Posted in Autism, Down syndrome, Dual Diagnosis Down syndrome and autism, IEP (Indivdualized Education Plan)

DS-ASD~IEP’s and Advocating for Your Child

Do you have an IEP coming up for your child? Are you currently having concerns about your child’s IEP? Click on the following link to learn how to advocate for your child and collaborate with the school IEP team more effectively:

https://nickspecialneeds.com/tag/parent-input-in-iep/

Parents are an equal and vital part of the IEP process and team. Remember you know your child the best. That’s what is in my noggin this week.

~Teresa 🙂

Follow my son Nick, age 25 with a dual diagnosis of Down syndrome and autism (DS-ASD):

Facebook and Pinterest @Down Syndrome With A Slice Of Autism

Instagram @nickdsautism

Twitter @tjunnerstall

Posted in Adult Day Programs for Special Needs, Autism, Autism Spectrum Disorder (ASD), Dual Diagnosis Down syndrome and autism

Autism Awareness Month: Final Thoughts

Autism Awareness Month: Final Thoughts

autism awareness 2016

April is Autism Awareness Month, and I’ve written all month how awareness is not enough. Individuals with autism and their families need understanding, acceptance and inclusion in society. Individuals on the autism spectrum (ASD) need various levels of support to become as independent as possible. This type of support can’t be provided without funding.

Here’s a sobering fact- “In the documentary, Autism: Coming of age it is reported that in the next 10 to 15 years, an estimated 800,000 children with autism will age out of the school system and transition into adulthood. Then, they will look to ill-prepared state and federal governments for the support services and resources to meet their many needs — a situation autism experts refer to as the “coming tsunami.

tsunami

Slapping an autism awareness ribbon on a car, isn’t enough anymore. Individuals with autism need various levels of support, and a person centered planning (PCP) to prepare for adult life.

person centered planning

“Wikipedia defines person-centered planning (PCP) as a set of approaches designed to assist an individual to plan their life and supports. It is most often used for life planning with people with learning and developmental disabilities, though recently it has been advocated as a method of planning personalized support with many other sections of society who find themselves disempowered by traditional methods of service delivery, including children, people with physical disabilities, people with mental health issues and older people. PCP is accepted as evidence based practice in many countries throughout the world.”

Person Centered Planning (PCP) is individualized. It can help identify opportunities for employment, community participation/enrichment activities and living arrangements for adult life.  PCP can be done with the school IEP team, to prepare the student for a bright future based on their strengths and needs.

Autism is not going anywhere, the wave is coming in hard. There is a staggering amount of families on waiting lists for state funding who are aging out of the school system. My son Nick is 25 years old and has a dual diagnosis of Down syndrome and autism (DS-ASD). He required a high level of support. Currently, Nick attends an adult developmental training program that is covered by funds through a state waiver. All across the country thousands of families are on long waiting lists, to seek such funds to support their child with autism and other intellectual and developmental disabilities. The conversation to advocate for individuals with autism must continue well past April before that tsunami wave hits the shore!

That’s what is in my noggin this week.

~Teresa

Follow Nick on Social Media:
Facebook and Pinterest @Down Syndrome With A Slice Of Autism Check 4/27 Facebook post to watch the documentary, Autism: Coming of Age
Instagram @nickdsautism
Twitter @tjunnerstall

 

 

 

 

 

 

Posted in Autism, Autism Spectrum Disorder (ASD), Dual Diagnosis Down syndrome and autism

100 Facts About Autism

100 Facts About Autism

autism did you know

April is Autism Awareness Month, but it’s much more than promoting awareness. Individuals with autism, their caregivers, and advocates want to encourage better understanding, inclusion and acceptance of autism spectrum disorder (ASD).

Here is a quick and easy read of 100 facts about autism, that you can finish in less than 10 minutes:

https://nickspecialneeds.com/2018/04/23/blog-203-100-facts-about-autism/

When we have a better understanding about autism, we can help to promote acceptance and inclusion for individuals with ASD. Much can be gained in our society when we begin to accept people for who they are, and understand and embrace their differences.

That’s what is in my noggin this week.

~Teresa 🙂

Follow my son Nick (dual diagnosis of Down syndrome and autism, DS-ASD):

Facebook and Pinterest @Down Syndrome With A Slice Of Autism
Instagram #nickdsautism
Twitter @tjunnerstall

 

Posted in Autism, Autism Safety and Wandering, Dual Diagnosis Down syndrome and autism

Wandering and Autism: 7 Prevention Strategies

 Wandering and Autism: 7 Prevention Strategies

April is National Autism Awareness Month.  According to the National Autism Association, “Nearly half of children with autism engage in wandering behavior. Wandering occurs across all settings, under every type of adult supervision”.

Eloping picture and definition

There are safety precautions and prevention strategies families can put in place to secure a child that may run, bolt or wander.  I’ve had a few scares with my son over the years.  My son Nick is 25 years old and has a dual diagnosis of Down syndrome and autism (DS-ASD). Nick has no concept of the danger, and he can be fast; so we are always on high alert both at home and in the community.

A few years back, I wrote a blog addressing elopement which includes 7 prevention strategies. Here is our story of a scary day when Nick went missing, and what we’ve put in place to avoid wandering since then.

Click to read 7 Prevention Strategies for Wandering and Autism: https://nickspecialneeds.com/2013/07/01/blog-60wandering-and-autism/

Wandering and autism

Wandering is a real risk for individuals with autism and other special needs. Putting a plan with prevention strategies in place at home, school and in the community can reduce the risk of your child to elope and provide security for you as a family.  That’s what is in my noggin this week.

~Teresa 🙂

Follow Nick:

Facebook and Pinterest @Down Syndrome With a Slice Of Autism

Instagram #nickdsautism

Twitter @tjunnerstall

 

Posted in Autism, Autism Spectrum Disorder (ASD), Dual Diagnosis Down syndrome and autism

Autism Awareness Month,5 Ways You Can Help

Autism Awareness Month, 5 Ways You Can Help

autism awareness 2016

April is Autism Awareness Month, but it’s much more than promoting awareness.  Individuals with autism, their caregivers, and advocates want to encourage better understanding, inclusion and acceptance of autism spectrum disorder (ASD).

Here are 5 easy ways you can help promote awareness, understanding, inclusion and acceptance for individuals with autism:

https://nickspecialneeds.com/tag/autism-5-ways-you-can-help/

Each of us can do our part to help individuals with autism feel more welcomed in their communities. Much can be gained in our society, when we begin to accept people for who they are, and understand and embrace their differences.

That’s what is in my noggin this week. 🙂

~Teresa

Follow my son Nick (dual diagnosis of Down syndrome and autism,DS-ASD):

Facebook and Pinterest @Down Syndrome With A Slice Of Autism

Instagram #nickdsautism

Twitter @tjunnerstall

 

 

Posted in Autism, Autism Spectrum Disorder (ASD), Dual Diagnosis Down syndrome and autism

World Autism Day-April 2nd

World Autism Day- April 2nd

World-Autism-Awareness-Day_ss_323229098

On April 2nd, World Autism Awareness Day, we celebrate and recognize individuals on the autism spectrum, and promote fundraising and researching initiatives. In addition, this day is about promoting awareness and inclusivity for people with autism across the globe.

April is National Autism Awareness Month to promote autism awareness, understanding, acceptance and inclusion, drawing attention to the tens of thousands facing an autism diagnosis each year.

Click here to read more about World Autism Awareness Day and National Autism Awareness Month: 

https://nickspecialneeds.com/2018/04/02/world-autism-awareness-day/

World Autism Awareness Day and National Autism Awareness Month is a great time to advocate for understanding, acceptance and inclusion, it’s essential to advocate for children, and adults, with autism year-round.

That’s what is in my noggin this week.

~Teresa 🙂

Follow my son Nick (DS-ASD):

Facebook and Pinterest @Down Syndrome With A Slice Of Autism

Instagram #nickdsautism

Twitter @tjunnerstall

Posted in Autism, Behavior/ ABA, Down syndrome, Dual Diagnosis Down syndrome and autism

DS-ASD,How to Manage Throwing and Dropping Behaviors

DS-ASD, How to Manage Throwing and Dropping Behaviors

Over the weekend I read several posts on Facebook dual diagnosis of Down syndrome and autism (DS-ASD) groups.  Many parents were seeking help and guidance.  Their big question was- How to manage throwing and dropping behaviors?  My son Nick is 25 years old.  He has  a dual diagnosis of DS-ASD, and his fair share of these two behaviors.  Short of waving a magic wand, these undesirable behaviors can be curtailed with behavior management.

magic wand (2)

The first step is to determine what function the target behavior is serving.  When you can decipher what purpose the behavior has for a child, and when these occur, you and the IEP team can come up with a plan for behavior management. A behavior support plan (BSP) can outline strategies and replacement behaviors that are more suitable and desired both at school and home.

You can read more about how identify the function of behaviors and put a positive behavior support plan in place for dropping and throwing by clicking on the following link:

https://nickspecialneeds.wordpress.com/2012/04/17/blog-3-getting-your-goat/

This is one of the first blogs that I wrote back in 2012, that provides a blueprint on how we managed the throwing and dropping behaviors with my son, Nick. Blog #3~DS-ASD Getting your goat, still happens to be one of my favorites, to this day. 🙂

The current status of dropping and throwing behaviors with my son varies from day-to-day.  The function is still boredom and attention seeking and somewhat sensory related, when we as his parents, are busy around the house. Since 2012, Nick has more jobs around the house like recycling, unloading the dishwasher, vacuuming, and helping to roll the garbage and recycling bins to the  curb. Heavy work activities are part of a good sensory diet that are calming and organizing to the brain. I still have to remind myself not to let Nick get my goat.  But instead, I try my best to respond, and not react.  I highly recommend this great resource book, by David S. Stein, Psy. D., to learn more about behavior management:  

Book Supporting Positive Behavior DS

Behavior management can help decrease the incidences of negative behaviors such as throwing and dropping in children, teens and adults with a dual diagnosis of Down syndrome and autism (DS-ASD).  Collaborate with the IEP team and a certified BCBA therapist to do the detective work with a functional behavior assessment (FBA) that can lead to a positive behavior support plan (BSP).  Remember always try to respond and not react, when your child is trying to get your goat.

That’s what is in my noggin this week.

~Teresa 🙂

Follow Nick:

Facebook and Pinterest @Down Syndrome With A Slice of Autism

Instagram #nickdsaustism

Twitter @tjunnerstall

 

Posted in Autism, Down syndrome, Dual Diagnosis Down syndrome and autism, Education and Special Needs

DS-ASD~Evaluating Your Child’s Progress Mid School Year

DS-ASD~Evaluating Your Child’s Progress Mid School Year

progress report

Spring is right around the corner. This is a good time to check in and see how your child is progressing with IEP goals and behavior. A child with a dual diagnosis of Down syndrome and autism (DS-ASD), may have additional deficits in speech and challenging behaviors.

Mid-year is a critical time to re-evaluate the teaching methods and current goals set in place, to help your child succeed. Here are five things parents can do now, to take action before the school year ends: https://nickspecialneeds.com/2018/03/12/blog-199take-action-before-the-school-year-ends/

Keep the lines of communication open with school staff, review IEP goals and progress and collaborate with the IEP team to ensure supports are in place so your child will have a strong finish to the school year.  Checking on your child’s progress will help you and the school staff be on the same page at the next IEP meeting.

That’s what is in my noggin this week. 🙂

~Teresa

Follow Nick:

Facebook and Pinterest @Down Syndrome With A Slice Of Autism

Instagram #nickdsautism

Twitter @tjunnerstall

Posted in Autism, Behavior/ ABA, Down syndrome, Dual Diagnosis Down syndrome and autism

DS-ASD~Getting Additional Services and Support to Help Your Child

DS-ASD~Getting Additional Services and Support to Help Your Child

Are you a parent of a child with a dual diagnosis of Down syndrome and autism (DS-ASD)?  Or do you have a child that you suspect may have an additional diagnosis of autism along with Down syndrome?  My son, Nick is 25 years old and has a dual diagnosis of DS-ASD.  When we got the secondary diagnosis of autism, our son was able to receive additional support and services both in school and home.

This week, I want to share some of the additional services, support and resources that has helped us to navigate the dual diagnosis of DS-ASD with our son, Nick.

down syndrome and autism bracelet

Click on the following link to learn more: 

https://nickspecialneeds.com/2016/09/12/blog-155more-than-just-down-syndrome/

Navigating the path of a dual diagnosis of DS-ASD with your child has its challenges.  But there are many services, supports and resources that can enable parents and educators to help a child with DS-ASD.  Obtaining these services does take patience and tenacity, and it doesn’t happen overnight. (In fact, getting these services and supports took several years for us.)  But all of these tools will better equip you as a parent to take on the secondary diagnosis of autism, along with Down syndrome.

That’s what is in my noggin this week. 🙂

~Teresa

Follow Nick:

Facebook and Pinterest @Down Syndrome With A Slice Of Autism

Instagram #nickdsautism

Twitter @tjunnerstall

 

 

 

Posted in Autism, Down syndrome, Dual Diagnosis Down syndrome and autism, Fun Side of Nick

DS-ASD~Nick’s World Update

DS-ASD~Nick’s World Update

There are lots of cool things going on in Nick’s world right now.  My son, Nick just celebrated his 25th birthday last week.  He has a dual diagnosis of Down syndrome and autism (DS-ASD).

Nick and his Dad celebrating their birthdays….

 

A week earlier, Nick enjoyed dog sledding in Vail.  This was our second time to do this with Mountain Mushers, I highly recommend it.  I  wrote about our vacation last Monday.

If you missed last week’s blog about it, click here to read all about it: https://nickspecialneeds.com/?s=blog+%23229

Nick dog sled 2019

I am excited to share that, I’ve finished my memoir about the journey of raising Nick!  My editor just sent back revisions that will be keeping me busy.  So, for the next month or so, I will be highlighting some of my favorite, past blog posts.  I’ll plan on sharing both light-hearted and informative pieces.

This week, I am sharing Blog #100 which includes 20 tidbits about Nick.  Click here to read:

https://nickspecialneeds.com/2014/06/23/blog-10020-tidbits-about-nick/

That’s what is in my noggin this week.  Be sure and follow Nick on social media where you will find lots more pictures and videos of Nick’s world.  The links are listed below.

~Teresa 🙂

Follow Nick:

Facebook and Pinterest @Down Syndrome With A Slice Of Autism

Instagram #nickdsautism

Twitter @tjunnerstall