Posted in Autism, Autism Safety and Wandering

Blog #62~Wandering and Autism, Part II

Blog #62~Wandering and Autism, Part II

One of the worst nightmares any parent can experience is a missing child. It’s awful to imagine that it can happen.  Being prepared is important in case the nightmare ever becomes a reality.

A few weeks ago in Blog #60~Wandering and Autism @   I wrote about a personal experience we had when Nick took off and provided some safety tips and links.  This week I want to expand on this topic and provide more resources that I have found.

I placed a call to our local police department here in Aurora, IL to see what systems they had in place for dealing with a lost child who has special needs.  The detective assured me that all missing child cases are handled as high priority.  Canine units are also utilized in searches as well.  I found it interesting that all intersections are equipped with cameras that are monitored 24/7.  Since this phone call I have provided the police department with the vital information about my son Nick, who has Down syndrome and autism.

Information to provide to local police department:

Child’s name

Home address with names of family members and phone numbers

Child’s diagnosis/ is the child verbal or non-verbal?

Physical features (height, weight, etc…)

Behavior concerns (no fear of danger, possibility of a meltdown, how to approach child)

Current school

Our address is now flagged in the department’s data base with this information.  Check with your local police department to see what system they have in place.  Some departments such as nearby Naperville and Plainfield, IL both offer the GPS bracelets (through the police departments) for special needs kids and the elderly with a tendency to wander.  The bracelet costs about $150.  Radio monitoring kicks in upon calling 911.  There is no cost and the police are in charge of this. If there is a financial hardship, check to see if the department will waive the cost of the bracelet. The device is called Care-Trak  (

caretrak bracelet

Here is another site with some great safety devices and information:

In addition, there are phone apps that are available for monitoring and providing information to the authorities about your child.  Here are a few that I found:

iPhone Baby Monitor ($4.99) acts much like a baby monitor does to watch your child while they are sleeping.

Kids ID ($3.99) Takes recent pictures of your kids so they are readily available, plus you can input their size, medical history, and other important data that would help law enforcement find your child as soon as possible. The app allows you to send all of your child’s information directly to law-enforcement agencies.

kids id phone app

KidStatz ($0.99) provides you with the opportunity to store information about your kids in the iPhone that can later be shared with law enforcement if they go missing. As with Kids ID, the app lets you to take a picture of your kids, input important identifying information, what kind of medical conditions they have, and any birth marks or other identifying information that might help law enforcement find your children. The app also provides a way to e-mail or call law enforcement to quickly react to your missing child.

Pictures and videos of your child in a natural setting (not forced smiles) are advisable to have available for officers as well.  If your child is drawn to anything (railroad, water, small spaces, etc..) be sure to include that information to the police department.

The following advanced GPS locaters range from $125-$250 and the monthly monitoring fees vary:

Angel Sense GPS tracking device (

Amber Alert GPS tracking device (

Trax GPS tracking device (

Being prepared and proactive is vital if you have a child who wanders or likes to bolt.  I hope these tips and links will help insure the safety of all children and especially those who have autism and other special needs.  That’s what is in my noggin this week!


Posted in Autism, Autism Safety and Wandering, Dual Diagnosis Down syndrome and autism

Blog #60~Wandering and Autism: 7 Prevention Strategies

Blog #60~ Wandering and Autism: 7 Prevention Strategies

Wandering and autism


“Car hits, kills 11-year-old autistic boy on the Katy Freeway” 

“Body found in pond is missing autistic child” 

“Autistic boy found dead, face down in a lake”

A lost child is a parent’s worst nightmare. Sadly, the headlines above are just a sample of instances involving wandering/elopement and autism all over the country.

Much like the wandering behaviors in seniors with dementia or Alzheimer’s, children and adults with an Autism Spectrum Disorder (ASD) are prone to wandering away from a safe environment.  A study done by The Interactive Autism Network through the Kennedy Krieger Institute found this: “49% of children with autism attempt to elope from a safe environment, a rate nearly four times higher than their unaffected siblings. Two in three parents of elopers reported their missing children had a “close call” with a traffic injury. Thirty-two percent of parents reported a “close call” with a possible drowning.”

I understand this fear all too well.  There have been a several occasions where Nick has wandered, taken off at the pool and bolted down the street.  Nick is 19 years old and has a dual diagnosis of Down syndrome and autism (DS-ASD).  He has deficits in the areas of language and cognitive function which limits his understanding of safety.  He has no concept of danger.

One day when Nick 11 years old he was on the swing set in the backyard.  His Dad stepped inside to grab a baseball hat for a second.  Something made me stop and put down the garden shovel next to the flat of flowers. I walked around to the backyard.   He was gone.

Al came out the patio door.  I shouted to him, “Did Nick go inside?”

“No, I just came in for a second to grab a baseball hat.”

I felt a hot wave run through my body as I climbed up the burm, the slow crested hill that separated the backyard from the busy street.

downsized_0511010726 (2)

Al had recently ruptured his Achilles tendon and was wearing a therapy boot.  He hobbled up slowly behind me.  There was nothing but a stream of fast-moving cars pacing the road behind our house.

 I called out to his older brother, “Hank, go to the front and check with the neighbors and see if anyone saw him okay. Do it now!”

My neighbor came over, “I saw him a few minutes ago.  He got off the swing and started chasing a bunny.”  He pointed his finger left, “He ran that way.”

In the Midwest, the yards blend from one to the next in a seamless row like football fields connected one after the other. I squinted hoping to see some movement.  There was nothing,  just eerie silence. I took off running.  A dozen houses down, nothing.  Over ten minutes had passed since he had gone missing. I was in panic mode, my body was shaking and legs began to fatigue.  I kept sprinting but there were only five houses left before the subdivision entrance.   Suddenly, I saw a small figure running. “Nick stop now!”

He just kept going.  My strides turned into leaps.  I caught up with him 2 houses before he reached the subdivision entrance.  He looked at me as if nothing was wrong.  We walked in silence back home.  I gripped his hand tightly and counted how many houses he had run passed.  Final count=20 houses!

It makes me sick to my stomach recalling that horrible day. We have since put some things in place as a precaution to keep Nick safe. What can families do to insure the safety of their child?  In my research, I found an excellent website called AWAARE which stands for Autism Wandering Awareness Alerts Response  This site has a comprehensive list of tips, materials and tools.


1. Secure your home

Install secure door locks, home security systems, install inexpensive battery operated alarms on door and window to alert when opened. Place hook and eye locks on all doors above your childs reach.  Fence in the yard and put visuals like stop signs to doors.

Here is what we have on our doors…….

photo (115)

2. Get an ID Bracelet

Medic Alert,  is what Nick wears and it stays on him firm.

photo (116)

Another popular bracelet is called Project Lifesaver,

3. Consider a mobile tracking device

Project Lifesaver (, Angel Sense and LoJack SafetyNet ( services have wrist and ankle tracking devices.  There are many other mobile GPS tracking systems you can purchase at Best Buy and other big box stores along with phone apps as well.  See the resource page on the AWAARE website above for more information.

4. Teach your child to swim

A large percentage of the headlines for wandering and autism end tragically because of drowning deaths.  Children are often drawn to water.  Check your local YMCA or special recreation association for swim lessons.

autism missing pic

5. Alert your neighbors

Make a simple handout with your name, address, phone number, information about your child (autism, non-verbal etc….) and include a photograph of your child.   Ask them to call you immediately if they see your child outside of your home.

6. Alert First Responders

Provide the local police and fire stations with key information before an incident occurs. Ask your local police department if they have a data base and registration program for individuals with special needs. See the AWAARE website given above for printable handouts.  There is also a free Big Red Safety Toolkit with free downloads on wandering and prevention.

7. Work with an ABA Therapist on a Behavior Plan

A BCBA certified behavior therapist can help with understanding the child’s goal and triggers that cause them to wander. The child may be trying to get to something they prefer, or avoid something they don’t want to do. When you can determine the function of this behavior, you can put supports and strategies in place to decrease wandering or bolting. If the behavior is occuring in school, address this with the IEP team and put measures in place to insure safety for your child.

Nick still requires 24/7 supervision and the house is sealed up like Fort Knox.  As a family we have to make sure there is always a designated watchman.  After doing this research on autism and wandering, I understand the necessity to be proactive and more responsible. Next stop: Make a call into the local police and fire stations to see what they have in place for wandering and persons with autism and other special needs in our community.   Discussion of this topic needs to continue.  I will be researching more tracking and monitoring devices.  Look for this on Part Two of  Autism and Wandering within the next two weeks.

That’s what is in my noggin this week!

~Teresa 🙂

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