Month: October 2023

Posted in Down syndrome, Down Syndrome Awareness, Dual Diagnosis Down syndrome and autism, Education and Special Needs, Resources for Special Needs

Blog #255~Down Syndrome Awareness Month:Extra Good Reads

Posted on by Teresa Unnerstall

Blog #255~Down Syndrome Awareness Month: Extra Good Reads

October is Down Syndrome Awareness Month. My son Nick is 29 years old and has a dual diagnosis of DS-ASD. I’ve been writing this blog since 2012, to help educate and inspire families and professionals.

Last week, in blog #254, I put the spotlight on many DS owned businesses check it out here: https://nickspecialneeds.com/2023/10/16/blog254down-syndrome-awareness-monthsupporting-down-syndrome-businesses/

This week I want to highlight some good reads related to Down syndrome. There are many books on Amazon available with a variety of topics related to Down syndrome. Here are a few books that I highly recommend, that will both educate and inspire you.

Extra Good Reads about Down Syndrome:

A New Course: A Mother’s Journey Navigating Down Syndrome and Autism by Teresa Unnerstall order here: https://amzn.to/2W3Un6X

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The Essential Guide for Families with Down Syndrome: Plan and Actions for Independence at Every Stage of Life by Steve Friedman Order your copy here: https://a.co/d/gMxuiU3

The Essential Guide for Families with Down Syndrome: Plans and Actions for Independence at Every Stage of Life

A Parent’s Guide to Down Syndrome, Advice, Information and Support to Raising Your Child from Diagnosis to Adulthood by Jen Jacob and Marda Sikora. Order here: https://a.co/d/5CRwU6R

Supporting Positive Behavior in Children and Teens with Down Syndrome, Revised Edition, The Respond, Don’t React Method by Dr. David Stein, Psy.D. Order here: https://a.co/d/8rlEeJG

Down Syndrome Parenting 101: Must Have Advice for Making Your Life Easier by Natalie Hale order here: https://a.co/d/7LebF7H

Babies with Down Syndrome: A New Parent’s Guide, Edited by Susan J. Skallerup order here: https://a.co/d/bU6CyTv

Scoot Over and Make Some Room: Creating a Space Where Everyone Belongs by Heather Avis order here: https://a.co/d/3QMtl0w

Teaching Children with Down Syndrome about Their Bodies, Boundaries and Sexuality by Terri Couwenhoven, M.S. order here: https://a.co/d/gARb2kE

Fine Motor Skills for Children with Down Syndrome, A Guide for Parents and Professionals (third edition) by Maryanne Bruni, BScOT (Reg) order here: https://a.co/d/8au2far

Gross Motor Skills in Children with Down Syndrome: A Guide for Parents and Professionals by Patricia C. Winders, P.T. order here: https://a.co/d/9F4DUV4

Gifts: Mother’s Reflect on How Children with Down Syndrome Enriched Their Lives, Edited by Kathryn Lynard, order here: https://a.co/d/fJ4ZgAj

Gifts 2: How People with Down Syndrome Enrich the World, Edited by Kathryn Lynard Soper, order here: https://a.co/d/5ltSrSH

Mental Wellness in Adults with Down Syndrome: A Guide to Emotional and Behavioral Strengths and Challenges by Dennis McGuire, Ph.D. and Brian Chicoine, M.D. order here: https://a.co/d/cbOhBLC

Different A Great Thing to Be by Heather Avis and Sarah Mensinga, order: https://a.co/d/3VL4z16

You Are Enough: A Book About Inclusion by Margaret O’Hair and inspired by Sophia Sanchez order: https://a.co/d/hRsKJAu

My Friend Has Down Syndrome by Jennifer Moore-Mallinos, order here: https://a.co/d/aSRCijS

These Down syndrome good reads are excellent resources for parents, families and professionals. Keep them in mind as gifts for the upcoming holiday season. In addition, many local Down syndrome support groups across the country provide lending libraries with these resources for families. Thank you for sharing and supporting us as we raise awareness and acceptance to celebrate Down Syndrome Awareness Month.

That’s what is in my noggin this week.

Teresa 🙂

Follow us on Facebook and Instagram at Down Syndrome with A Slice of Autism

Posted in Down syndrome, Down Syndrome Awareness, Dual Diagnosis Down syndrome and autism

Blog#254~Down Syndrome Awareness Month:Supporting Down Syndrome Businesses

Posted on by Teresa Unnerstall

Blog #254~Down Syndrome Awareness Month: Supporting Down Syndrome Businesses

Individuals with disabilities often struggle to find meaningful and competitive employment opportunities as adults. Many families think outside the box to create business opportunities for their loved one with Down syndrome. This week, I want to celebrate Down Syndrome Awareness Month by highlighting some of these business owners. As a mom to my son Nick age 29, who has a dual diagnosis of Down syndrome and autism (DS-ASD), I am a fierce advocate for indidviduals with disabilities. These are a few of my favorites that I have supported over the years.

Down Syndrome Business Guide:

*Bitty and Beau’s Coffee: It’s more than a cup of coffee. 25 Locations across the country https://www.bittyandbeauscoffee.com/

*Candidly Kind: Grace’s mission is to to spread light love and acceptance thru her original art and life including t-shirts and lots of swag gear. https://www.candidlykind.com/ Here’s a photo I took with Grace at the NDSC convention and along with my son, Nick modeling one of her designs:

*John’s Crazy Socks: “Their mission is to show what is possible when you give someone a chance”. Every day, we demonstrate what people with intellectual disabilities can do.” https://johnscrazysocks.com/

*Gracie’s Doggie Delights: Premium dog treats with no additives, chemicals or preservatives. https://graciesdoggiedelights.com/

*Seanese: Unique tees designed by Sean McElwee from A&E’s Born this Way https://seanese.com/

*River Bend Gallery: Geoffrey Mikol is a professional artist who does beautiful photography. https://www.riverbendgalleries.com/

*Troy Made It: “Troy is a potter who is turning mud into magic.” Follow on Instagram and shopt here- https://www.etsy.com/shop/troymadeit

*Brittnay’s Baskets of Hope: “As part of our mission, we make and deliver baskets to celebrate the arrival of babies with Down syndrome that feature information and guidance for the parents and gifts of love and joy for the babies and their siblings”. https://www.brittanysbasketsofhope.org/ Follow her on social media to see all the beautiful babies that she highlights daily.

*Special Sparkle: Kelly creates beautiful hand made jewelry. https://specialsparkle.com/

21 Pineapples Shirt Company: Nate is on a mission “To change the way others perceive people with Down syndrome & other special abilities one Hawaiian shirt at a time”. https://21pineapples.com/

Bravo to these young entreprenuers who have created businesses with their passion and talents. Many of these business owners give a portion of their proceeds to help others. Thank you for taking a look at these enterprises that would make great gifts for the holidays. Please feel free to share and follow each on social media.

That’s what is in my noggin this week.

~Teresa 🙂

Follow Nick and navigating DS-ASD on Facebook and Instagram at Down Syndrome with a Slice of Autism

Posted in Down syndrome, Down Syndrome Awareness, Dual Diagnosis Down syndrome and autism

Blog #253~Down Syndrome Awareness Month

Posted on by Teresa Unnerstall

Blog #253~Down Syndrome Awareness Month

October is Down Syndrome Awareness Month. My son, Nick is 29 years old and has a dual diagnosis of Down syndrome and autism (DS-ASD). As a parent, writer and advocate, my mission is to educate others to better understand more about Down syndrome and autism. Down syndrome awareness is about promoting understanding, acceptance and inclusion of all individuals with Down syndrome in all aspects of our society.

Down syndrome also called Trisomy 21, is a condition in which a person is born with an extra chromosome.

For more information about Down syndrome click here @ http://www.ndss.org/Down-Syndrome/What-Is-Down-Syndrome/

Here are 7 easy ways that you can promote Down syndrome awareness and acceptance:

1. Post information and stories about individuals with Down syndrome on your social media platforms. You can follow many inspiring individuals on Facebook and Instagram like Nick at #Down Syndrome with a Slice of Autism. Here are a few of my favorites: #noahsdaddotcom #calebs_crew #brittanysbaskets #chrisnikic #dsdn #chucklesandmeatloaf #nothingdownaboutit #sean_from_born_this_way #troymadeit #abigail_the_advocate #theluckyfew #aceismyfriend #ndss #ndsc

2. Use and promote “person first language” to respectively speak about a person with a disability. Individuals with Down syndrome should always be referred to as people first. Instead of “a Down syndrome child,” it should be “a child with Down syndrome.” Also avoid “Down’s child” and describing the condition as “Down’s,” as in, “He has Down’s.”

3. Check with your local Down syndrome support group to see if they have promotional materials, like books and bookmarks that can be distributed at libraries and schools.

4. Many local Down syndrome support groups have public speakers available to talk with schools, businesses, community groups, hospitals, and other organizations.

5. Support or volunteer for local fundraisers like the Buddy Walk in your community @ https://www.ndss.org/play/national-buddy-walk-program/ .

6. Encourage your kids to volunteer for Special Olympics and Best Buddies programs through their school.

7. Check out my book A New Course: A Mother’s Journey Navigating Down Syndrome and Autism is helping so many readers understand both Down syndrome and a co-occurring Down syndrome and autism (DS-ASD). It’s available on Amazon. Please utilize the share buttons on social media and order your copy here: @ https://amzn.to/2W3Un6X 

Advocates for Down syndrome will tell you that “Down syndrome is just a part of who they are, not a definition of who they are”. The first step is awareness, the second step is acceptance and inclusion. Individuals with Down syndrome and their families want to encourage acceptance without judgement and change perception to see the whole person for who they are. Thank you for supporting and sharing information about Down syndrome awareness this month. Together we can promote understanding, acceptance and inclusion of all individuals with Down syndrome. That’s what is in my noggin this week.

~Teresa 🙂

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