Posted in Autism, Down syndrome, Education and Special Needs

Blog #101~Teaching Nick 101

Blog #101~ Teaching Nick 101

This week is a perspective written by one of Nick’s middle school teachers, Jessica Martin. She taught Nick during the throes of puberty when his meltdowns were at an all-time high. Nick has Down syndrome and autism and struggles with speech.  He gets frustrated trying to communicate and  understanding the concept of change.

Here’s what his middle school teacher, Jessica Martin had to say about big guy:

It’s hard to believe that the first time I met Nick the year was 2007.  It seems just like yesterday when he walked into my classroom.  When Nick first came to me, he had episodes of self injurious and aggressive behaviors.  He also didn’t like to work much.  I collaborated with his mom who gave me the okay to use pop as a reward for Nick. I started small and used a token board with three squares spelling out the word “pop”.  If he did a work, he got a letter. This process continued until he completed three works with appropriate behaviors and got all three squares which spelled POP!!!!!!!  And omg did he get excited! He would announce in a high pitched excited voice, mocking me, “Nick goooot popppppp!” He would take his little cup that was no bigger than a medicine cup and tip it back, chucking that single gulp as if he had gone days without a drink, slam it down and give us all thumbs up! By the end of the year, he tolerated longer work periods.  We doubled his work time to 6 squares on the token board and changed it from “Pop” to the word “Sprite”.

sprite can

His work refusal behavior was eliminated 🙂 Yipieeee!  There were still small, occasional outbursts here and there but with his mom’s help, we created some amazing social stories to alleviate his stressors. By 2008, Nick was extremely popular in our school. He worked as garbage duty through multiple wings of the school, was happy and was beginning to talk more. His abilities and growth made me so proud.

When Nick finished middle school, I became his respite worker. There are so many hilarious stories too. Oh my gosh, the Taco Bell story comes to mind.   I took Nick to the mall one day. We would go on the weekends to shop around and then get lunch. (Taco bell of course.)

taco bell

I got him to tolerate shopping at the mall for over an hour, (which included lots of shoe stores and Nick trying on display high heels).  As a reward, we headed over to get our tacos and bean burritos.   Proudly, Nick walked with me down the stairs to the food court, looking as if he were on a mission and walked towards the glorious Taco Bell stand.

taco bell dog

We turn the corner and my heart literally froze. The stand was walled up and under construction. Now, 5 years ago, this would have caused a huge scene. Nick stopped, dead in his tracks, looked at the construction sign, fingers curling into little fists and all of the sudden, he yelled as loud as he could, DAMNIT!!!!  He then stomped his foot and we walked away. He handled it so appropriately! Should he have sworn? Probably not, but, I was screaming it in my head so I didn’t correct it! We drove to the nearest taco bell and chowed down on processed beans! Phew!

He’s in the zone…….

10550932_10204384309668520_5756172919850475581_n

I have seen so much growth in Nick. He surprises me every day. I love him with all of my heart. My big guy! 🙂 ~Jessica Martin

Nick and Jess…..

IMG_0104

I love hearing the perspectives of others who have worked with or been around Nick. It gives me clarity to the fact that he does make progress in his learning and behavior. And he is loved and adored in the process. Special thanks to Jessica Martin for sharing her experiences with Nick.  That’s what is in my noggin this week. 🙂

~Teresa

Posted in Autism, Down syndrome, Fun Side of Nick, Recreation/Leisure and Special Needs

Summer Vacation Update

Summer Vacation Update 

We are back from a two week vacation break.  It’s never certain how a person with a dual diagnosis of Down syndrome and autism will do with changes in schedule and venues.  Here’s what we’ve been up to………

Nick enjoyed going out with his respite worker, Lara to Blackberry Farm.  While on a ride, filled with little kids they hit a big bump.  Nick blurted out a loud expletive.  Let’s just say the little ones might have learned a new word they shouldn’t have.  Uncle Thomas came up from Texas for a visit.  It was fun to share laughs together and grill on the deck.  Nick showed his Uncle how he likes to play musical chairs.  Every time someone would get up, Nick would grab all his tappers and stims and steal their spot. He’d laugh flashing that devilish grin of his.

nick and tappers

The second week, we took a road trip to attend a family reunion.  Our route down took us thru St. Louis……

St. Louis Arch

We arrived at our destination 11 hours later at Lee’s Resort in Grove, Oklahoma….

cabins

Nick did really well in the car.  You just have to tune out the sound of the tennis balls tapping incessantly and watch out for flying toys and objects coming from the back seat.

Nick tapping on my shoulder on the road trip 🙂 “Wake up Mom!”

Nick tapping shoulder

It was so much fun to be with the family.  On Friday, we rented a pontoon boat. His Grandma, cousins, aunt and uncles had blast tubing and he loved riding fast in the boat.  Nick was doing great until we had trouble getting the anchor to stay put. We were ready to relax and float in the lake for a bit.  After several failed attempts in three different areas, Nick began to get upset and agitated.  Poor guy, he didn’t know what was going on.  Finally, we found an abandoned dock and tied up to it.  It took some coaxing to convince Nick to put a life jacket on and get in.  (Normally I would have made some visuals for him to follow.  But we didn’t plan the boat excursion in advance).  For persons like Nick, who have Down syndrome and autism it is important to show visuals so they understand what is going on and also what is expected of them.  Eventually Nick made his way to the stern of the boat.  His legs were trembling as he slowly went down the stairs.  Oh, but once Nick hit the water, he took off doggy paddling so fast as if he was after a fire alarm.🙂

 Grand Lake in Grove, OK…..

lake

After five days of visiting, games, filling up on homemade banana pudding, cobbler and ice cream, we hit the road back to Chicago.  Driving amongst the corn fields I got to thinking about our time with the family.  We are very fortunate to have their support and understanding about Nick.  I looked up into the sky at the clouds trying to zone out ESPN radio.  One cloud looked like a Dalmatian with wings.  Another resembled Dory, the fish from the Disney movie “Finding Nemo”.  Nick was busy tapping a water bottle and cracking himself up laughing.  I have no idea why.   What I wouldn’t give to get inside his noggin and see what he’s thinking.  Since that is not possible I can only go by his demeanor.

Nick hung in there well and did better than I expected at the family reunion.  The only time he got mad,(besides the anchor problems on the boat) was when the tables were rearranged in a different configuration for the final dinner. (He had been sitting in the same spot for every meal.)  Yes, he made loud noises, blew snot rockets and threw things just as he does every day. But that’s just Nick’s world.  I’m not sure what some of the extended family members know or think about Nick.  The ones who choose to engage feel a connection in his hugs, fake sneezes, burps and elbow bumps.  It warms my heart to see that Nick has those family bonds.  We made it without any meltdowns and Nick had a great time and for that, I am thankful.  That’s what is in my noggin this week. 🙂

~Teresa

Posted in Autism, Down syndrome

4th of July Holiday Break

4th of July Holiday Break

fireworks2

Hank turned 22 yesterday. 🙂 Here’s a previous post he wrote about being Nick’s brother @https://nickspecialneeds.wordpress.com/2012/05/28/blog-9-brotherly-love/

I am taking a two week break to celebrate birthdays and a family reunion.  Thank you for reading and sharing Nick’s world.  Have a safe and enjoyable 4th. 🙂

~ Teresa

 

Posted in Autism, Down syndrome, Physical Therapy and Special Needs, Speech and Occupational Therapy

Blog #100~20 Tidbits about Nick

Blog #100~ 20 Tidbits about Nick

To celebrate the 100 milestone of this blog “Down Syndrome with a Slice of Autism,” I made a list of 20 things about my son Nick.

Nick 20 years ago, what a little kewpie doll…..

Nick baby

1. Nick was born the day after his Dad’s birthday.

2. Nick was in NICU and on oxygen for one week due to an AV valve in his heart not closing.  Fortunately, this closed up within a week.  He was released from the hospital on Valentine’s Day which was also Ash Wednesday.

Aqua heart

3. Nick started early intervention with speech, occupational and physical therapy at 8 weeks old. They taught him sign language. He worked on a stability ball to build core strength long before it became trendy.

4. Nick was the youngest child to start horseback riding therapy in the early intervention program at age one.

5. We use to prop up pillows on the sides of his high chair to keep him from flopping over to the side, until his core became stronger.

Nick high chair

6. Due to his low muscle tone (a trait of Down syndrome) he didn’t walk or eat solid foods until he was 3 ½ years old.  We did a co-treatment with extensive OT and speech therapy with a feeding specialist using the Debra Beckman feeding technique

7. Nick doesn’t like yogurt or applesauce because I’d mix this awful smelling and tasting Nutrivene Vitamin Supplement into them.

8. To get Nick to pull up to stand, his brother would bounce ping pong balls on the coffee table to catch his attention. I also hung several music toys over the fireplace so he had to pull up to his feet to hear the music. (Hmmmm, maybe that’s why he’s obsessed with pushing buttons.) 🙂

9. Nick has been to the top of the Eiffel Tower and Notre Dame Cathedral.

Nick Eiffel Tower

10. He has been overseas three times including London, France and Spain.

11. Nick can replicate exact sneezes, high and low pitch, big and small ones.

12. He is so flexible that he can sleep with his legs crossed and folded all the way forward.

13. Nick’s a thrill seeker and will sign “more” as soon as a roller coaster ride is over.

14. He hates to wear hat and gloves no matter how cold it is.

Nick sled

Unless he’s indoors :)……….

Nick Winter Ninja

15. Nick’s favorite actor is Eddie Murphy, in the movies The Nutty Professor, Doctor Doolittle, and Norbit.

16. He doesn’t like any fruit at all (except raspberries, that is giving and getting them). He does LOVE salads.

raspberry

17. He won a gold medal in the softball throw event at the Illinois State Special Olympics.

Nick Special Olympics

18. Nick was evaluated for autism at age 5, but didn’t get a formal diagnosis until he was 11 years old.

19. Nick has a thing for dolphins and beluga whales.

Nick Kiss

20. Before the 30 fire alarm pulls, Nick would grab car remote keys and set the alarms off.

Hope you enjoyed the 20 snippets about Nick.  Thank you so much for reading and sharing Nick’s world for the last 100 blogs.   That’s what is in my noggin this week. 🙂

~Teresa

20 Year Old Nick…..

photo (120)

Follow Nick:

Facebook and Pinterest @Down Syndrome With A Slice Of Autism

Instagram #nickdsautism

Twitter @tjunnerstall

 

Posted in Autism, Down syndrome

Blog #99~ *Essential Oils and Sleep

Blog #99~ *Essential Oils and Sleep

*The statements on this blog regarding essential oils are my personal testimony only. Any claims made for the products listed below are based on the experience of my son, Nick who has Down syndrome and autism. The products have not been evaluated by the FDA.

Recently, there was a discussion about essential oils on one of the Down syndrome & autism Facebook groups that I belong to. A couple of mums from England described the benefits of using Bach Flower remedies to promote better sleep. I decided to do some research on essential oils to see if they might benefit Nick.

Here’s what I pulled off the website: http:// www.bachflower.org

bach flower logo

“Bach Flower Remedies were invented and developed by Dr. Edward Bach about 80 years ago. Dr. Bach isolated and classified 38 flowers from which he extracted 38 essences with which he succeeded in healing patients’ ailments while taking    into account their individual emotional states. Dr. Bach found that certain flower essences led to self-healing, as they purified the patient of negative elements that adversely affected their health.”

There is a difference in Bach Flower Therapy and other essential oils.  I found the following link which contains more information that further distinguishes them: http://goodworkswellness.com/difference-between-bach-flower-remedies-essential-oils-and-herbal-tinctures/.

Essential oils work on the body, mind and soul.  I learned that these oils were more than just a fragrance.  They can provide immense health benefits for humans and animals. They are natural, non-toxic and non-habit forming. The oils can be administered topically, aromatically, and most can be taken internally.

bach flowers

When using them topically add 1-2 drops to carrier oil (such as coconut or olive oil) and massage over a large area.  Avoid rubbing essential oils on the skin directly, always mix them with a carrier oil.  You can rub the mixture on the bottoms of the feet or back of the neck at the brain stem and gently massaged into the skin. The second way to administer the oils is aromatically using a diffuser. The third way is internally.  It is best to assume that an essential oil should not be used internally, unless the product has been specifically labeled as safe for internal use.

After doing this research I decided to give it a try.  I’d welcome anything that would help Nick sleep through the night.

autism and sleep cartoon

I went to Fruitful Yield, a natural food and vitamin store (in Oswego, Illinois), where a very helpful staff guided me to a few types of the essential oils.  Here’s a sample chart of some of the oils:

bach flower chart 2

I decided to pick one Bach Flower remedy called “Vervain,” which helps you to relax when you are over enthusiastic or strongly driven.  The second oil was suggested by the staff person at Fruitful Yield……

“Now Essential Oil Peaceful Sleep”………

Peaceful Sleep Oil

The Now Diffuser was very easy to use and priced at $30 dollars.  It BPA-free and utilizes high-frequency ultrasonic electrical vibrations to create an ultra-fine aromatherapy mist.  Also, it doesn’t utilize heat, which maintains essential oil integrity and holistic properties.  You simply fill it the line with tepid water, put a few oil drops in and push the button.  A plume of mist filled with the scents of orange, tangerine, lavender, chamomile, ylang ylang oils along with sandalwood in the Peaceful Sleep Essential Oil then fills the air. It is a floral citrus aroma with benefits to calm, relax and soothe.   The Now Diffuser also has a light that changes colors intermittently.

 Nick’s out like a light  🙂 ……….

aromatherapy

After using the diffuser with the peaceful sleep oil for two weeks, I am happy to report that Nick is sleeping much better.  There is a notable difference.  Nick is relaxing and falling to sleep much quicker than he usually does. He is also sleeping without interruption almost every single night.

I haven’t tried the Bach Flower Remedy yet since the Peaceful Sleep Oil is working like a charm for Nick. This experiment with using essential oils to help with sleep has been very successful for Nick.   As I have mentioned in other blogs that I’ve written, it’s good to think out of the box. That’s what is in my noggin this week. 🙂

~Teresa

thinking outside the box

 

 

 

 

Posted in Autism, Down syndrome, Resources for Special Needs

Blog #98~More Special Needs Resources

Blog #98~More Special Needs Resources

How do I even try to come close to topping last week’s blog post?  Ryan Solomon’s story about being Nick’s Peer Partner touched so many people.  This post got 1,750 views (the most ever) on my Facebook Page Down Syndrome With A Slice Of Autism!  🙂 Just in case you missed it, here’s the link, and don’t forget the box of tissues:

@https://nickspecialneeds.wordpress.com/2014/06/02/blog-97-being-…s-peer-partner/

Nick and his Peer Partner Ryan…..

Peer Partners

This week is all about more resources related to special needs.  During the recent NADS Family Behavior Retreat, I lead a brainstorming session to pool together all the resources the parents had.  We put our noggins together and found support in these areas:

*Autism Support and ABA Therapy

*Advocacy and Legal

*Doctors, Dentists and Specialists

*Therapists

*Recreation and Leisure

*Online Support Links

*Toileting and Personal Care

*Tech Support and AAC Devices

*Safety and Wandering Prevention 

Here is what we came up with.  There are many more that are based out of the Chicago area that are not listed below. If you would like those as well drop me a message.  Please note: This is a parent recommendation list.  NADS does not endorse, recommend, or favor any products, processes or services on this list.

Autism Support and ABA Therapy: 

www.easterseals.comEaster Seals offers programs, training and equipment for families

www.theautismprogram.org Autism resources

Advocacy and Legal:

www.SpecialNeedsFreedomGuide.com Free Estate Planning Guide

www.LifesPlanInc.org  Estate planning

www.specialneedsadvocacy.wordpress.com Advocacy for parents

www.specialedadvocacy.orgAdvocacy site for parents and teachers

Doctors, Dentists and Specialists, Therapists (are all Chicago based)

Recreation and Leisure (most are Chicago based but here are a few others):

www.nps.govNational Park Services free camping tent and tools for first time campers

www.discovernac.orgNational Abilities Camp in Park City, Utah

www.thebikerack.com Special needs bikes and bike modifications in St. Charles

www.joniandfriends.orgParent/child camp in Michigan

www.gigiplayhouse.org Down syndrome Awareness Centers

www.icanshine.org Loose the Training Wheels bike camp

diveheart.org  Scuba and Snorkeling for persons with disabilities

www.bigbeadjewelry.com  Special needs micro-enterprise

www.specialsparkle.com Jewelry micro-enterprise run by a young adult with Down syndrome

www.downsdesigns.comSpecialty clothing and jeans that fit

hammertravel.orgTravel opportunities for special needs

Online Support Links:

www.parentcenterhub.org  Extensive information and help with links your state/local agencies

www.behavioradvisor.com/FBA  Behavior support site

www.myautismteam.comNetwork site for parents

www.bridges4kids.orgGreat Resources for special needs families.

www.mayer-johnson.comBoardmaker software

www.teeach.comInformation on TEEACH materials

www.bridges4kids.orgIEP Goal helpful ideas

www.noahsdad.comEnjoyable site highlighting Down syndrome

Toileting and Personal Care:

www.especialneeds.co/diapers-pads-incontinence-swim-diapers.html

www.Theraquatics.com  Swim diapers for child and adults

www.incont.org  Diapers, swim diapers and related products

wetstop.com Bed wetting alarms

Tech Support and AAC Devices:

www.easterseals.orgAssistive tech evaluations and training

www.mydynavox.com Free 30 day trial app available ($29 monthly thereafter)

www.silver-kite.com/touchChatCommunication application for iPod/iPad technology

www.assistiveware.com/product/proloquo2goAugmentative and Alternative Communication

Safety and Wandering Prevention:

www.awaare.org.  Autism Wandering Awareness Alerts Response Education has a comprehensive list of tips, materials and tools.

www.medicalert.org Medical ID bracelets

www.projectlifesaver.org Tracking system located in various cities

www.caretrak.com GPS Tracking bracelets connected to participating police departments

safetynetbylojack.com  GPS tracking device for wrist or ankles

caretrak bracelet

There are more resources and links in Blog #84 and #85 (located in the February 2014 archives). If you have any others please share them in the comment section below. This list (much like Nick’s behavior plan and * painting the Golden Gate Bridge) is never quite complete and always evolving.

Golden Gate Bridge with the family and my niece Courtney when we lived outside San Francisco 15 years ago.  Note barefoot Nick (he would never keep his shoes on back in then)…….

golden gate bridge

That’s what is in my noggin this week. Stay tuned for more about Nick’s world next Monday. 🙂

~Teresa

*According to goldengatebridge.org:  There are a couple of misconceptions about how often the Bridge is painted. Some say once every seven years, others say from end to end each year. The truth is that the Bridge is painted continuously. Painting the Bridge is an ongoing task and a primary maintenance job. The paint applied to the Bridge’s steel protects it from the high salt content in the air which can cause the steel to corrode or rust.

Posted in Autism, Down syndrome, Education and Special Needs, Recreation/Leisure and Special Needs

Blog #97~ Being Nick’s Peer Partner

 

Blog #97~Being Nick’s Peer Partner

This week, I am very excited to share this piece written by Ryan Solomon.  Ryan was Nick’s peer partner at Metea Valley High School.  The Peer Partner Program operates in conjunction with the Adapted Physical Education Department.  It allows selected students the opportunity to provide mentorship to students with a variety of abilities.  Ryan’s experience with Nick, (who has Down syndrome and autism) inspired him to write this essay for college consideration. 

Essay by Ryan Solomon:

“My application lists my three–‐sport varsity achievements –including all–‐conference and all–‐academic in soccer, basketball and baseball.  You might think I’m a competitive, insensitive jock. So, you may find it ironic that I applied to “opt out” of PE class. Two years ago I was selected as a “Peer Partner” with 26 other students to assist special needs students in Adaptive PE.  I have thoroughly enjoyed the experience – especially last year. I’ve learned that I am sensitive and caring from my yearlong association with a person that has had a significant influence on me, my “Best Buddy” Nick Unnerstall.

Nick is severely mentally challenged and barely able to speak. Last year, when I was “peer partnered” to swim with Nick, I was afraid it would be a daunting task. Before we met, I expected to see a sad child scared of the school’s enormous swimming pool.  Instead, when I got to the pool, Nick, wearing his floaters, jumped in fearlessly.  We swam together the entire period.  The look on his face was refreshing–‐full of curiosity and wonder.  His smile beamed ear to ear.  The instructor thought it would be difficult for me to handle Nick daily -from preparing to swim, swimming and getting him to class –but that was not the case!  Her concerns disappeared as Nick and I bonded nearly instantly.  We showed up excited to swim every day.  Swimming was the one thing that Nick looked forward to each day.

After class I’d help Nick to lunch.  We’d just smile even though no words were shared.  Simple motions and expressions allowed us to communicate.  This daily routine put my life into perspective.  I used to think it was tough having homework and a game on the same night; dealing with a sports injury; or getting caught up with drama among friends.  None of this compares to what Nick goes through every day and for the rest of his life.

Through Nick, I’ve learned to appreciate all that I am able to do and have learned not to take anything for granted.  Before Nick, I believed I deserved starting positions in sports, or recognition and respect from my peers regardless of my actions. I put myself in his shoes and can see the adversity Nick faces each day from trying to be understood to struggling to get down the hallway crowded with students.  I now realize no one deserves anything without hard work. Although I believe I work hard athletically and academically, it does not compare to the Nick’s challenge to speak or get in and out of the pool.  Now, I work hard at being a compassionate and caring person.

Because of Nick, I am thoughtful of what I say and do.  I have become much more aware of those around me.  Nick shows me there is more to my life than academics and athletics.  With Nick and Peer Partners, hard work, compassion and caring helps me help others.”

Ryan and Nick 🙂

Peer Partners

Reading this essay warmed my heart.  As his mom, it is wonderful to know that Nick has made a difference in Ryan’s life and no doubt many others.  Ryan just finished his sophomore year at The University of Illinois.  I would like to thank him for sharing his story of working with Nick.

That’s what is in my noggin this week. 🙂

~Teresa

 

 

 

Posted in Autism, Autism Safety and Wandering

Happy Memorial Day

memorial day

Take some time today to remember and honor the brave soldiers who fought for our freedom.  I’ll be back next week with a new post.

Did you get a chance to read these two posts from last year about “Wandering and Autism”?   They contain crucial information that everyone should know as we move into the warm weather season:

@https://nickspecialneeds.wordpress.com/2013/07/01/blog-60wandering-and-autism/

https://nickspecialneeds.wordpress.com/2013/07/29/blog-62wanderi…autism-part-ii/

Have a blessed day and thank you for reading and sharing Nick’s world.🙂

~Teresa

Posted in Autism, Down syndrome, Fun Side of Nick, Recreation/Leisure and Special Needs

Blog #96~ Best Buddies Program

Blog #96~ Best Buddies Program

Spring is in the air!  I scrolled the Facebook wall over the weekend admiring all the beautiful gals dolled up in their prom dresses and the young men looking so handsome in tuxedos.  It’s a rite of passage for high school students, but one that my son Nick never had a chance to experience.  Nick has Down syndrome and autism and the prom just wasn’t in the cards for him.  But enter this awesome program called *Best Buddies. 

Students like Nick who have intellectual and developmental disabilities are often isolated and left out of traditional school activities.  That’s where the Best Buddies program comes in.

The Best Buddies program fosters one-to-one friendships between students with and without intellectual and developmental disabilities (IDD).  Best Buddies helps to create an inclusive school climate breaking thru social barriers at an important time in a young person’s life.  This non-profit organization is dedicated to establishing a global volunteer movement that creates one-to-one friendships, integrated employment and leadership for people with IDD.  Founded in 1989 by Anthony K. Shriver, Best Buddies has grown internationally from one school chapter to 1,700 middle schools, high schools and college chapters worldwide. Best Buddies has eight formal programs impacting 800,000 individuals both with and without intellectual and developmental disabilities worldwide.”

Best-Buddies-logo

How did Best Buddies impact Nick’s high school experience?  Because of Best Buddies, Nick was able to enjoy a wide variety of extra-curricular activities. Each month the group participated in meetings, community volunteering, parties, and social events such as bowling, going to the movies, out to eat and to local parks.  In addition, the group hosted two dances a year.

Nick volunteering at a Knights of Columbus  fundraiser……

Knights of Columbus

Nick heading to the Best Buddies Spring Dance……

best buddies dance

Nick looked forward to these events and being paired up with his peer partners.  I am very grateful for these students who volunteered their time to the Best Buddies program. Nick had a special connection with each of his peer partners. This program truly enriched his high school experience.  That’s what is in my noggin this week.

~Teresa 🙂

For more information on Best Buddies: http://www.bestbuddies.org

Posted in Autism, Down syndrome

Blog #95~ Do Just One Thing

Blog #95~ Do Just One Thing

It feels like a Monday morning.  I’m bouncing around from one thing to the next and getting off track in the process.  I started a load of laundry and took off upstairs to grab my sweaty gym clothes. Speaking of the gym, what playlist am I going to use for spin class tonight?  I paused at the bottom of the stairwell to rescue a drooping hydrangea flower which badly needed water. While upstairs I made the bed, grabbed some hangers and scooped up another basket of dirty clothes.  I heard a strange noise coming out of the laundry room.  The spin cycle wasn’t working on the trusty Kenmore, crap!  I sat down at the computer to schedule a service appointment, but the dryer buzzer went off.  I’d already hit the fluff cycle twice.  Stop and fold them now T!    I tried the spin cycle a few more times, but no go.  After wringing out each piece of clothing and putting them in the dryer, I sat back down to the computer.  What was I doing on it earlier?  I better pop another K-cup in, I have lost my focus.

K-cup

 The phone rang and on the other end was a message regarding problems with DHS (Department of Human Services) and an old timesheet from April 2013.  That’s just great.  What was I going to do on the computer?  Oh, that’s right I need to schedule a service appointment. Sometimes I wonder…….

Do I have ADHD?

ADHD

So, here is my to-do list for the week:

Finish resource list for NADS

Schedule NIU lecture and get respite for Nick

Fill out PACT survey

Deposit Nick’s stipend checks

Write article for NADS newsletter

Research essential oils and Bach Flower Remedy

Make Nick’s visual shopping list for fridge

Get eye exam (I am completely out of contacts)

Write thank you notes

Plant flowers

Over half of the list items are related to Nick and his special needs. Managing his adult affairs has become another part time job.  But, I refuse to freak out today.  I’m certain that there are lots of moms *running around like a chicken with their head cut off, much like me.

chicken with head cut off

I am going to follow my own advice from last week’s blog.  Don’t beat yourself up T.  Prioritize this list.  So I made the service appointment- Check!   As for the rest,  I’m going to take a breath, slow down and focus on just one thing.  That’s what is in my noggin this week!

~Teresa 🙂

*According to Wiki Answers:  A chicken with its head cut off tends to still run around aimlessly for several minutes after death. This is because the nerves in the body are still active for a short time. The saying “like a chicken with its head cut off” is a shortened version of “running around like a chicken with its head cut off”