.

Vail vacation highlights:

Nick and Cameron Dog Sledding 2019   Dog Sledding 2019 Nick and Miss R Vail 2019   Nick and Dad Tubing 2019

Nick just celebrated his 26th birthday! He had a pizza party with cupcakes at his day program. We also had cake at home and a nice birthday lunch with family.

Nick’s birthday highlights:

Nick birthday at Keeler 2020   nick 26 birthday

nick birthday 2   Nick HBD

It’s been a fun and busy winter in Nick’s world. As most of you know, I have completed my memoir, “A New Course: A Mother’s Journey Navigating Down Syndrome and Autism”  which is forthcoming on May 5, 2020!  My next post will showcase the book and include pre-order details and how you can get your hands on a copy. I can’t wait to share this with all of you. I truly appreciate your support in my writing and following Nick’s world. 🙂

That’s what is in my noggin this week.

~Teresa 🙂

Follow Nick’s world to view more photos and videos on social media:

Facebook and Pinterest @Down Syndrome With a Slice of Autism

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Twitter @https://twitter.com/tjunnerstall

LOGO TRANSPARENCY (5)

 

Posted in Autism, Down syndrome, Dual Diagnosis Down syndrome and autism, Parenting Special Needs, Self-care for special needs parents

Ditch the New Year’s Resolutions:Here’s a Better Idea!

Ditch the New Year’s Resolutions: Here’s a Better Idea!

2020 plan

Happy New Year! It’s time to clear the decks and start fresh.🙂 How many times have you made a new year’s resolution and failed to keep it? As a 35+year fitness professional and mother of a son with special needs (DS-ASD), here is my advice: Ditch the old school resolutions and try a different approach!

Here’s what I’ve got for you to get started:

*Great self-care tips and easy ways to build in healthy habits.

*Quick, easy and  practical ways to get back into fitness.

*Simple approaches to help your child with special needs to gain independent living skills.

Click on this link to read how to make a new plan for 2020: https://nickspecialneeds.com/tag/ditch-the-new-years-resolutions/

Let’s do this, 2020 is going to be a great year! That’s what is in my noggin this week.

~Teresa 🙂

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Facebook and Pinterest @Down Syndrome With a Slice of Autism

Instagram @nickdsautism

Twitter @tjunnerstall