DS-ASD~ What To Do When It’s More Than Just Down Syndrome
If you are a parent, teacher, caregiver of extended family member of an individual who has Down syndrome, you are aware of how challenging it is to hit those developmental milestones. There are even more speech deficits, sensory integration problems and challenging behaviors associated with a dual diagnosis of Down syndrome and autism (DS-ASD). My son Nick is 25 years old and has DS-ASD. Years ago we suspected that his behaviors and speech delays were perhaps more than just Down syndrome. We got a clinical, medical evaluation to determine that he also had autism. Getting the secondary diagnosis enabled us to receive additional services and support.
Additional Services and Support for DS-ASD:
Speech and Augmentative Alternative Communication
Behavior Support Plan (BSP) and Applied Behavior Analysis (ABA)
Specialized Training for Toileting
Federal and State Funding for Respite Care and Equipment
Support Groups for DS-ASD families online and on Facebook
Besides the additional services and support, we got validation that our son’s challenging behaviors and speech deficits were more than just Down syndrome. This gave us a peace of mind as a family, that we were no longer alone on this new path.
To read more about additional services, support and links related to a dual diagnosis of Down syndrome and autism (DS-ASD) click here:
Getting the secondary diagnosis of autism opened up new avenues for our son to get help with communication and tackle the unique behaviors that hindered his progress both at home and school. This made a huge difference in all aspects of his life and ours. It’s a very different path than just Down syndrome, but with support your child and family can navigate it more smoothly. That’s what is in my noggin this week.
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