Posted in Autism, Behavior/ ABA, Fun Side of Nick

Blog # 10 Nano Second!

Last Friday, Nick and I celebrated the end of school with a trip his favorite eatery, Taco Bell.  I like the one off 75th street in Naperville because there are no fire alarms in site for him to grab.  Yes, Nick has an obsession with fire alarms.  Since 3rd grade he has pulled 25 of them total.  For the record he has only got me twice and it only took a nanosecond!  Nick is always looking for the opening, that one moment when you aren’t paying attention.  That is the instant when he will strike.  The first fire alarm pull on my watch happened as I was fumbling to get my keys out of my purse.  He lunged across my body and clawed at the alarm before I could even try to block him.  Yes he’s that fast!

The object of his envy…..

So back to Friday lunch, I was glancing at the menu board to find something remotely low calorie when Nick grabbed a set of keys that a man in front of us had set down on the counter next to his newspaper.  Just before he pushed the red panic button on the remote I scooped them up.  Mom 1, Nick 0!

If you are around Nick for any given period of time you develop razor sharp reflexes. Let me put a lens on this. Here is a series of encounters that happened just this week.  On Sunday, my husband Al left Nick inside while he rolled up the hose reel. In merely two minutes he came back into the kitchen where Nick had wildly ransacked the refrigerator leaving the door wide open.  He had pulled out several things including two bottles of salad dressing.  The ranch dressing rested on the island with the cap off and was only spared because it was nearly empty.  Clearly, that wasn’t satisfying enough. But the full bottle of Asian Sesame was wrapped between his hands, turned upside down while he stood there choking it like a chicken as the rose colored liquid drained onto the floor.  Nick 1, Al 0!

A few days later while rolling the garbage cans halfway down the driveway Nick thought it would be funny to push the garage door button (again with the buttons!)  I stopped short in my tracks sprinted back and ducked under with my heart pounding just before I got locked out of the house.  I won that round, barely!

On Thursday we had a nice visit with Rob, a former teacher/respite worker.  Incidentally, Rob carries the esteemed title of being #20 on the fire alarm pulls.  About halfway through our visit I began to hear the sound of running water from upstairs.  Moments later the pitter patter of Nick’s footsteps followed by what I can only describe as a dastardly laugh  as the vein popped out of his forehead.   Clearly he was delighted. Rob offered to go upstairs and see what was going on.  As he came around the corner back into the kitchen he stood there holding his flip flops which he had politely left by the front door. They were dripping wet!

Nick and Rob….

Oh and let me not fail to mention that Hank left his bathroom door unlocked. I had just mopped the floor…. Cue the sound of the glug, glug….glug of Crest Fluoride rinse spilling over the banister.

A few hours later… as I put the finishing touches on the master calendar…. I might have left my pen out while I put of load of clothes in the dryer….uh oh…Nick inserted his intents…

Which brings me to Saturday, what more can he possibly do?  Nick is crafty and as I mentioned before he is always looking to find your weak point.  On this particular morning I was trying to get ready to go teach a step aerobics class.  While upstairs getting ready, Nick was in the kitchen pushing the popcorn button on the microwave followed by the intercom button on the phone.  A few minutes later in the midst of putting on my lycra spandex he made a nice Jackson Pollack design using toothpaste which he squirted in a swirling and splattered pattern from the second floor….(yes, the usually dumping spot, I am thinking of putting a plastic baby pool down any day now.) Thinking that I was staying one step ahead of him I carried my coffee with me into the closet while I changed.  However I accidentally left the mug there as I went back into the bathroom and bam, that is when he emptied it out onto the collar of my warm up jacket.  Nick 4, Mom 0….

This is going to be a long summer!

Even with the cabinet door locks back on he still manages to find ways to dump.  His goal is always trying to get our goat (see blog # 3 for more of Nick’s shenanigans.) He is *nano second fast and he will get you. I would love to hear any fun stories you have of Nick pulling one on you.  Send me your experiences with Nick and I will write a follow piece with all of your perspectives. Please e-mail your encounters with Nick to tjunnerstall@comcast.net.

There are no lessons to be learned or wise words to offer this week, except to say that I know better. I should have found something for him to do while I was busy in my realm.  So this week I simply want to offer a slice into Nick’s world….the rest of us is just trying to keep up.  That’s what is in my noggin this week.  Until next Monday, may you be on point and razor sharp as you take on the week ahead.

~Teresa 🙂

* Nano Second according to Answers.com is One billionth of a second. Used to measure the speed of logic and memory chips, a nanosecond can be visualized by converting it to distance. In one nanosecond, electricity travels approximately a foot in a wire. Admiral Grace Hopper was famous for handing out strands of “telephone wire nanoseconds” to her audience whenever she lectured about technology. Holding the wire turns the unreal concept of a billionth of a second into reality.

Posted in Autism, Behavior/ ABA, Down syndrome, Education and Special Needs

Blog #3~DS-ASD, Getting Your Goat

Blog #3~DS-ASD, Getting Your Goat

  • Eggs
  • Celery
  • Balsamic vinegar
  • Olive Oil
  • Parsley
  • Fajita seasoning
  • Merlot
  • Penne pasta noodles
  • Laundry detergent
  • Acne wash
  • Fluoride rinse
  • Shaving cream
  • Whey protein powder
  • Shower gel
  • Hand lotion
  • Baby powder

That’s the short list and I don’t mean grocery list.  It is just some of the stuff that Nick has gotten his hands on and dumped out on the kitchen floor. I wish I could say that I am rewinding to back when Nick was age six.  But this is the here and now; the flavor of the week (or in this case for the last year or so.) Nick is 18 years old with a dual diagnosis of Down syndrome and autism.  This makes for an interesting mix of behaviors.

I have consulted teachers, therapists and behavior specialists in autism.  After they have a good laugh at the list, the conclusion is the same. First, it could be a sensory issue.  Nick seeks out many odd things to look through, tap and stim on and perhaps the act of dribbling out a tube of Mederma skin lotion from the second floor banister is satisfying some sensory need.   The second theory is that Nick is seeking attention and looking for a reaction. All I know that it is very hard to keep your cool when you see a full 64 ounce, Costco size container of olive oil emptied all over the floor. Fortunately I get my paper towels at Costco too. 🙂 I will say that the floor and my knees have a nice sheen to them.  Then there is our  poor cat, Miss Mellie sleeping innocently while Nick sprinkles a half bottle of fajita seasoning all over her gray fur.  Okay, I had to run into the other room and laugh on that one.

Freshly seasoned and washed cat…..

photo (113)

The dumping is just one facet.  Nick is like a toddler putting all kinds of things in the toilet.  A package of pens, my reader glasses, his iPod nano and his Dad’s watch are just a few of the things he’s submersed.  The newest trick is putting your shoes in the sink and running the water faucet full blast.  Here’s the thing.  He commits the crime, runs downstairs pointing up with a grin on his face and says “Uh oh.”  He is always looking to get a response.  It is not easy to keep a poker face during these episodes.  However I look at it like this, Nick is just trying to *”get my goat”.  The goat is a metaphor for a state of calm and peacefulness.  I grit my teeth, make absolutely no eye contact. On a shelf near the kitchen now stands a stack of permanently borrowed, white gym towels.   I point to the pile and he grabs a towel and cleans up.  No reinforcement is given to him.

Better put Mederma on the list…….

Not all the things he does are this messy.  Sometimes they are just plain funny, like a baby doll in the Pierogis….

So how can these inappropriate, attention seeking behaviors be managed?  First, the incidences are documented on what is called a Functional Behavior Assessment (FBA). On the form I record the date and time of the incident. Then follow the ABC’s:

Antecedent= What happened before the behavior

Behavior= The actual behavior and incident that occurred

Consequences= What happened after the incident

After looking at ABC ‘s, one can see if there is a common thread and determine why they might be doing the behavior.  As I mentioned in my very first blog entry, every behavior (even the bad ones) are trying to communicate something.  In some cases, it’s a sensory seeking reason.  Think about it- the sound of an object breaking or sight of a mess spilling or shattering all over the floor is exciting.  In the case of dumping, often it is when a parent is busy around the house, on the phone or trying to get ready to go to work.  It is clear that Nick is bored and seeking our attention while we are busy.  But mostly, I think it is a “control thing” for him.  It is something that HE has power over in his own life.

With this information a positive Behavior Support Plan (BSP) can be developed targeting undesirable behaviors.  Look at what possible replacement behaviors could be put in place instead.  This is where the “choice board” comes in.  This board has appropriate choices in the form of icons which he can pick from to better occupy his time. These choices should be highly preferred and stored away, so they are not accessible.  Below is a sample choice board.  The drop box is filled with fun things to throw and dump, followed by the woopie cushion, DVD player and iPod touch:

The final piece will be to add an icon to indicate that the behavior he did was wrong.  If he can see it in visual form, he will understand it.  This is to be done again without eye contact so as not to reinforce the attention he is craving.

Icon to show for inappropriate behaviors:

angry face

In the meantime, as I put the final touches on this piece, I turn around to see Nick unloading the dishwasher by himself.  This is a something he has complete control over (and is really adept at doing by himself).  I smother him with praise, “Good job big guy, I am so proud of you”.  Catch your child being good and reward them with the positive reinforcement.

Way to go Nick! 🙂

Show the icon for appropriate behavior:

happy face

All of these visual supports need to be done consistently across the board in every venue (home, school and community.) Hopefully with this plan in action, we can cut down on the dumping.  At this point in our lives we shouldn’t be dealing with this type of behavior or having to reinstall safety locks back on all the cabinet doors.  What can I say- It’s Nick’s world, the rest of us are just trying to keep up.  That’s what is in my noggin this week.

Here’s to not letting anyone get your goat*!

~Teresa 🙂

*The expression ‘to get your goat’ has its origins in horse racing. Race horses are very high-strung animals. Goats are often used as companion animals, to keep a horse calm. Someone wanting to fix a race would slip into the barn the night before the race, steal the goat, and then an upset, distracted horse would run a bad race. Hence, if you are upset and not at your best, it is said that ‘someone has gotten your goat.’

Nick age 5 with our next door neighbor goats in Northern California.

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Posted in Autism, Behavior/ ABA, Down syndrome

Blog #1~ Spring, Nick and Me

Blog #1~ Spring, Nick and Me

Spring is in the air, glorious pink and white blooms opening up in the pear and cherry trees as a green canvas spreads across the yard.  Last week, I watched the Robins take flight with twigs in their beaks to prepare their nests.  The symphony has begun as they sing. It’s been at least four years since I got up into the crawl space to dig out the Easter tote. This year I decided to set up the Easter village.  I carefully opened each delicate piece out its cocoon of bubble wrap and set it up in the formal living room.  As I placed the pastel, porcelain pieces on the table, there is a sudden crashing sound coming from the kitchen.

“Uh oh, Nick not nice,” he says, standing there grinning at the imploded Emu egg he dug out of the tote and smashed on the ground.  I make no eye contact, simply hand him the kitchen trash can and tell him to clean up.  Everyday something gets dumped on the ground or dropped in the toilet.  Better a hollowed out green Emu egg. The day before, it was his iPod touch which he plunged into the toilet.  That’s his shtick these days.  Trying to grab my attention with that grin on his face as if to say, look what I just did?  I have some control of my life.

This grin says, “I’ve been up to no good.” 🙂

Control, isn’t that something we all want?  I get what Nick needs to feel. Down syndrome and autism has left his speech very limited.   When he pushes intercom to make the phone beep along with the popcorn button on the microwave and flips the light switch on and off multitudes of times he wields power. After all, every behavior, even a bad behavior is trying to communicate something. I give him chores such as emptying the dishwasher, and loading the washing machine.  He is so happy to help and proud (not your typical teenager in that respect.)  But in the down times, usually when I am trying to get something done, that’s when he strikes. You name it he has probably emptied it out or chucked it. More on this later as the dump list and buttons he pushes are way too long for this piece.

Here’s a tease….Special preview of a blog to come soon……

Uh oh, woopsie” as Nick would say!

I walked back to finish the Easter village.  Tada…..It is perfection.

That’s my boys Hank and Nick in the background 🙂

I love this space with its warm tones and pristine furniture.  It looks like a room in a model home.  It is the first room you see when you walk in the front door.  The carpet is still in good shape and I love it after the cleaning people come in and leave the vacuum mark prints in linear fashion like the grass at U.S. Cellular Field ballpark.  This room, untouched is close to perfection and where I feel I have some control in my life.

It’s just an illusion because once you move past it expect to enter chaos.  You see Nick is fast and he can grab a coffee mug and knock it to the floor in a nano second. Both my  peripheral vision and reflexes have improved significantly thanks to Nick!  Today, it’s not just Nick and the Emu egg and coffee mug but also a line of carpenter ants marching along the patio door and the guttural sounds of our bulimic cat, Miss Mellie. There she goes again letting out her high pitch meow and contorting her neck.  I sprint into the living room and scoop her up before she heaves all over the carpet.  Swiftly, I toss her into the bathroom and shut the pocket door.  Better to clean up the wood floor than carpet any day.

Speaking of looking oh so innocent…..Miss Mellie is purrr-fect….

Purrrr-haps I will keep putting up with her cat barfing.

Later that evening while Nick is content watching a movie, I do a quick check on Facebook to see my older son Hank who started college last fall, has just updated his status.  “I never realized how many hot girls go to Northern until the warm weather rolled in.  Here’s to booty shorts!’  I had to laugh and hit the “like” button. Looks like the girls have come out of hibernation.  I guess that is yet another sign of spring and something I have no control over. That’s what is in my noggin, until next week I hope you enjoy these first signs of spring!

~Teresa