Posted in Autism, Down syndrome, Education and Special Needs, Fun Side of Nick

Blog #126~Nick and the Varsity Football Team

Blog #126~Nick and the Varsity Football Team

Recently Nick and his respite worker Jodi were taking a walk around the Waubonsie Lake trail. Suddenly, Nick took off running towards the high school.  Jodi scanned past the trail to figure out what Nick was going after.  His face lights up.  Oh no, it’s the “KEY TREE!”

key tree

The football players hang their car keys here.

Nick is 21 years old and has Down syndrome and autism. Long before the 34 fire alarms he has pulled since third grade, he discovered car remotes.  He sought them out feverishly.  He’d even fish them out of babysitter’s purses, run to the front door, and set off their car alarms.

Back to the key tree…… Nick is cheetah fast when it comes to setting off alarms.  Jodi had no intention of letting Nick disrupt football practice so she sacrificed her own remote to distract him.  Hey, I’ve said it before.  Its Nick’s world, the rest of us are just trying to keep up. 🙂

When football practice was over, Jodi took Nick over to say hi to the team. Her son, Tyler plays center for the Waubonsie Valley High School football team.  Nick is about half his size standing 5’2 and weighing barely 110 pounds soaking wet.

Nick with Tyler….

Nick and Tyler

On Thursday nights after practice, the players get treated to a pasta dinner. Nick helps set up and pour drinks for all the players.  He elbow bumped each player as they came through to get their food.

Nick loves his pasta!

Nick meatballs

He also assisted in cleaning up afterwards…..

Nick and Dan

After dinner Nick helped the coaches pass out the senior’s white jerseys. He kissed each jersey before he tossed them at the players.  They would laugh and elbow bump him as each passed through the line.

Nick has a way of livening things up. The Warrior football players are always excited to see him at practices and dinner.  They have named Nick their “Warrior Dude”.  As a mom, it makes me so happy to know that Nick is getting out in the world, meeting new friends and bringing smiles (and chuckles) along the way.  That’s what is in my noggin this week.  Go Warriors!

Nick and Football team

~Teresa 🙂

Posted in Autism, Down syndrome, Fun Side of Nick

Happy Labor Day

Happy Labor Day

Happy Labor Day

I hope everyone is having a nice, relaxing Labor Day weekend.  I’m taking the day off and will press a new blog next week.  Until then, if you haven’t read “Stuff On My Cat, Part II”, kick your feet up and enjoy @https://nickspecialneeds.wordpress.com/2013/07/08/blog-62stuff-on-my-cat-part-ii/

~Teresa 🙂

Posted in Down syndrome, Fun Side of Nick

Vacation and Special Needs Child

Vacation and Special Needs Child

Last week, Nick put together this task strip.  I think he is ready to go on our annual vacation to the Outer Banks, NC (OBX)!

OBX Task Strip

We have been going to the Outer Banks for the past 5 years. Nick loves the water.  It’s not easy getting a child with special needs to swim independently.  Nick is now 21 and has Down syndrome and autism.  Here’s some information on how he learned how to swim and why we love the beach so much@https://nickspecialneeds.wordpress.com/2012/08/13/blog-17-lifes-a-beach/

I hope that you all find your happy place and get to relax this summer.  I know Nick is ready to go!  That’s what is in my noggin this week.

~Teresa 🙂

 

Posted in Autism, Down syndrome, Fun Side of Nick, Recreation/Leisure and Special Needs

Summer Fun

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This week, a look back at summer fun over the years.  Nick enjoys vacations especially if there is swimming involved.  He is now 21 years old and has Down syndrome and autism.  Click on this link to view @ https://nickspecialneeds.wordpress.com/2012/06/11/blog-11the-good-ole-summertime/

That’s what is in my noggin this week.  Happy summer to everyone and thank you for reading and sharing Nick’s world!

~Teresa

 

Posted in Autism, Down syndrome, Fun Side of Nick

Nick’s 21st Birthday

Nick’s 21st Birthday

Big Guy turned 21 this past Saturday.  We threw a party and Nick had a blast.  Here are a few snapshots of the day:

Party favors…..Theme red solo cups and Thomas the Tank engine, only in Nick’s world!

red cup favors

I made a toast thanking caregivers, therapists, family and friends for their support with Nick (who has Down syndrome and autism) over the years.  Nick followed it up by flashing the crowd.  Looks like we have some new members added to the “belly flashing club”.  🙂

Nick belly flash 21

Chocolate cake, Nick’s favorite…..

Nick 21 cake

New sensory toys from his occupational therapist…..

Nick sensory toys

Cheers and down the hatch!  Don’t worry, he didn’t slam the whole thing.  Nick’s brother Hank, handed him the last half of his beer.  🙂

Nick chug beer

It was a great celebration.  We are very appreciative of the generosity from our family and friends.  Thank you for all the well wishes and touching sentiments.  That’s what is in my noggin this week!

~Teresa

 

 

 

Posted in Autism, Down syndrome, Fun Side of Nick

Re-Blog~ 5 Reasons I am Thankful for Nick

thankful

This week, a re-blog of #75 that I wrote last November:  5 Reasons I Am Thankful For Nick (who is 20 years old and has Down syndrome and autism). Click right here @https://nickspecialneeds.wordpress.com/2013/11/25/blog-755-reaso…nkful-for-nick/

Thank you for reading and sharing Nick’s world.  Wishing you all a blessed Thanksgiving. 🙂

~Teresa

Posted in Autism, Down syndrome, Fun Side of Nick, Recreation/Leisure and Special Needs

Blog #107~Dolphins and My Son with Special Needs

 

Blog #107~Dolphins and My Son with Special Needs

There is something about dolphins and Nick. The first time I noticed his fascination was on a field trip to the Shedd Aquarium when he was 6 years old. As the dolphins sprung out of the water he got so excited! The look on his face was sheer delight. I’d never seen him so joyful and mesmerized all at once.

Dolphin show

A few years later, at SeaWorld in San Antonio, my sister witness Nick’s joy.  Laura literally cried seeing Nick’s face light up.  He is so drawn to the dolphins and beluga whales.  Nick has Down syndrome and autism.  His speech is limited.  But no words were needed.  The look on his face said it all.  I knew that I had to find a way for him to get up close with dolphins as they seemed to be able to connect to Nick.

A few years ago we took a vacation down in the Florida Keys.  This was a perfect opportunity to find a program where Nick could get in the water with the dolphins.  There are many dolphin encounters in that area but I decided on a more personal experience at Hawk’s Cay Resort“The Dolphin Connection” provided this with small groups of 4 or 5 participants. I spoke with the head trainer to discuss our son and his special needs. She assured me they were very experienced with handling such. I created a social story filled with icons to support Nick in understanding the schedule of events. It was a beautiful day with the warm sun cascading over the aqua waters of the Keys.

Hawks-Cay-004-340x213

The first part consisted of a brief classroom instruction to go over rules and education on dolphins. Nick along with his Dad, brother and cousins were so excited to squeeze into wet suits and get down to the docks.  The experience was very hands-on where each participant individually got to touch, feed, hug and even kiss these amazing mammals.  Nick was completely engrossed. As the trainer had the dolphin roll over Nick quickly bent down to give the dolphin a “raspberry” on its belly.  The trainer remarked, “Well, THAT’S a first”.  Leave it to Nick,  I have a feeling that trainer will never forget him!

raspberry

The final portion of the dolphin encounter included interaction using hand signals. This was a huge splash as they were able to gesture and the dolphin would clap, twirl around, move backwards, and jump high in the air.  As I stood behind the camera filming, I was deeply moved.  This day was such a beautiful gift and the photo tells the story that Nick indeed was connected and absorbed in this moment.

Nick and his Dad……

Nick Kiss

Nick still likes to watch the video footage from that day. Two of his favorite movies are Flipper and A Dolphin Tale. I have to think that this unique experience will forever be one of the best things we have done for our son and together as a family.

Nick’s brother, Hank and  his cousin Anna….

dolphin photos 07 002 (2)

When you have a child with special needs and limited speech it can be extremely challenging to know what they are thinking, feeling and what they truly love.  I had a hunch that this experience would be a slam dunk.  Indeed, it was and then some.  My heart is warm in knowing that we could give this to him.   That’s what is in my noggin this week. 🙂

~Teresa

 

Posted in Autism, Down syndrome, Fun Side of Nick

Re-Blog~ Halloween Costumes and a Special Needs Child

Re-Blog~Halloween Costumes and a Special Needs Child

This is a fun look back at some of the Halloween costumes the boys have worn over the years.  Last Friday, Nick (who has Down syndrome and Autism) went gangsta to the school Halloween dance.  Shockingly, he kept the hat and necklace on much longer than I anticipated.

Snoop Nick is in da house……

Nick gangsta

Click on the link below to view more costumes the boys have worn:

@https://nickspecialneeds.wordpress.com/2012/10/29/blog-28-hallow…over-the-years/

I’ve been doing more re-blogs because we’ve picked up a bunch of new readers since launching the Facebook Page, “Down syndrome with a Slice of Autism.”  Plus it’s fun to go back and revisit some of these stories after two years.  That’s what is in my noggin this week.

Happy Halloween!

~Teresa

 happy halloween

Posted in Autism, Down syndrome, Fun Side of Nick

Blog #106~ Pets and Children with Special Needs

Blog #106~ Pets and Children with Special Needs

Having a pet in the home can be beneficial for a child with special needs. Pets can boost mental and physical health, alleviate stress, be soothing and reduce anxiety. For a child with special needs, a pet provides unconditional love and affection along with helping a child become more social. In addition, having a pet in the home can teach responsibility and empathy. Feeding and caring for a pet allows a child to shift the focus to a pet’s needs. 

I witnessed this first hand with Nick. My 20 year old son has Down syndrome and autism.  His speech is limited. He uses a  picture book to communicate his wants, needs and feelings. On several occasions he has handed me these two icons:

This is our cat Miss Mellie of 17 years that passed away…..

Mellie Sad Icons

For as long as I can remember, there has been a tabby cat in my life.

Me with Tiger back in the late 70’s……

Tiger and T

When Nick was first born, we took him to get screened for the early intervention program. One of the questions they asked was, “What other family members were there?” They were pleased to hear this included an older brother and a cat. Both of them would help Nick become alert and engaged in the world. His brother could shake toys to get him to look up. A cat with a bell on his collar would also get Nick’s attention. Each time he would look up it would strengthen his neck and trunk. This in turn, helped to fight the low muscle tone associated with having Down syndrome.

Nick, Hank and Woody our cat….. (You can see Nick’s low muscle tone as he is propped up against his brother)

Woody and the boys

Woody was my faithful friend since college and lived to be 17.  Several months later, we adopted Miss Mellie. You can read all about Nick and Miss Mellie’s relationship in the archives under the category, “The Fun Side of Nick”.

Nick thought she made a great task strip for his PECS icons…..

photo (117)

Now,  we are in a new chapter having recently adopted a new kitten from the shelter.  For more information click@ https://nickspecialneeds.wordpress.com/2014/09/29/blog-105-furry…needs-families   She has been here for a few weeks and is settling in well.

We decided to name her Kibbie……

Kibbie

Kibbie is a 5 month old tabby.  At first she was jumpy when Nick made his loud noises. But like the rest of us, those stimming sounds and yells are becoming white noise to Kibbie as well. (Well for the most part) 🙂  I am working on getting Nick to dangle the wands and throw cat toys for her to fetch.  He is also serving her food dish each evening.  My heart swells when Nick plants kisses on her head.  I posted a video last Friday on the Facebook Page (Down Syndrome With A Slice Of Autism).  There is also a video of the kitten playing fetch posted the week before.

It looks like the two of them are getting along nicely……… (yes we like taking sleeping photos in my family)

Kibbie and Nick

According to Brain Balance Centers, (http://www.brainbalancecenters.com), “The right family-friendly pet may be just what your child needs to better cope with daily stressors and other overwhelming sources of stimulation. Owning a pet may help ease these daily anxieties and help to better facilitate socialization and understanding. It may also benefit a child who struggles with sensory, social or behavioral issues.”  I look forward to sharing the new adventures of Nick and Kibbie with you.  Stay tuned for this and most likely a third installment of “Stuff On My Cat”.  Thank you for reading and sharing Nick’s world (and humoring me when I write about cats).  That’s what is in my noggin this week. 🙂

 

~Teresa

Posted in Autism, Down syndrome, Fun Side of Nick

Blog #105~ Furry Friends and Special Needs Families

Blog #105~ Furry Friends and Special Needs Families

I wish that my iPhone camera was set to video last Friday. Nick came home from school and he was so excited to hear a tiny meow.  We adopted a new kitten from the shelter.  His face just lit up.  He was so excited and delighted saying, “Yay, kibbie!”  (That is how Nick says “kitty”)  Nick has Down syndrome and autism.  He also has verbal apraxia so his speech is limited.  Yet, I am always amazed at some of the words he says. Many are things that he is passionate about. Here are a few: Taco Bell, McDonald’s, Sprite, cake, shower, Harold -from Thomas the Tank Engine, and yes….. a couple of expletives as well.

In Nick’s communication book he has many picture icons to request things and share his feelings. On many occasions, Nick has handed me these two icons paired together………

Mellie Sad Icons

We had to put down our 17-year-old cat last summer. Miss Mellie was such a big part of the family. Nick had a lot of fun with her over the years.  I’ve dedicated several blogs about their relationship……

https://nickspecialneeds.wordpress.com/2012/12/03/blog-33-stuff-on-my-cat/

https://nickspecialneeds.wordpress.com/2013/07/08/blog-62stuff-on-my-cat-part-ii/

https://nickspecialneeds.wordpress.com/2013/08/05/blog-63furry-family-members/

Here is a hint of what you can find on the blogs above……Splat!

photo (112)

Despite all the mischievous things Nick has done, Miss Mellie would still snuggle up with him……

IMG-20121123-00001

Our new kitten is a sweet tabby as well. She’s 5 months old, loves to cuddle and has a nice deep purr.  She is spirited yet not destructive, and even plays fetch!  I’ll post some footage of her fetching on The Facebook page, “Down Syndrome with a Slice of Autism” this Friday.  Nick has been swinging some of the wands that dangle cat toys for her.  He is a little skittish when she wants to rub up around his legs.  But otherwise, the two are getting along nicely.

Introducing the new furry family member……

Kibbie one

So, you may have noticed that I haven’t mentioned her name yet. We are taking a few days to observe her personality and see what suits her.  Nick’s brother (Hank), came in from NIU to meet her and brainstorm names.

Hank and kitty…..

Hank and Kitty

I think she is settling in nicely….

Kibbie Two

I posted pictures on Facebook on Friday. My friend Kendra, suggested naming the kitten the first thing that Nick puts on her. Well if we do that, her name thus far would either be “Sneezy” or……….

Snots!!!

snots the dog

I look forward to sharing more about Nick and the adventures of our new furry family member. Stay tuned for the announcement of her name. And in the meantime, I’ll keep the shaving cream and fajita seasoning locked up.  That’s what is in my noggin this week.

~Teresa 🙂