Tag: Vacationing with a special needs child

Posted in Autism, Down syndrome, Dual Diagnosis Down syndrome and autism, Fun Side of Nick, Recreation/Leisure and Special Needs

DS-ASD~ Summer Vacation Highlights

Posted on by tjunnerstall

DS-ASD~ Summer Vacation Highlights

OBX flags 2019

We are back after a two week vacation from Virginia and the Outer Banks, NC. It was so relaxing to be off the grid and enjoy time with family. My son Nick is 25 years old and has a dual diagnosis of Down syndrome and autism (DS-ASD). As a family, we have always made a commitment to travel with our son. It can be challenging for a child with special needs to navigate airports, hotels and unfamiliar venues. But there are things you can put in place to make vacations go smoother…..

In my last blog entry you can access my top 7 vacation travel tips for families: https://nickspecialneeds.com/2019/06/17/ds-asd7-vacation-tips-for-special-needs-families/ 

Here are some of the highlights from our summer vacation in Virginia and the Outer Banks (OBX):

In Virginia, we enjoyed the wonderful hospitality of Nick’s Aunt Ali and Uncle Ron with beautiful views, kayaking on the James River, great food and relaxing in the peaceful country…..

 

Highlights from the Outer Banks, in Duck, OBX:

At OBX we enjoyed beach and pool time, great company, delicious meals and a nice birthday celebration dinner on the sound side of OBX. Nick did well tolerating the sandy beaches this year, and spent more time than ever with us as a family!  We put Nick in tennis shoes to make his way out on the hot sand, with a texture that tends to bother him from a sensory standpoint. He did well hanging out both under the umbrella and out at the water’s edge……….

Nick and Dad OBX beach 2019   Nick and Anna OBX 2019

Dinner on the sound side of OBX at Aqua Restaurant and Spa, including Nick with his Dad & Mom, Uncle Ron & Aunt Ali, Cousins Anna & Sam and Nick’s brother and girlfriend Hank & Kristin…..

Aqua Restaurant and Spa features excellent food, wine, spa treatments and sunsets. Thank you both- to my son Hank for treating me to a pedicure overlooking the sound, and to Ali for the relaxing (and much needed) Swedish massage. As a mother of a child with special needs, it’s crucial to take time for some TLC and pamper yourself. Moving forward, I’m going to make it a priority to do this more than once a year on my birthday. It is good for the soul! 🙂

Sunrise at Duck, OBX….

OBX sunrise 2019

We are very grateful and blessed to have the opportunity to spend vacation each summer with Ali and Ron hosting in Virginia and OBX. Anna, thank you for cooking and introducing us to some wonderful & tasty vegan dishes. The familiar venues help Nick feel secure in his surroundings. This predictability helps him to be less anxious on vacations and makes for a more relaxing experience for all of us.

That’s what is in my noggin this week.

~Teresa 🙂

To see more pictures of the trip and Nick click below to follow on social media:

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Posted in Autism, Down syndrome, Dual Diagnosis Down syndrome and autism, Fun Side of Nick

Blog #151~OBX Vacation

Posted on by tjunnerstall

Blog #151~OBX Vacation

What is OBX?  It’s an acronym for the Outer Banks.  OBX is a 130-mile stretch of barrier islands just off the coast of North Carolina. Along this coastline you will find quaint towns, sleepy fishing villages, lighthouses and a beautiful coastline lined with dunes covered in sea oats.

Sea Oats

OBX lighthouses

It’s the place to go and unwind, let go of worries, and relax.  The biggest decisions for me would be which swimsuit to put on along with what book and cold beverage to have in my hand.

OBX signs

For the past six years, our destination has been Duck, NC.  My son Nick, is 22 years old and has Down syndrome and autism.  He absolutely loves to come here.  Vacations and travelling can be tough on our kids with special needs.  Having a regular vacation spot gives Nick predictability. This in turn makes him feel secure, thus keeping his anxiety level down.  New environments and being out of a routine can be tough for a person with special needs; especially autism.  Anxiety can lead to serious meltdowns.  We are fortunate to be able to return here to Nick’s Uncle and Aunt’s beach house. A place where Nick feels at home.

Nick and Uncle Ron at the crows nest…..

Nick and Ron OBX

Nick is comfortable in their house and helps out by vacuuming and unloading the dishwasher.  He loves swimming in the pool and soaking in the hot tub.

Nick with his “stim” of choice, the tappers.  My beverage of choice; a Lime-A-Rita 🙂

Nick pool obx

Sensory issues related to autism can be another challenge on vacations.  Nick struggles with the texture and unevenness of sand as well as extreme heat.  It can be hit or miss getting him to even walk out to the beach.  The weather conditions were just right this year, with mild 80 degree temps and a nice breeze to cut the heat.  He did well hanging with us all on the beach a few times.  He even dipped his toes in the surf; success!

Nick Beach OBX

The dynamic was different this year.  We missed some family members including Nick’s grandparents, his brother and cousin.  Health issues, a new job out of college and a summer internship kept them from coming.  We missed having everyone together, along with the laughs and good times we’ve shared over the years here.

Nick and his brother Hank, OBX 2011

Nick and his brother, Hank at the Outer Banks, NC

OBX 2011

OBX Family 2011

OBX is where we let the stress fade as the waves washed away worries.  We each find our ways to unplug; whether it’s fishing, biking, tennis, manicures, massages, swimming, sunbathing and cracking open a good summer read.

My book of choice, following the extraordinary journey of retired Secret Service Agent, Clint Hill with five Presidents.  I highly recommend reading Five Presidents (#1 New York Times Best Selling Authors, Clint Hill with Lisa McCubbin)….

Five Presidents

The book is finished on OBX vacation, 2016.  Nick enjoyed his time there and still seems very happy.  We will take back some great memories, new tan lines and a good feeling of being restored.  That’s what is in my noggin this week.

~Teresa

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Posted in Autism, Down syndrome, Dual Diagnosis Down syndrome and autism, Fun Side of Nick, Uncategorized

Blog #149~Vacation/Staycation

Posted on by tjunnerstall

Blog #149~Vacation/Staycation

How’s your summer going?  Nick had a blast on vacation in Texas, and a staycation here with his cousins. My son Nick is 22 years old and has Down syndrome and autism. We flew down to Texas late June, for a family reunion in the Hill Country.  I managed to knock a few things off my Texas bucket list including Tex-Mex food, tubing, swimming and authentic BBQ.

Nick enjoying the pool with his cousins, Jake and Jenna….

Nick Hill Country pool

A plate of Texas heaven….

BBQ

It was great to see extended family, share laughs, stories, meals, elbow bumps, and get those awesome Overbey family hugs!  Thanks Laura and Scott for hosting a wonderful event.

Texas sunset

We enjoyed a nice 4th of July, and Nick certainly got into the patriotic spirit. I don’t know where he comes up with these things……

Nick flags

Following the 4th of July, my niece and nephew came up for a week.  We had a lot of fun taking them out and spoiling them. They knocked a few things off their Chicago bucket list:

* Chicago White Sox game

*Taste of Chicago

*Millennium Park “The Bean”

bean

* Giordano’s deep dish pizza

giordanos01

*Portillo’s Italian Beef

*Blain’s Farm and Fleet (not sure that was on the list, but a good laugh between me and Jenna)

Thank you to our respite workers, (Jodi, Kelsey and Lara) for taking Nick out during our staycation. It was fun enjoying Chicago with the kids, and just hanging out (and being the cool aunt).

Elbow Bumps….

Nick and Jenna

So, that’s our summer thus far.  On another note, I’m excited to share a great opportunity with you.  Recently I was approached to be in a partnership with A&E’s hit show, Born This Way!  This series features young adults who have Down syndrome showing everyone the possibilities.  I got an exclusive interview you won’t want to miss. Look for the blog post later this week.  Check the social media sites below  for more information, including a look at the trailer.  Let’s get the word out, and share this on your social media as well.

A&E’s Born This Way premieres next Tuesday, July 26th at 10/9c!

BTW FB creative.jpg

What a great summer, it’s been.  See you in a few days with my exclusive Born This Way interview! That’s what is in my noggin this week.

~Teresa

Follow Nick:

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Posted in Autism, Down syndrome, Fun Side of Nick, Recreation/Leisure and Special Needs

Summer Fun

Posted on by tjunnerstall

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This week, a look back at summer fun over the years.  Nick enjoys vacations especially if there is swimming involved.  He is now 21 years old and has Down syndrome and autism.  Click on this link to view @ https://nickspecialneeds.wordpress.com/2012/06/11/blog-11the-good-ole-summertime/

That’s what is in my noggin this week.  Happy summer to everyone and thank you for reading and sharing Nick’s world!

~Teresa