Posted in Autism, Down syndrome, Down Syndrome Awareness, Dual Diagnosis Down syndrome and autism, Education and Special Needs, Parenting Special Needs

Blog #230~Book Review: Scoot Over and Make Some Room

Blog #230~ Book Review: Scoot Over and Make Some Room 

My recent summer read– Scoot Over and Make Some Room: Creating a Space Where Everyone Belongs, by author and Instagram star, Heather Avis is a must read. She is the mother of 3 adopted children, two with Down’s syndrome and one of color.  Here is one review from her book that speaks volumes:

“In a world of divisions and margins, those who act, look, and grow a little differently are all too often shoved aside. Scoot Over and Make Some Room is part inspiring narrative and part encouraging challenge for us all to listen and learn from those we’re prone to ignore.”

Each chapter in the book Scoot Over and Make Some Room extends the challenge to make room for not only individuals with Down syndrome but way beyond to all individuals with different abilities, ethnicities, race, viewpoints and perspectives. Heather’s book is filled with humorous stories, challenges and lessons she has learned raising her 3 children, navigating IEP’s, inclusion and acceptance. But this book dives down much further, by challenging the reader to look into their own lives and broaden your understanding and compassion towards people who may be different from you.

My son Nick is 26 years old and has a dual diagnosis of Down syndrome and autism (DS-ASD). In my book A New Course: A Mother’s Journey Navigating Down Syndrome and Autism @ https://amzn.to/2W3Un6X  there are many stories about times where I would brace myself in public. Countless times I would apologize for my son’s seemingly inappropriate behavior, and yes like Heather have a moment where the pants have gone down, 🙂

Heather tells about the “pants down in the park” episode that was highly inappropriate (and a one-time occurrence) with her daughter Macyn. I can attest to the need to be on high alert and cringing at times. Macyn is a very spirited and outgoing girl who likes to engage with strangers by waving and sometimes asking “WHATCHA NAME?” This happened once at a hip LA restaurant. This raises a good question: Is this behavior inappropriate or just different than the social norm? Why are we so fearful to interact with individuals who have an intellectual or developmental disability? Often it is fear of the unknown and being uncomfortable around someone who may speak or act differently.

Heather writes this powerful message in her book:

“We fear the unknown. And unfortunately, until we create space for people with physical and intellectual disabilities to show up exactly as they are and give them permission to interrupt our social norms, they will continue to be unknown and we will continue to be fearful,”–Heather Avis

What a profound message this is to society and lesson about acceptance. Personally, I feel that the world could use more kind interactions like saying “hi” and “WHATCHA NAME.”  Obviously, we can all agree that “pants down in the park” is an inappropriate behavior. But as Heather writes in part:

“all of us have a responsibility to shift the way we react when faced with uncomfortable social situations. All of need to scoot over and make some room for people to respond in a way we’re not use to.”–Heather Avis

One of my favorite parts of this book is the chapter entitled “Make room for the Wildflowers.” Much of what we do in life is like a garden– planted in nice, neat rows. Take for instance inside school classrooms where the desks are all lined and in sync. Is there any space for the wildflowers to grow in these tidy rows? This metaphor opens up the dialog about inclusion and different abilities working alongside in the same classroom. Can we scoot over and make some room to let the wildflowers grow amongst the seamless rows and see the value of inclusion and all abilities?  I can speak from experience that my son, Nick brought great value and taught lessons of patience, compassion and unconditional love to his peers while in the inclusion classroom setting. He continues to do so as a young adult with his interactions out in the community and at his adult developmental day training program.

There is so much more to this book and you will have to read it to find out for yourself. Scoot Over and Make Some Room is a call to action to shout the worth of people who are left out and misunderstood. Every parent, extended family member, physician, educator, pastor and others will gain a deeper understanding of how to do a better job to adjust, sit and listen in order to learn how to find a way to make room for everyone to be valued, accepted and included in our society.

That’s what is in my noggin this week.

 ~Teresa 🙂

Follow Nick:

Facebook-Instagram-Pinterest @Down Syndrome with A Slice of Autism

Twitter @tjunnerstall

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Heather Avis writes from the heart about all the things she wishes the every day person knew about inclusion. This book applies to teachers, parents, siblings and simply everyone who wants to change the way we see inclusion in the world around us.

Posted in Down syndrome, Down Syndrome Awareness, Education and Special Needs, Resources for Special Needs

Blog #221~Inclusion in a General Education Classroom for Students with Down Syndrome

Blog #221~Inclusion in a General Education Classroom for Students with Down Syndrome

Down syndrome awareness ribbon

October is Down Syndrome Awareness Month.  An individual with Down syndrome can be included in a general education classroom with the right support, accommodations and curriculum modifications.  This requires collaboration with the school team and understanding the needs of the student.  Inclusion education happens when children with and without disabilities participate and learn together in the same classes.  How can you advocate for an inclusive education environment for a student having Down syndrome?

*Inclusion in a general education classroom starts with a school team who is aware and understands what the experience can look like.  If the school does not support inclusion, the parent (and bringing an advocate on board) can help to educate the staff.  There is no one size fits all on inclusion, as each student is individual and unique in their needs. Inclusion is not a place, but rather an experience. Finding the right teachers, who are willing to set an open environment in the general education classroom is also a key ingredient to the success of inclusion.

Here are some examples of how inclusion can work:

http://www.friendshipcircle.org/blog/2014/02/05/10-examples-of-inclusion-for-those-who-need-to-se

Educate your school and community by hosting a screening for Inclusive Schools Week.  “Inclusive Schools Week is a proud partner with INTELLIGENT LIVES, the groundbreaking new documentary by Dan Habib. Narrated by Academy-award winning actor Chris Cooper, the film stars three pioneering young adults with intellectual disabilities – Micah, Naieer, and Naomie – who challenge perceptions of intelligence as they navigate high school, college, and the workforce. The film can now be screened in every community across the USA – host your own screening for Inclusive Schools Week! Intelligent Lives can help you advocate for change, raise funds for your organization, and open doors to inclusive education and employment for people of ALL abilities.” Go to http://www.intelligentlives.org to watch the film trailer and to learn how to host a screening in your communitye-it-to-believe-it/

Watch the trailer:  https://intelligentlives.org/trailer

*Create a one page profile sheet of your child to share with the school team and class.  There are many great ideas on Pinterest to create this.  

Here are some suggestions with examples on what to include:

-Picture of student

-Strengths (counting, matching, visual learner, receptive language, funny, wants to work)

-What works for student (visual schedule, patience, positive reinforcement, reminders before transitions)

-What doesn’t work for the student (sudden changes in schedule, taking something away, saying no or talking to firmly)

-What the student enjoys (music, making friends, Starfall computer game, dancing)

What the student needs (checklists, visual schedules, motor breaks, sensory break area, etc.)

*Inclusion works best with a solid Individualized Education Plan (IEP) and when the student is supported with a classroom aide/paraprofessional.  

Nick work aid

*Inclusion works best when the IEP includes all needed accommodations and modifications in the curriculum.  Accommodations are the tools needed for the student to succeed in the classroom.  Some examples might include a special pencil grip, nubby seat cushion, visual timer, calculator, built in motor breaks, communication device or picture exchange system (PECS) book.  Modifications to the curriculum allow the student to learn the grade level material , but simplified.  This helps the student learn at their own level what is most meaningful for them.  Goals in the IEP should be driven to promote further education, independence and future employment skills.

Here are two books that I recommend for learning more about how inclusion works for individuals with Down syndrome:

Inclusion in ActionWho's The Slow Learner

As I mentioned in last week’s blog post, Woodbine House also has many books about teaching reading and math skills for individuals with Down syndrome.  This month Woodbine House is offering a 30% discount on these books:

Click here to view the selections https://www.woodbinehouse.com/

Inclusion in a general education classroom can work for individuals with Down syndrome.  It benefits all students, and promotes a since of community and acceptance, that individuals with intellectual and developmental disabilities desire.  With the right attitude, support, accommodations and modifications, inclusion in a regular classroom setting can be a rewarding and successful experience for individuals with Down syndrome, their peers and the school staff.

That’s what is in my noggin this week.

~Teresa 🙂

Follow my son Nick who is 24 years old and has a dual diagnosis of Down syndrome and autism:

Facebook and Pinterest @Down Syndrome With A Slice Of Autism

Instagram @nickdsautism

Twitter @tjunnerstall