Posted in Autism, Down syndrome, Dual Diagnosis Down syndrome and autism

April is Autism Awareness Month

April is Autism Awareness Month

autism awareness 2016

April is “Autism Awareness Month“.  I am quite aware of autism every day of the year.  My son Nick, is 22.  He has Down syndrome and autism.  He requires constant supervision 24/7, 365 days of the year.  There is some funding through the state which helps pay for his adult day program and respite care.  In addition, he receives Supplemental Security Income monthly.  But this doesn’t come close to covering the costs. Autism is the fastest growing developmental disorder, yet most under funded.

Putting a ribbon on the car bumper is not going to do enough to help families living with autism.

autism ribbon

My hope is for more acceptance, compassion, research, funding and programs to support families living with autism.  And, we need more “family” bathrooms to be accessible in public facilities.  Nick can’t go into the men’s rest room by himself.  It would not be safe for him to go alone.  Not to mention that he would flush the toilet repeatedly, then run every single faucet full blast.

Autism statistics in 2000 were 1 in 150.  By 2010 it was 1 in 68.  Autism is not going anywhere.  In fact, people with autism are growing up and aging out of the school system like my son, Nick.  Families with autism need more support.  We can’t do it alone.  That’s what is in my noggin this week.

~Teresa

Follow Nick on Social Media:

Facebook and Pinterest  @Down Syndrome With A Slice Of Autism

Instagram  @nickdsautism

Twitter @tjunnerstall

 

 

 

 

Posted in Autism, Down syndrome

Blog #110~Autism Holiday Survival Tips

Blog #110~Autism Holiday Survival Tips

The Christmas holidays can be a land mine for individuals who have autism.  The changes in schedules, crowds, noises and the lights can result in way too much external stimuli to process. My son, Nick is 20 years old and has Down syndrome and autism.  As I flip the calendar to December, I can feel my anxiety level begin to arise. We all handle holiday stress in different ways. The movie, Christmas Vacation conveys this so well.

“I don’t know what to say.  It’s Christmas and we’re all in misery”

Christmas vacation cig pic

Here are 10 tips for surviving the holidays with your child who has autism:

  1. Start early, get as much done ahead of time with holiday preparations.
  2. Don’t rush, allow enough time to get from point A to point B. Give more notice when it is time to transition. This will help to avoid meltdowns.
  3. Be flexible and relax your expectations over the holidays.
  4. Pare down where you can, whether it’s decorations, presents, or parties. It’s okay to say no or bow out early.
  5. When possible try to stick to routines. Sometimes it’s easier to hire a babysitter or respite worker to stay at home with your child while you go to holiday parties.
  6. Make social stories using visuals or written words (depending on your child’s level of comprehension). This will act as a script for your child to follow.  If they can see what’s expected, they will understand the plan and won’t be as anxious.

Task strip for a trip to the mall…..

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Task strip for airline travel……

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7. Provide pictures of family members and friends that you don’t see that often prior to visiting them. If your child doesn’t like to hug then try a special handshake, high five or Nick’s favorite….

Elbow Bump 🙂

elbows

8. Give your child opportunities to help out. Allow them to make choices between two things. This gives them more control during the holidays, (when we all feel a bit out of control at times).

Nick helps out with the luggage, which gives him heavy sensory work….

photo (108)

9. Find a quiet place for your child to unwind. Most of us know how to do this on our own (bubble bath, crack open a bottle of wine, exercise, etc.). But a child with autism can get overstimulated and not know how to decompress. They may need you to help them to settle down and relax.

10. Get rest when you can and take time to pause and reflect on the blessings of the season.

Christmas vacation reflection

I hope these survival tips will help your family and child with autism.  As you flip over the calendar to December today, take a deep breath.  Your child will be feeding off your cues, so……

Keep Calm Christmas

That’s what is in my noggin this week.

~Teresa 🙂

Christmas 2

Nick and his brother Hank in 1999