Posted in Adult Day Programs for Special Needs, Autism, Down syndrome, Dual Diagnosis Down syndrome and autism

Nick~Spring Update

Nick~Spring Update

dandelion two

At last, spring has arrived in Chicago.  Here’s what Nick has been up to this spring at his adult day program.  My son is 23 years old and has Down syndrome and autism.  Each day he engages in a variety of activities at this program.

Nick continues to have both in-house and community vocational jobs.  These include stocking shelves at a local food pantry, stuffing church bulletins and cleaning at GiGi’s playhouse.  He recently got a paid job in-house, crushing and recycling cans.

nick-vacumme-gigis

Other community activities in Nick’s day program include visits to the library, shopping, and local parks.  In house, the adult day program has many enrichment activities such as art, work bins, cooking, fitness, and gardening.  They have taken the carrot and broccoli pods which were started indoors this winter, and planted them outside.  His group also bought and spread mulch on the outdoor beds.

In cooking, they’ve made shepherds pie, fruit pizza, hot dogs & sloppy joes with fries, and biscuits with gravy.  They have so much fun playing bingo and having holiday theme parties.  For St. Patrick’s Day they made shamrock shakes, and for Cinco de Mayo they made burrito bowls.  Recently, the moms were invited to his room for a Mother’s Day tea.  Nick was very excited to have me visit.

Mother's Day Tea

Outside of Nick’s adult day program, he keeps busy with his respite workers.  He enjoys going to local parks,  the library, movie theatre and restaurants.  He’s a regular at Culvers and CiCi’s Pizza each week.  We are very fortunate to have such dedicated caregivers with Lara, Jodi and Kelsey, who he loves very much.

I’ve painted a pretty and serene picture of Nick’s world this spring.  But it’s not all dainty flowers and colorful rainbows.  There are quite a few dandelions scattered in the mix.

dandelions

He continues to challenge us all with undesirable behaviors, like button pushing, throwing objects, blowing snot rockets and wiping them all over the place along with a lot of tapping and stimming.

Nick got a hold of a gargantuan tapper to stim on last week 🙂

Nick gargantuan tapper

There have been some milk thistles popping into the picture as well.  Last week he managed to add to his tally of fire alarm pulls, getting one at his day program.  So the alarm count stands today at 44 pulls.  OUCH!

milk thistle

The mix of cold weather and rain has led to some serious cabin fever this spring.  Here’s to warmer weather and getting my “one man wrecking crew” outdoors.  I’m grateful that Nick has a wonderful day program to go to, along with awesome respite workers that he loves.  He has a fulfilling life, and I get some peaceful time to myself.   Cheers to an abundance of flowers this spring, with fewer thorns.

That’s what is in my noggin this week. 🙂

~Teresa

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Posted in Adult Day Programs for Special Needs, Augmentative and Alternative Communication (AAC), Autism, Down syndrome, Dual Diagnosis Down syndrome and autism, Recreation/Leisure and Special Needs

Blog #154~Adult Day Program 6 Month Update

Blog #154~Adult Day Program 6 Month Update

On my son’s 22nd birthday this past February, the little yellow bus stopped coming to the door.  My son, Nick has Down syndrome and autism and has aged out of school.  For the past 6 months,  Nick has been going to an adult day program.  This week I want to share some of the activities he’s been doing in this excellent program at the Keeler Center.

Nick’s adult day program is filled with many fulfilling activities each day.  Mondays are dedicated field trip days.

Here are some of the places Nick has visited in the community:

Shedd Aquarium

Library

Brookfield Zoo

Fabyan Park Japanese Garden

Fox Valley Park District Greenhouse

Phillips Park

Red Oak Nature Center

Art Studios

Fermi Lab

Local restaurants (Noodles & Company, Dunkin Doughnuts, Culvers, Colonial Café, etc..)

In the facility, Nick participates in a variety of activities:

Vocational jobs (cleaning and vacuuming sensory room, recycling, shredding, work  bins, gardening, menu planning, cooking, etc..)

nick vacumming aid

Social circle (News to You, greeting and using AAC devices)

Science projects

Table and bin work

Nick work aid

Arts and Crafts (for art fairs, mothers/father’s day, making cards, painting, etc..)

Recreational (gym activities, yoga, etc..)

Nick yoga AID

Fun Fridays (Holiday theme parties, dancing, karaoke, games, concerts, cookouts, movies, etc..)

Speech therapy (insurance private pay), to work on articulation and using his AAC device

Outside the facility, his group does community recycling, shopping for cooking day as well as volunteer jobs.  One of the sites is at a local church, (stuffing bulletins and cleaning the nursery).  The other workplace is at a food pantry, where they organize and stock inventory, like dried beans, cereal and peanut butter.

Nick recycling

Nick has a full life and rewarding activities in his adult day program. The staff is very dedicated, caring, welcoming and patient.  Yes, patient! Nick’s pulled several fire alarms the last few months.  The behaviorist on staff  has put a plan in  place, and met with the staff to curtail this ongoing problem. Hey, it’s Nick’s world, the rest of us are just trying to keep up. The current fire alarm pull count is now 40 pulls since 3rd grade.

While his speech is limited due to having a dual diagnosis of Down syndrome and autism, I can tell that he is very happy in this program.  How do I know?  When I wake him up in the morning he is excited to get dressed and out the door.  The other day I was driving him and his buddy Josh to the site.  Just before we crossed over the Fox River, Nick started saying “Keeler” with a big thumbs up.  It warms my heart knowing that Nick is happy and contributing to society. That’s what is in my noggin this week.

~Teresa

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Posted in Adult Day Programs for Special Needs, Autism, Down syndrome, Uncategorized

Blog #137~Nick’s Adult Day Program

Blog #137~Nick’s Adult Day Program

Nick is just about a month into his new adult day program.  My son just turned 22 years old and has Down syndrome and autism.  The month before his 22nd birthday he was attending the program part time.  Gradually we increased his days and hours during the month of January.  This made for a nearly seamless transition out of school to his new location.

The one bug in the whole process has been the transportation piece.  The first try was using a riding service through our county.  This was a fail.  There was a different driver every time, and you had to pay cash $13.50 each way.  The final nail in that coffin was a driver who (as reported by Nick’s job coach), was speeding, weaving in and out of traffic and throwing his leftover lunch out the window.  The next driving service we tried were caring and nice.  However they were never on time and cost way much more money ($27.50 each way) Ouch!  Currently, we’ve hired a lovely gal who is taking Nick in the mornings.  Kelsey has been a godsend.  She said that Nick is the best way to start her mornings. 🙂

Nick in car aid

For the time being, I am picking him up each afternoon.  Ideally, I hope to find another driver or find someone to share carpool duties with as it really cuts into my schedule. Otherwise I’ll paint my car taxi cab yellow. 😀  Stay tuned……

Nick has adjusted well in his new program.  Here are a few snapshots:

Vocational tasks….. (What, he’s not spraying anyone in the eye or drenching a flat screen tv?)

Nick cleaning aid.jpg

Nick relaxing in the sensory room….

Nick sensory aid

In his new program, the group goes out into the community three times a week.  He has already been to the Shedd Aquarium, recycling & food pantry jobs, shopping for cooking supplies and eating out at restaurants. The program also has special days with themes like Elvis Day, soul food cooking, Valentine’s Day party and monthly birthday celebrations.  The staff is caring and they really love what they do.  Nick has been very happy here.

Yes, there have been a few behaviors that have challenged the staff. That’s to be expected.  Nick can spot fresh meat and will test you.  But last week and the follow up meeting, the behaviorist felt these were manageable.  It really helped that the school sent his job coach with him during the transition.  Jodi, was able to help the staff understand these and guide them on how to handle Nick.  So far, he has only got to the cover of a fire alarm. I had my money on him pulling one the first week. 🙂

As Nick’s mom, it warms my heart to know that his days are full, structured, meaningful and that he is happy in his new adult life. That’s what is in my noggin this week.

~Teresa

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